spinal surgery

I had MRI’s this week and found out I have yet more issues to add to my ever growing collection. Some I already knew I had, so this was just confirmation. Others are new. Are you ready? Here we go! 😂 These are all related to my cervical and lumbar spine. #Scoliosis , #Arthritis , #SpinalCanalNarrowing , #BoneInflamation , #SpinalStenosis , #bulgingdiscs , #PinchedNerve , one disc almost completely gone. Lots of fun stuff lol.

I’m being referred to a Neurosurgeon, most likely for #SpinalSurgery . I’ve had that before for an emergency spinal fusion, so I expect to be out of commission for awhile. Not sure how I’m going to make that happen. Being out of work for weeks or months, and no one to help me while I’m down. It’s a bit concerning, but I’ll cross that bridge when I get to it! (Trying to stay positive!)

Question for my Mighties! Have any of you ever heard of bone inflammation/infection? They said it’s not cancer, but what the heck is it? Medical term is #BoneMarrowEdema . Anyone know how that’s treated or what I can expect? Thanks in advance for any Mighty wisdom you may be able to offer!

I’m on day two of my teathered spinal cord surgery recovery, and it’s completely different from what I expected. I’ve never had surgery before this, and I assumed that the medication given in the hospital was supposed to completely eliminate the pain. I’m finding out now that it doesn’t. I also believed that it would only take two weeks for the incision to heal, and then I would be back at work. Again, wrong. The neurosurgeon said that with any spinal surgery, all your usual symptoms (my EDS, Mast cells, POTS, etc) flare up and nerve pain travels through your body to create new pathways. I am my own worst enemy here, I want to push myself, make my own meals, but I know future me will appreciate me taking it slow. A combination of strong pain killers, kombucha and ice packs is what’s keeping me going now, as I’m still waiting for those stool softeners to work. Who knew that you needed your back muscles to toilet yourself effectively? Or that walking would make you nauseous? I didn’t sign up for any of this…. My fellow zebras are being so kind with recovery advice, distractions, and support, and I couldn’t thank you guys enough. ❤️🙏 #EhlersDanlosSyndrome #SpinalSurgery #teatheredcord #Recovery #Surgery

I finally had my occult teathered spinal cord removed yesterday! After years of waiting for a diagnosis, and seemingly endless hoops to jump through before the operation, it’s finally over. They said it went really well, and said the cord was very tight, so it’s a good thing they removed it. Dr. Pang did an amazing job and really explained the whole process very well. No medical gaslighting here! When I got to the PACU I had to stay there for five hours because there was no bed for me, and that was my only complaint since it’s like pergatory down there. Spent one night in the hospital laying completely flat, not allowed to lift my head. This morning they rose the bed fifteen inches at a time every hour until I was upright, and then I practiced walking. On my way home now. Thank you all for your well wishes before surgery! Love my new Mighty community. #teatheredcord #SpinalSurgery #Surgery #Recovery

I had spine surgery on 3/3 (5 days ago) and I’m in a lot of pain. I expected this as I just had spine surgery 6/22/22 as well. I prepared for the worst and I hoped for the best. Here’s my question….I got a prescription for pain medication the day of my procedure which contained enough for 8 tabs a day spaced at every 4-6 hours, just like the prescription says. Here I am on day 5 with 8 tablets and I’m anxious…is the surgeon going to give me a refill , there’s no way people come off pain meds 5 days after spine surgery right?, am I crazy that I’ve calculated my dose’s exactly because I don’t want to experience the crazy pain that follows?.
Seriously, is there something wrong with that/me? I’ve never been an addict, but if pain was involved and pain medication was needed, I didn’t let anyone help me with that part. I’m the child of an addict, could be something there.
My bruising has only just begun and the swelling is horrific (ice is my friend). So my anxiety has kicked in because I’m scared to call the surgeons office and ask for a refill (to be called in tonight preferably so I don’t have to drive), docs don’t like to refill pain medication even for surgery relief. I’m so afraid to be in pain, but the anxiety of actually calling is getting the best of me right now. Ugh. Why? Just why? Why does my brain do this? I’m certainly not actively thinking these thoughts. I don’t understand why this has to be an issue for me. 😤😩🥴😵‍💫🙄🤥🫥🫤😳😔 #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #Anxiety #PanicDisorder #MoodDisorder #ObsessiveCompulsiveDisorder #AnxietyMedication #SpinalStenosis #MightyTogether #CheckInWithMe #CrohnsDisease #Fibromyalgia #BrainFog #BackPain #SpinalSurgery #ChronicPain

A little over a week ago, I had emergency surgery on my thoracic spine. I had a fusion and lamenectomy on T5-T9 and one disc removed. Prior to surgery, I lost the ability to walk and I had urinary/bowel issues.

Surgery on the thoracic spine is more rare than other areas and more complicated and risky. There wasn’t much choice in my case. I had posterior surgery.

It’s probably the toughest surgery I’ve ever had. My blood pressure dropped during surgery and my recovery has been good, but slow. I’m walking again with the aid of a walker and I still deal with neurogenic bowel and bladder issues, but there is hope that those will go away as nerves heal.

I’m hoping others who have had or are facing this surgery will find this post. I’m glad I had my surgery, but I never would have had it if I hadn’t gotten to the point of hearing paralysis. #SpinalCordInjury #SpinalFusion #SpinalSurgery #SpinalStenosis #spinal

#ChronicPain

not only did spinal surgery in some ways make me worse I woke up paralyzed in the knee down in my left leg they called it foot drop or drop foot whoops
#SpinalSurgery

#SpinalSurgery

I am writing a book “Joy in the Midst of Pain” about the different non-prescription methods some of us are using to cope with pain. So I would like to ask anyone in this group who suffers from daily chronic pain (of any form) and do not use any form of prescribed medication (does not include the occasional Advil, Tylenol etc) to help me by participating on a short survey questionnaire. Please note all participants will remain anonymous. If you or someone you know would be interested in being part of this book, or have questions, please contact me via message. I believe this book could be very helpful to many of us who suffer from pain or know someone who does. Thank you in advance for your willingness to be part of my book. #SpinalStenosis #chonicpain #SpinalFusion #SpinalSurgery #BackPain #Pain