Lymphoma

Join the Conversation on
Lymphoma
1.8K people
0 stories
170 posts
About Lymphoma
Explore Our Newsletters
What's New in Lymphoma
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

See ya in 2024, Mighty fam!

It's hard to believe that this is my last Mighty post of 2023. 😱

You may be thinking to yourself, “Kat, it’s only December 8, where are you going?!” Well, even Mighty staffers have to take medical leave!

I’m having my 16th surgery next week and I’m not exactly looking forward to it. I’ll be missing the holidays with my family and friends again, and more importantly, missing all of you and my Mighty team. But I’m hoping for a short hospital stay and reveling in some boredom while I recover, which is a feeling I haven’t experienced (but need to) in a very long time!

As is my tradition, I tend to end the year by writing a very sappy post to this community about how you changed my life over the past 365 days. Admittedly, this year was one of the worst on record for me. Here’s what you supported me through: six months of surgical recovery from my emergency surgery last year, two deaths in my family, an earth-shattering lupus diagnosis for myself and a lymphoma diagnosis for someone I care deeply about… believe it or not, that’s only some of the list. 😅

But that’s not really what I want you to walk away with as 2023 winds down. Because The Mighty is not just about me, it’s about all of us. Here’s what I want you to fold up and pocket:

You are, bar none, the best people I know! Oftentimes in an inaccessible world, it’s easy to look at ourselves and say, “I am not worthy. I shouldn’t be here.” But have you ever thought about it the opposite way? That not only do you belong in this world but you actually help make it better? In a lot of ways, joining The Mighty is like taking a bet on yourself. Daring yourself to find connection and reach out for support. I watch you do it daily and it keeps me going.

As the new year dawns, I hope you continue to take bets on yourself — to be better, to give yourself more grace, to steady a ledge for someone else, to share your story in a way that breaks stigma. In all of the places in your life where you feel invisible, I want you to know that’s not how it is here. I see you, completely — and I love you all so much for it. Thank you for making me better, too.

Be kind to each other and yourselves. (Mighty staffers @skyeg and @mightymentor Nina will take very good care of you, too!) See you in 2024! 💪

#CheckInWithMe #MightyTogether #ChronicIllness #Spoonie #ChronicPain #CheerMeOn #MentalHealth #Caregiving #Anxiety #Depression #PTSD

129 reactions 22 comments
Post
See full photo

Check out our new ER+/HER2- breast cancer condition guide!

Are you or a loved one diagnosed with ER+/HER2- metastatic breast cancer and looking for a resource with information that combines expertise from both medical experts and patients? We got you!

Here is what you will find in our new condition guide:

✅ What Is ER+/HER2- Metastatic Breast Cancer?

✅ Managing ER+/HER2- Breast Cancer

✅ Common Breast Cancer Misconceptions

Mental Health and Metastatic Breast Cancer

✅ How To Talk To Others About Metastatic Breast Cancer

✅ How To Support Someone Living With Breast Cancer

Take a look at (and bookmark!) the condition guide here:

The Mighty's ER-positive/HER2-negative Metastatic ...

#BreastCancer #Cancer #BoneCancers #OvarianCancer #LungCancer #ThyroidCancer #lymphoma #ChildhoodCancers #MentalHealth #ChronicIllness #ChronicPain #Caregiving #Grief

The Mighty's ER-positive/HER2-negative Metastatic Breast Cancer Condition Guide

Post

Im shooken up this time TW…

He contacted me again this time sent me many different videos and told me how much he hates me. I’m so sick of this my ex rapist continues to stalk online social media after 3 years I reported him to the police 👮‍♀️ a few months ago and looks like I have to go again. All I want is to move on with my life and have something go right which it really hasn’t for the last 10 years. #hodgins lymphoma survivor #RapeSurvivors

Post

I'm new here!

Hi, my name is WonderWoman_1973. I'm here because I want to be able to not only share my own experiences with others, but also learn about others' experiences by asking lots of questions and comparing experiences to learn more! Support from a community of people who have things in common with one's self can be one of the greatest "physicians."

#multi-organ transplant (5)
#pulmonary Embolism
#Hypothyroidism (under active Thyroid)
#Antiphospholipid Syndrome
#autoimmune thrombosis
#breast cancer survivor
#lymphoma survivor#multi

Post

dealing with Cancer

My husband of 41 years was just diagnosed with lymphoma and we are both dealing with the treatment and the ups and downs of cancer. Depression, dealing with insurance and hospitalization are taking it's toll ! We need support and help

Post

grief

It is sinking in that my therapist has cancer and I may not see him again. When he told me I was in a crowded airport. He tried to get me to call back but I asked him what was going on. I was shocked and he said he was sorry I had to find out this way. I remember a few years ago I said half-jokingly "what will I do when you die?" and he said, "hopefully you will be better by then?". I tried to just be respectful and supportive. He said he would know in a month or two if he was working again, and if he did it would have to be tele health only. He said he had a list of long-term clients that he would touch base in a month. I mostly just want to know how he is doing. I told him that I would be thinking of him.

My husband understands how important he was and that I am still fragile. He encouraged me to meet with people and get to know someone, in case I need more support or get triggered while my therapist is battling cancer. He understands that it can sometimes be hard to find a good fit. I thought he was right. My therapist was supposed to email me a referral of someone to speak with if needed but he did not get to it. So today I called to make an appointment with a new therapist, and I almost started crying. I know that I can adjust to a new therapist, but this is a loss. I liked him a lot and he saw me through some tough times. His boundaries were always good, but he shared more information than many other therapists would. He was smart, progressive, warm and funny.

In other relationships, you could ask if you could help. or talk to other people who also care about this person. He has non-Hodgkins's lymphoma that has spread throughout his body. He said it was aggressive but treatable, he said he had a 60% chance of survival. I was calm but I thought to myself, those are not the best odds. So, he may or may not work again depending on how he responds to treatment. I know he has adult children that live in town. The only thing I can do is continue to take care of myself and accept the grief that comes from no longer having this person in my life. I can be grateful that I had such a good therapist for so long, on and off for over 20 years. I will miss seeing him.

5 reactions 1 comment
Post

Phone call

Yesterday I got a phone call from my therapist of 20 years. He told me that he had non-Hodgkins's lymphoma and that it had spread throughout his body. He won't be working for the at least the next month and maybe longer. He sounded optimistic and positive. I am sad for him. He is such a kind compassionate man, and he just had his first two grandchildren. I am sad for myself because I will miss him. It makes me sad that I won't know what is going on with him and that I can't be helpful. That it is now this abrupt goodbye. He said he will give me and update in a month as to whether he will be working again. If he does it will be telehealth only. I am not a friend or a family member, so it is not appropriate or even helpful to do anything more than tell him I will be thinking of him. I am an anxious person, so I've worried about him before. I don't feel anxious now, just very sad.

Post
See full photo

What do you find to be the most challenging about a cancer diagnosis?

Getting a cancer diagnosis is many things — heartbreak, anger, pockets of simplicity, grief, even gratitude. But there are parts of it that straight up suck.

What’s been the #1 challenge for you or a loved one?

#Cancer #BoneCancers #BreastCancer #OvarianCancer #LungCancer #ThyroidCancer #lymphoma #ChildhoodCancers #MentalHealth #ChronicIllness #ChronicPain #Caregiving #Grief

5 reactions 8 comments