Median Arcuate Ligament Syndrome (MALS)

We all just had COVID and my chronically ill body is not doing well. I am in a major flare of all my conditions. Today my body just hurts and feels heavy. Nothing makes it feel better. I can barely fet out of bed and need my cane. It all just hurts. I hate days like this and get easily discouraged. Sometimes this goes on for weeks and ruins everything. I don't even have the energy to force myself to try something else. So I just binge TV and lay here with a heating pad and trying to sleep the pain away.

It all just hurts.
#Endometriosis #PosturalOrthostaticTachycardiaSyndrome #hypermobileehlers-DanlosSyndrome(hEDS) #ChronicMigraines #MALS #TBI #MastCellActivationDisorder

We all just had COVID and my chronically ill body is not doing well. I am in a major flare of all my conditions. Today my body just hurts and feels heavy. Nothing makes it feel better. I can barely fet out of bed and need my cane. It all just hurts. I hate days like this and get easily discouraged. Sometimes this goes on for weeks and ruins everything. I don't even have the energy to force myself to try something else. So I just binge TV and lay here with a heating pad and trying to sleep the pain away.

It all just hurts.
#Endometriosis #PosturalOrthostaticTachycardiaSyndrome #hypermobileehlers-DanlosSyndrome(hEDS) #ChronicMigraines #MALS #TBI #MastCellActivationDisorder

Hi, my name is darcy_hwood. I'm here because

#MightyTogether #EhlersDanlosSyndrome #Dysautonomia #MedianArcuateLigamentSyndrome #Gastroparesis #ComplexRegionalPainSyndrome #Fibromyalgia #ChronicFatigue #FeedingTubes

#ThoracicOutletSyndrome

Hey everyone! i was recently diagnosed with venous thoracic outlet syndrome after struggling with a horrible DVT that has not gone away as well as constant nerve pain, numbess in my face, arm, and hand, and swelling. It has been so scary for me. I will most likely have to get surgery because it is so bad. I also have ehlers danlos syndrome and all of the comorbidities that come with it. I was wondering, for anyone who has both, is it possible that this puts you at risk for more vascular compression disorders? I have so many unexplained health issues and I have been researching other vascular compression disorders and I am really wondering if this is something I should bring up to my vascular doctor (things like MALS and SMAS). What are your thoughts? Do you have more than one? #EhlersDanlosSyndrome #EhlersDanlosSociety #MedianArcuateLigamentSyndrome #smas #MALS #vasculardisorders

#ThoracicOutletSyndrome

Hey everyone! i was recently diagnosed with venous thoracic outlet syndrome after struggling with a horrible DVT that has not gone away as well as constant nerve pain, numbess in my face, arm, and hand, and swelling. It has been so scary for me. I will most likely have to get surgery because it is so bad. I also have ehlers danlos syndrome and all of the comorbidities that come with it. I was wondering, for anyone who has both, is it possible that this puts you at risk for more vascular compression disorders? I have so many unexplained health issues and I have been researching other vascular compression disorders and I am really wondering if this is something I should bring up to my vascular doctor (things like MALS and SMAS). What are your thoughts? Do you have more than one? #EhlersDanlosSyndrome #EhlersDanlosSociety #MedianArcuateLigamentSyndrome #smas #MALS #vasculardisorders

I’m curious to see who has had MALS surgery, who has had redo surgery, and what you’re current #MedianArcuateLigamentSyndrome status is! Let’s go through this #Together ♥️

#MALS #abdominalpain #ChronicPain #epigastricpain #chronic #nutrition #Pain #nause

I’m curious to see who has had MALS surgery, who has had redo surgery, and what you’re current #MedianArcuateLigamentSyndrome status is! Let’s go through this #Together ♥️

#MALS #abdominalpain #ChronicPain #epigastricpain #chronic #nutrition #Pain #nause

Does anyone else on here also have EDS or MALS? I think I have MALS, and I have a mild form of EDS along with my POTS. Getting checked for MALS this month, fingers crossed its something fixable. Does anyone have any tips on how to deal with the subluxations that come with EDS? #MedianArcuateLigamentSyndrome #EhlersDanlosSyndrome

if you asked me 10 years ago or longer I never thought I would be living with a rare chronic illness. I never thought I would be as tired and filled with negative emotion as I am feeling lately. I am tired. of being in pain, depending on people, it's too much..

if you asked me 10 years ago or longer I never thought I would be living with a rare chronic illness. I never thought I would be as tired and filled with negative emotion as I am feeling lately. I am tired. of being in pain, depending on people, it's too much..