Join the Conversation on
65 people
0 stories
11 posts
Explore Our Newsletters
What's New in
See full photo

Really hoping this year will be the year for a cure with so many COVID-19 patients developing this too. Time to find a cure!

#downforthecount #POTS #Outofspoons #youdon ’tgetituntilyougetit

1 comment

Tried to get my school/work stuff sorted out. Wrote two e-mails, had a 45 minute web meeting and made a PowerPoint. The study counsellor said it sounded like I was doing better today. She obviously did not understand how my fatigue works. 🤣

I promised myself I'd try harder for my friend but I can't just will this tiredness away. It just hits me. I'm skeptical whether I should attempt to do anything fun now or if I should just go to bed. 🙀 #Outofspoons



Is anyone else really struggling with school work due to a lack of spoons/energy? It’s so hard to focus when I’m in pain or tired. #Spoonie #SpoonieProblems #Disability #School #Outofspoons #tiredness


I seemed to have a plethora of spoons this morning; got so much work done! I was on a roll, an unstoppable force of awesomeness, a train on the fast track- chugging along with admirable force!
Then, without warning BOOM! I ran out of spoons. I hit the wall; HARD. Banished myself to my bed. The fatigue and radiating pain enveloped me.
At dinner I forced myself to stay awake long enough to eat. Even writing this is difficult, as all my body wants to do is be still and my eyes just want to close.
I'm not complaining, just sharing a day in the life of a fibromyalgia warrior.
#Fibromyalgia #fibrowarrior #fibrowarrior #Fatigue #Fatigue #adayinthelifeoffibro #adayinthelifeoffibro #ChronicPain #ChronicPain #Spoonie #Outofspoons

See full photo

Remember life’s sweetness with me.

Will you do me a favor, Mighty friends? Post your own photo that captures something good or happy or beautiful or breathtaking (make sure to add the hashtag #CheckInWithMe when you post).

Because it’s been a really long week and I could use a little reminder of life’s sweetness (and maybe others could too). ☀️

#MentalHealth #Anxiety #Depression #Recovery #EatingDisorders #ChronicIllness #Outofspoons #RareDisease #ChronicPain #EhlersDanlosSyndrome #Hope


Spoon theory

What spoon theory chart is the most accurate for you with how many spoons things are worth and how do I know how many spoons I should have a day and how many spoons do you have a day and if I run out how do I het more #EhlersDanlosSyndrome #SpoonTheory #Spoonie #SpoonieProblems #Outofspoons #ChronicIllness #ChronicPain

1 reaction 1 comment

I want to share my story... #TheMighty #mightystory

.... but it's an epic and I think this is somewhere in the middle. It better be Dammit! I'm Riding into battle on my zebra, and I've heard in numbers we are a bold dazzle.

Today I battled Lawyers and Brain fog, burning zappy spine of Painful-hey-you-stop-moving!!!, SSI, SS/D, catching a pivotal error in my application, apologizing lawyers (not to them but them to you), Fatigue, Pain so much Pain, must.do.more. still.not.enough.to.equal.progress AND Stop! I have to Stop. I've fought today. Thats enough. I know I can do this, I just need more Spoons.

**(And after it all I'm going to restate it all in graphic detail to best friend who it battling a migraine with two children that mind as well be mowgli and tiny merrida! And we will feel sane for a bit. )
#Anxiety #ChronicIllness #EhlersDanlosSyndrome
#Undiagnosed #ChronicPain #Neuropathy #Allodynia #dislocationsubluxationday #Migraines #progress #DepressionAndMentalHealth
#MentalHealth #Zebras #Hypermobility #oww ! #SpoonTheory #Outofspoons


Woke up well... not so much#ChronicPain #Overdidit #Outofspoons #Osteoarthritis #RA

Woke up feeling great. First time in awhile. I rushed around and did my housework, got a bunch of errands ran too. Well while grocery shopping a felt a small click in my hip joint and now... so sore. I ALWAYS do this! Now I’m gonna be sore tomorrow too. Currently on prednisone so I’m not worried about a full blown flare, thankfully. When am I gonna learn to pace myself on good days?!? Urghhh!

1 comment