Sarcoidosis

Hi, my name is PomegranateKoala21. I'm here because The Mighty represents a great resource for persons with various medical issues. I’d like comment on my specific medical issues, and there’s a large amount of them. First, I’m a 77 year old female. These are many, but not all, of my medical issues:1. Hepatic sarcoidosis – diagnosed 50 years ago. Active2. Pulmonary sarcoidosis- active3. Pulmonary hypertension4. Diastolic dysfunction5. Autonomic small fiber neuropathy – (asfn) with 90% of symptoms 6. Chronic inflammatory demyelinating polyneuropathy – (CIDP)7. Fibromyalgia8. Severe restless leg syndrome9. Severe central sleep apnea10. Severe obstructive sleep apnea11. Heart failure12. Non-REM sleep13. Syncope and collapse14. Asthma15. Chronic venous insufficiency16. Idiopathic hypersomnia17. Gout 18. Myositis19. Sciatica20. Allergies21. Low pulse ox- sometimes down to 84 and below22. Bradycardia – at times into the upper 40’s - asfn23. Tachycardia – up to 111 – asfn24. Low blood pressure – down to 80/40 – asfn25. Severe osteoporosis26. Heart perfusion defectI’m tired, but I have more than 70 diagnoses. Feel free to comment

#PTSD #Gastroparesis #Endometriosis #Sarcoidosis #ColonicInertia #Agoraphobia #MastCellActivationSyndrome #Grief #ChronicIllness #MentalHealth #SensoryProcessingDisorder Hi, my name is Abigail, but with most I go by Abby! :) I’m known as abbysgotguts (although they do not work lol) on my medical-focused social media accounts, mainly on IG. I have a non-profit called Angels Of Strength™️ that I started with my Best Friend Ali. Our non-profit’s website & applications have been on a pause/hold since Ali suddenly passed away (she also was sick since a child) on July 21, 2024. I have been trying to get it going again, it is just so painfully heart breaking to do it without her. But also, there’s NO WAY I’m letting our non-profit just fade into non-existence. It was our baby and made us both so happy. So I’ve been working on ideas/designs to use to give a HUGE upgrade to our website (have a big memorial page for Ali, change around our business cards we put in each Warrior Bag and Hospital Donation we give, but edit it so those who receive a package/donation from us, not only know us and our non-profit’s name, like the card has always shown, but I want it to be clear Ali has passed, but that this is ALL for her from now until, well, forever. Ali will be the center of it all! I vow to make Ali’s name, heart, and smile known, said and remembered forever - even hundreds of years from now when we are all gone from this Earth!!) so I can guarantee/promise that AOS will be up and running as fast as I can physically can (and also, tbh, how fast I mentally/emotionally can….as fast as my heart can handle.). So I made this account to learn more about grief, coping, Ali, my, and our AOS recipients health struggles to make everything that much more personal. I have been sick since a young child and once I hit puberty, all h€|| broke loose! I have good days, bad days, and currently, extremely absolutely horribly bad days. I’m an open book. I’m very open with any question or topic someone comes to me to talk or ask about. Ali also got very suddenly sick as a young child, and like me, seemed to get sicker over time instead of better, with less to no treatments for our diagnoses, mainly just live with it at home in our daily lives with a lot of hospital visits shoved in there….A LOT. I’ve followed The Mighty for a long time now, but I’ve decided to actually make my own account to focus on things I need to and learn a lot more about things I both need and want to for myself, my family, my friends, and honestly just for my own curious mind sometimes!! XOXO
#MightyTogether

Today was a decent day especially after yesterday. Yesterday I got in a huge argument with hubby and my daughter got mad at me for laying some truth in her that she very much needed.
Today I have been just trying to take care of me the best way I know how because tomorrow it is back to work.
I have been short of breath all day, a mix between allergies and my normal breathing issues. But, it is getting better.
I have stopped eating sugar flour and wheat to try and improve my health and I can feel a difference. Now I just have to figure out a way to get in some exercise. #Migraine #PolycysticOvarySyndrome #ChronicFatigueSyndrome #Sarcoidosis #HypothyroidismUnderactiveThyroidDisease #AutismSpectrumDisorder #ADHD #Depression #Anxiety

Happy Mother's Day to all the Moms. Whether a Mom to humans or fur babies...Enjoy your Day!
#Mothers day, # chronic pain, # sarcoidosis, # spinal cord stimulator

I absolutely CANNOT concentrate on something when other stuff is going on. Including someone talking to me when the TV is on.

Tonight my husband said either he needs to have my hearing tested or turn the TV off. So I said, ‘Turn the TV off.’ He was like, ‘I don’t think so’. Then I told him AGAIN that my hearing isnt the problem. He says, ‘Either it is your hearing or you just ignore me all the time.’ What the Hell?!? I have tried to get him to understand AuDHD but he refuses. He won’t read about it or anything.

Just so you all know my husband isnt always like this. Usually we get along great. We have known each other for 35 years and been married for two. He is a great man just stubborn as hell and refuses to learn. I do love him with all of my heart. That is why I am posting this.

We are going to be together forever so does anyone have any advice?
#ADHD #Autism #PolycysticOvarySyndrome #Sarcoidosis #Migraine #ChronicFatigueSyndrome #Anxiety #Depression