Pinched Nerve

Hi. I'm new here. My name is Nick. I'm 6.3ft & enjoy traveling, swimming, music, being with my cousins when possible, I even want to get into model trains but would require a separate location as we just don't have the room in the house sadly, sometimes Lego's & sometimes games. My situation is unique because I keep getting diagnosed with new findings from different doctors & no one is putting it together. Over the course of a year I've experienced an alarming decline in health. Swallowing issues when I drank water with a throat click, a posture lean that came on from seeking chiropractor help due to pinched nerve that was causing me to fall. I saw genetics prior & all they came up with was a chromosome 4 duplication & a carrier for cep290. They deemed me as having insignificant results. Though the biggest discovery was the mri test & X-ray they ran Where they found porencephaly with a bunch of incidental findings like choroid plexus cysts, mucous retention cyst, & a hemosiderin deposit. The x-ray revealed upper scoliosis, & mild lumbar retrolisthesis. prior to that I was getting told from a board certified neuro physical therapist that it is conversion disorder & she tried to prove it & even When I told her the results of the mri she told me she still thinks it's conversion disorder. Idk maybe it's me & I need to just stop seeing doctors. The amount of spat I've gotten is incredible with my current gp having more care than all previous doctors combined. I even reached out to my geneticist who turned down all evidence I gave with there's nothing I can do for you & I have no recommendations. I even mentioned my cousin who has a speech disorder due to a cyst in his brain. I have 4 appointments coming up & I need someone to piece my history & figure out if we are after all this still missing something here. There's a few unanswered questions from my childhood/birth. This has taken it's toll on my family & I'm just fed up, tired & ready to forget about the medical field because they can't seem to put 2 & 2 together. If you want me to go more in depth as to what went on let me know & I'll post as much as I can on here. Have a good day :).

Had a new neurology visit today via zoom! I hate zooms! Sent because I continue to have neurological issues. Doc does not think MS, maybe a pinched nerve in my neck, but at least it gets me my cervical MRI. On my first MRI 3 years ago there was one T2 hypersensitivity in an area of my basal ganglia, which is the area dealing with movement… my greatest issue. But new doc eyes will see what comes of this. Many of my symptoms just don’t match my two diagnoses of PsA and Lupus. I’m certain about the PsA, not so certain about the Lupus. My symptoms have to do with major spasticity in many areas of my body, twitching caused by what feels like electric shocks, gait issues, urine inconvenience, no temperature regulation (reynaulds and never know when I have a fever, unless I wake up sweating), neuropathy started in big toes and finger tips, shaking events that they say are not seizures but yet affect my speech and thought process while it’s going on ( only stops by taking Ativan), disorganization so bad I don’t want anyone to come to my house anymore (that thought makes me cry), fatigue yet thankful no organ involvement at this point (although I’ve been scared numerous times).

I wake up every morning with stiffness until I spend 10-15 minutes stretching from #Fibromyalgia . Once a week, sometimes every other week, I have light sensitivity + migraines. Nothing sharp, just a dull pulsing ache. However, every single day, I suffer from neck pain and with a flare up it goes to my shoulders. More symptoms of #Fibromyalgia . Now to the back, the lower back. L5 region on the left side I go through aches. A few times a year it flares to wear it feels like it’s a pinched nerve but is the only time it doesn’t cause pain in my sciatic. And all the while my spine is perfectly fine! Can you believe that? Now, while all this is happening my fatigue is the most frustrating! And dont get me started with the spasms. Probably suffered longer than my initial diagnosis, but I still have to work in a stressful workplace. And told

“You are too you to go through pain”

“Add 30+ years” Mind you, I’m 32 but look like I’m 19.

I want to say I’m hurting without the judgement.

Now, don’t get me started with my symptoms of #Anxiety and #Depression . When I go through my depression moods, I’m quiet and don’t want to get out of bed. When I feel anxiety especially socially, I talk to much and pace/move around.

Let’s talk about things I’ve been denied:

Disability insurance
Student loan forgiveness for a disability
2 leave of absence from work both FMLA and Intermittent
MRI (originally)

That’s a start…
That’s the end of my rant. For now….

So it turns out my feminine sway in my walk is bc of a pinched nerve in my back where my body is sort of limping bc of weakening muscles from my pinched nerve. Who knew 😂 #DegenerativeDiscDisease #ChronicSpinePain #chiropractorstories

Hi all, I created this group as I didn't see any group specific to my condition. I wanted to share my experience. I had injured my elbow by accidently hitting the wall, in Nov 2021. Initial pain was bad. But after resting for a few days, the tingling reduced, but I maintained the classic cubital tunnel symptoms (pain in pinky and ring finger, difficulty bending the elbow).
As the pain didn't subside for a couple of weeks, I went to a hand specialist, where I had a horrible experience. He barely checked my hand, told me to do some weighted therapy exercises (no clear regiment explained), and then said I will be good in 3 weeks. The exercises were a big mistake, as they greatly aggravated my condition, the pain increased and I developed a painful click in my elbow as well.
After that I got a second opinion and I was finly diagnosed with cubital tunnel, tendinitis and bursitis of the elbow. Had to take a steroid course, and strong painkillers. Finally I started physical therapy in late January 2022, which has been helping. Now there is almost no pain at rest and clicking has gone, but still can't really use my arm for anything other than typing.
Even though my symptoms are improving, the injury has caused a lot of mental exhaustion after being in pain for almost 4 months, so I wanted to talk with others in similar scenarios and how they are dealing with it.
Thanks and take care.
#PinchedNerve #cubitaltunnelsyndrome

Suddenly my ankle was weak my foot felt like when it goes to sleep. Saw my primary care and its probably a pinched nerve and not a stroke or tia but when I stand or walk it starts feeling weird again. So now me not wanting to go shopping is ruining my husband’s plans for my birthday🙁