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    Anyone else attending NORD's Living Rare, Living Stronger?

    It's my first year attending this virtual forum, and I've noticed more medical professionals and non profits have been featured so far! Any other patient attendees? Shout out in the comments!
    #RareDisease #NORD #RareDiseases #Livingrareforum #FamilialHemiplegicMigraine #HemiplegicMigraine #Undiagnosed

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    Community

    Celebrating #RareDiseaseDay by wearing blue for Dup15q, a community that means the world to us. Great day that began with #SpecialOlympics bocce ball and a 7-6 win by #TheMighty little leaguers too. We should all live life with the joy they had out there today. #RareDisease #Autism #Parenting #Dup15qSyndrome #Anxiety #MentalHealth #MightyTogether #CheckInWithMe #DistractMe #Epilepsy #NORD

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    Today is international rare disease day! #RareDiseaseDay

    as someone who has grown up with a rare disorder I feel like the importance of this day could not be overstated. we need to raise awareness in the community and the medical field about people with rare disorders. #RareDiseaseDay #Hyperacusis #NORD #invisableillness #ChronicPain

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    Kinda disappointed and nervous

    My choir teacher announced that they’ll have a charity concert next year and are looking for suggestions. I picked NORD(national organization of rare diseases) and I’m REALLY hoping that he’ll consider it. But I’m graduating this year so… #RareDisease #EhlersDanlosSyndrome #Awareness #NORD

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    Rare Disease

    On 2/28 I went with members of my patient community to Senator Dianne Feinstein's office to thank her for her previous support ( she's on the Appropriations Committee and share with her representative information about our disease myotonic dystrophy This weekend I attended a NORD event and learned more about the Orphan Drug Act and met some great patients and caregivers representing other rare diseases I'm feeling a new sense of empowerment #RareDisease #MyotonicMuscularDystrophy #PatientAdvocates #NORD #OrphanDrugAct

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