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I’m new here!

Hi, my name is wjudd429. I was misdiagnosed with a disease I didn’t have. I was on high dose steroids and chemo. I lost everything; from hair and bone loss to friends and family. I’m trying to put my life back together and it’s been an emotionally exhausting process and some days I fear things won’t improve. I’m afraid of the healthcare system and and wonder if something else was missed. I had a stroke that was missed while on this treatment. Between all the medications and stroke I deal with memory and processing issues now. sometimes I just don’t know where to start.

#MightyTogether #PTSD #ADHD #Grief

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My story (part 1)

❤️ **The Boy on the Shelf: A Story of Survival, Resilience, and Hope** ❤️

I was born in the spring and grew up in a small town. My first 11 years were filled with happiness, stability, and love—a foundation that many children rely on to grow and thrive. I have no bad memories from that time, only warmth and joy. My childhood was a safe haven, a time when life felt simple and full of promise. Family holidays with my parents and grandparents were a highlight, and I remember those trips with fondness, a reminder of a time when everything felt right in the world.

One of my happiest memories from that time was during a winter when my dad told me I was going to have a sister. I remember bouncing on my bed with excitement, over the moon at the thought of becoming an older sibling. When she was born, it felt like our family was complete. I loved watching her grow and being part of her early years. Those moments were precious, a snapshot of a time when life felt full of love and possibility.

One of my earliest and happiest memories of bonding with my dad was during a major football tournament. We’d stay up late together to watch the games, sharing in the excitement and camaraderie that football brought. Those moments were special, a reminder of the connection we had before everything changed. But it wasn’t just football that brought us together. I also remember watching Mike Tyson fights with him, sitting on the edge of the couch, wide-eyed as Tyson dominated the ring. My dad would tell me stories about legendary boxers like Muhammad Ali, weaving tales of their strength, resilience, and heart. He made those fighters come alive for me, and I hung on every word.

My dad was my hero back then. I loved going to work with him in his lorry, feeling like I was part of his world. The rumble of the engine, the open road, and the sense of adventure made me feel like I was on top of the world. He’d let me sit in the passenger seat, and I’d imagine I was his co-pilot, helping him navigate the highways and byways. Those moments were golden, a time when I felt truly connected to him, when I believed he was the strongest, bravest man in the world.

But everything shifted when I was 11. My father had a stroke, and life as I knew it turned upside down. The man I once looked up to—the one who shared late-night football matches with me, who told me stories about Ali and Tyson, who let me ride shotgun in his lorry—became someone entirely different. His illness left him abusive, distant, and eventually absent. The stability of my childhood was shattered, and the family dynamic I had known was forever altered. By the time another major football tournament came around, I was only 13, but I had already experienced more pain and upheaval than many people face in a lifetime. That year, my father moved away, and my fear of abandonment took root. The man I had once relied on was no longer there, and the void he left behind was immense.

It was around this time, at age 12, that the traits of Borderline Personality Disorder began to develop. BPD often stems from prolonged trauma, especially during childhood, and my experiences left me with a deep sense of emptiness and instability. The fear of abandonment became a constant companion, shaping my relationships and leaving me terrified of being left behind. This fear followed me into adulthood, manifesting in relationships where I constantly worried about being abandoned, even when there was no real threat. My relationships became unstable, marked by intense emotions and a desperate need to hold onto people, even if those connections were unhealthy or damaging.

My sense of self felt fragmented, like I was constantly trying to piece together an identity that had been shattered. I struggled to understand who I was, and my self-image shifted depending on the situation or the people around me. This lack of a stable identity left me feeling lost, as if I were drifting without an anchor. To cope with the overwhelming emotions, I turned to impulsive behaviours—drugs, binge drinking, and other risky actions that offered a temporary escape from the pain. These behaviours were a way to numb the emptiness, but they only deepened the void inside.

Self-harm became another way to cope. I would smash my face with objects to make it look like I’d been beaten up, and I cut my arms and legs. These acts were a physical release for the emotional turmoil I carried, a way to make the invisible pain visible. My emotions often felt like a rollercoaster, swinging from intense anger to deep sadness in a matter of moments. These extreme emotional swings were exhausting, leaving me feeling out of control and disconnected from myself.

The chronic feelings of emptiness were perhaps the hardest to bear. No matter what I did, I always felt a void inside, a reminder of the love and stability I had lost. This emptiness was a constant companion, a shadow that followed me wherever I went. At times, my pain and frustration erupted as explosive anger, sometimes directed at others but often turned inward. This anger was a reflection of the helplessness I felt, a way to release the pressure that built up inside.

There were also moments when I felt disconnected from reality, as if the world around me wasn’t real. This sense of disconnection made it hard to trust others or feel grounded, leaving me feeling suspicious and alone. These traits of BPD—fear of abandonment, unstable relationships, shifting self-image, impulsive behaviours, self-harm, extreme emotional swings, chronic emptiness, explosive anger, and feelings of disconnection—shaped my life in ways I couldn’t yet understand.

By the time I was 14, my mother’s new partner had moved in, bringing with him a constant undercurrent of fear. I was terrified of him, so much so that I would hide on a shelf, curled up with a book, trying to escape the tension and danger that filled the house. It was a small, fragile refuge, but it couldn’t last forever. I had hoped he might become a father figure, someone to fill the void left by my dad, but he had no real interest in me. Instead, he was as abusive as the rest, and the safety I longed for was nowhere to be found.

Eventually, I thought, *sod this*, and left the family home. Outside, I sought connection and safety, but instead, I found myself mixing with older teens and men in their early 20s. These were people who should have known better, but they took advantage of my vulnerability. There were two separate incidents of sexual abuse during this time. One, I describe as consensual, though looking back, I can see how blurred the lines were, given my age and the power dynamics at play. The other incident is harder to recall—I’ve blocked out much of what happened, but I remember running away afterward, my body and mind screaming at me to escape. These experiences left deep scars, even if some of the details remain hidden.

My teenage years were marked by chaos and pain. I would smash my face with objects to make it look like I’d been beaten up, perhaps as a cry for attention or a way to make my internal pain visible. I also cut my arms and legs, a physical release for the emotional turmoil I carried. These actions weren’t just about the physical pain; they were a desperate attempt to feel something, anything, other than the weight of what I was enduring.

During this time, I also became my mother’s “right-hand man,” stepping into a role that no child should have to take on. My mother was trying to protect both me and my sister, but she was navigating her own trauma and doing the best she could with what she knew at the time. I don’t think she was a bad person—just very naive, perhaps overwhelmed by the circumstances. It’s clear that I love her deeply, even though I’ve carried the weight of blaming her for not being able to shield me from the pain. My compassion for her shines through, even as I acknowledge the impact her choices had on my life.

TBC

(edited)
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Dearest C

I survived a few days of work. I've had the test results and nothing too bad there although I definitely have the condition. I'm on a new medication to help it. I'll just add that to the cocktail haha.

I only wish I could get your replies, thoughts, advice and prayers.

I'll always love and miss you. I never contemplated anything but a long life for us all.

#Grief #Sadness #Loss #Stroke

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Story of the Week: What hacks do you use to make cooking easier?

Managing daily tasks like cooking, cleaning, organizing, or running errands while dealing with a health condition and limited energy can be challenging and overwhelming. Finding ways to check things off your to-do list more efficiently can save time and help conserve energy, too.

What helps make cooking easier for you?

📚Need some inspiration? Read our Story of the Week here!
8 Cooking Hacks For When Illness Makes Cooking Seem Too Overwhelming

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction
#PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis
#Cancer #Anxiety #PTSD
#CheckInWithMe

8 Cooking Hacks For When Illness Makes Cooking Seem Too Overwhelming

"Some of these tricks and tips can really come in handy."
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Psychosomatic anxiety

Does anyone struggle with Psychosomatic anxiety? Psychosomatic anxiety (by my definition) is when your mental stress makes your anxiety worse and then you catastrophize and have crazy unrealistic thoughts: like that you’re having a heart attack, will have a stroke, etc. even though they never happen.

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Flare days, swimming in electrical peanut butter #ChronicPain #MentalHealth #Fibromyalgia #Vasculitis #CheckInWithMe

In waters thick with currents,
I swim through electric skies,
A peanut butter ocean,
Where each stroke is a disguise.

Nerve endings crackle like thunder,
Fatigue drapes its heavy shawl,
Like quicksand, it pulls me under,
In the depths where shadows crawl.

Anxiety thrums in my chest,
A heart wrapped tight in barbed wire,
As I fight against this unrest—
This endless chase of quelling fire.

Frustration lingers like a ghost,
In the hallways of my mind;
Hope feels scarce as I navigate—
In this maze that’s undefined.

Wellness, a distant horizon,
Promised lands I cannot see;
In a fog of pain I'm adrift—
Will I ever be truly free?

Each spark ignites a flame of doubt,
No solace found beneath the swell;
Yet still I strive to break about—
From this excruciating shell.

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The Healing Power of Art: A Journey Through Therapy and Painting

In the quiet moments of reflection, when the world seems to spin too fast, art stands as a silent companion, offering both solace and expression. For those who struggle with their inner battles, whether it’s anxiety, grief, or past trauma, painting can serve as a powerful tool for healing. In this single chapter, we will embark on a journey through the transformative process of therapy through art and explore how the act of creating and appreciating paintings can lead to profound emotional recovery.

There are times in life when words seem insufficient. When the pain is too deep, too complex to articulate. In those moments, many turn to therapy, seeking understanding and relief. But what if therapy could extend beyond words, into the realm of color, form, and texture? What if the act of creating art—of wielding a brush or shaping a canvas—could be just as healing as a conversation with a skilled therapist?

This is where art therapy steps in. Art therapy is not merely about creating something visually appealing; it is about using the act of creation as a means of self-exploration and healing. It is a space where emotions are externalized, where pain is transformed into something tangible. As one dips a brush into paint, a journey begins—one that allows for the release of emotions that words alone cannot convey.

Imagine a person, feeling lost, overwhelmed by the weight of their thoughts. They step into a quiet room, a space where they are invited to create, not to judge. The therapist provides them with an array of colors, a blank canvas, and the simple instruction to paint whatever comes to mind. No guidelines, no expectations—just freedom to express. As the brush moves across the canvas, something magical happens. The vibrant hues begin to flow together, emotions begin to surface, and what was once a tangled web of anxiety or sadness becomes a visual representation, open for examination.

It’s in these moments that the painting itself becomes a mirror—reflecting the inner workings of the soul. Each stroke of the brush is a conversation, each color a symbol of a different feeling. The deep blues may represent sorrow, the fiery reds a burst of anger, and the soft yellows a glimmer of hope. As the painting takes shape, so does the understanding of the self. The process of creation becomes therapeutic, a release of tension, and a moment of connection to the inner self.

For many, the act of painting becomes a form of release. Anxiety and stress, which may feel overwhelming in daily life, can be transferred onto the canvas. The simple act of focusing on color and shape allows the mind to quiet down. The person, once caught in a whirlwind of thoughts, finds themselves grounded in the present moment. The brush moves, the colors blend, and for a brief time, they are free.

But the healing doesn’t stop at creation. The painting itself can become a tool for reflection and growth. After the process of painting, the piece of art becomes a story—one that the creator can look at and learn from. What does the piece say about their emotions? What do the colors and shapes represent? This is where the therapeutic process deepens. With the help of a skilled art therapist, the painting is explored, and the individual is encouraged to reflect on the deeper meanings behind their creation.

A simple stroke of paint may reveal layers of emotions that had previously been hidden. Perhaps the swirling chaos of the canvas represents a time of deep turmoil, or maybe the serene landscape painted with soft pastels mirrors the peace that is beginning to form within. As the individual reflects on their work, they are able to connect with their feelings in a new way, understanding the root causes of their pain, and beginning the process of healing.

Art therapy also offers something that traditional verbal therapy sometimes cannot: a sense of control. In life, so much feels out of our hands—events, circumstances, and sometimes even our own emotions. But with a brush in hand, there is an undeniable sense of agency. The canvas becomes a place where the individual can shape their reality, where they can create something new, something that reflects their inner journey. This sense of control can be incredibly empowering, especially for those who feel helpless or powerless in their daily lives.

Paintings, once created, can continue their healing power long after the final stroke. They become reminders of the progress made, the emotions expressed, and the growth achieved. For some, a painting may even become a symbol of a turning point in their healing journey— a visual representation of a moment when they chose to confront their pain and transform it into something beautiful.

Through art, we can also begin to heal collectively. While individual therapy is vital, group art therapy creates an environment of shared experience. As people gather to create together, they find solace in knowing they are not alone. The act of painting becomes a communal bond, a way to connect with others who are on similar journeys. In a group setting, the act of vulnerability—sharing a piece of one’s soul through art—becomes an act of courage. The paintings that are shared, like stories, can create bonds, build empathy, and inspire others in their own healing process.

Art therapy is more than just creating pictures; it’s about creating a path to healing. For many, the act of painting becomes an essential part of their journey to overcome pain, process emotions, and find peace. It allows individuals to connect with their deepest feelings, to express them in a safe and nurturing environment, and to learn new ways of understanding themselves. It is, in essence, therapy for the soul.

As the final layer of paint dries, there is a sense of accomplishment and peace. The journey is far from over, but in that moment, the artist has taken one more step toward healing. And in the quiet of the studio, the canvas speaks. It tells a story of pain, of growth, and of triumph over the darkness. It reminds the artist that, just as a painting evolves, so too can they. And with each brushstroke, they are one step closer to the peace they seek.##

This chapter shows that the path to healing can be found in unexpected places. Through art, particularly painting, people can find an outlet for their emotions, process their experiences, and ultimately, heal. Whether in a therapy setting or on one's own, the act of creating and reflecting through art is a powerful form of therapy, one that speaks directly to the heart.

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An In-Depth Look At What “Self-Love” Looks Like, How It’s Different Than “Self-Care”, And A Reminder That Self-Love Is At The Top Level Of Everything

There is More talk about Self-Care than the Most Critical Key to Happiness and Great Relationships of all types——-“SELF-LOVE”.

With this in-depth look at what Self-Love looks like-for your own personal growth, I would like you to take an honest look inwards and determine if you Practice Self-Love.
If you’re not, or if you’re not doing all of the bullet points given below, don’t worry— “Each morning, we are born again. What we do today is what matters most.”

As always, let’s have a great conversation about this topic below 👇 in the comments where you can use this space for your own place in your mental wellness journey. Not your mental illness journey— I am here as a friend to guide you through to the other side as much as possible—yes, that is where I stand, and the magic only happens if you let me—so how about more group members join in for your sake.

The Mighty friends that have opened themselves up to this opportunity are telling me and showing me that they are really starting to get it, and they are taking bigger, new, determined steps in their lives.

"Self-Love" refers to a deeper internal state of accepting and valuing yourself unconditionally, while "self-care" focuses on taking practical actions to maintain your physical and mental wellbeing, like getting enough sleep, eating healthy, and engaging in activities you enjoy; essentially, self-love is the mindset that drives you to practice self-care. Self-Love is the mindset too that heals the pain and keeps you in the light, Determined to keep pushing away any darkness and to stop doubting yourself.

Key points to remember:
* Self-love:
* A feeling of intrinsic worth and acceptance, regardless of circumstances
* Becoming your own best friend - treating yourself with the same respect and understanding you would give a close friend.
* Be the love you never received.
* Includes embracing your flaws
* Foundation for setting healthy boundaries and prioritizing your needs
* learn to say no when needed and clearly explain why
* Don’t seek Anyone’s validation
* Positive self-talk: Use encouraging language to speak to yourself, focusing on your strengths and accomplishments.
* Pay attention to your thoughts and feelings, recognizing negative self-talk and actively replacing it with positive affirmations/relabel upsetting thoughts
* Say something nice to yourself in the mirror — looking into your eyes & smile at yourself & say “I love you”and your name. (Yes, I actually stop myself to do this & it’s Wonderful)
* cultivate self-compassion
* Encourage Yourself
* Talk to someone you trust who *Has The Capacity To Listen*-and, Another Big Key Here is that ***Being vulnerable - completely honest and thorough- about what you’re going through with someone else is a major form of self-love because you’re taking the time to dig deep, regardless of how uncomfortable it is, And, on top of that, you’re showing yourself that you want to work out whatever’s going on with you***
* avoid comparing yourself to others
* practice gratitude
* Seek out opportunities for growth
* Creating a safe zone all your own is an act of self-love because it gives you a designated area where you can focus on your needs and emotions instead of other people’s. The key here is creating a space that feels good and peaceful when life is neither of those things.
#MentalHealth #Mindfulness #Selflove #Selfcare #Selfharm #SuicideAttemptSurvivors #SuicidalIdeation #SuicidalThoughts #Suicide #Trauma #MajorDepressiveDisorder #PersistentDepressiveDisorder #Depression #Anxiety #GeneralizedAnxietyDisorder #Agoraphobia #BingeEatingDisorder #EatingDisorders #EatingDisorder #ChronicIllness #ChronicFatigue #ChronicFatigueSyndrome #MyalgicEncephalomyelitis #LymeDisease #ComplexPosttraumaticStressDisorder #PostTraumaticStressDisorder #PTSDSupportAndRecovery #PTSD #BipolarDisorder #BipolarDepression #AutonomicDysfunction #AuditoryProcessingDisorder #Deafness #ADHDInGirls #ADHD #AspergersSyndrome #AutismSpectrumDisorder #Addiction #CerebralPalsy #IntellectualDisability #Disability #Blindness #BorderlinePersonalityDisorder #BorderlinePersonalityDisorderBPD #Fibromyalgia #ChronicPain #Migraine #IfYouFeelHopeless #BrainInjury #MotorDisorders #MultipleSclerosis #RheumatoidArthritis #Arthritis #Grief #Loneliness #AnorexiaNervosa #Relationships #SocialAnxiety #FamilyAndFriends #Caregiving #CrohnsDisease #CysticFibrosis #AlopeciaAreata #Cancers #EhlersDanlosSyndrome #ParkinsonsDisease #PosturalOrthostaticTachycardiaSyndrome #POTS #Stroke #Diabetes #SelfharmRecovery #RareDisease #DownSyndrome #AddisonsDisease #IrritableBowelSyndromeIBS #ObsessiveCompulsiveDisorder #ObsessiveCompulsiveandRelatedDisorders #ObsessiveCompulsivePersonalityDisorder #DissociativeIdentityDisorder

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So my prayer partner is in the hospital w/ a small stroke. We pray regularly.

It stinks when you prayer partner has to go the hospital for a small stroke. I will keep you posted.

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Putting life on hold

Now the brother in law has gone both me and my wife are counting the cost. I nearly tripped on the stairs coming down twice, had memory loss and slurred speech. Yes a minor stroke that I realised afterwards was stress related and manifested in tension in both our necks and in my case a sharp pain on the other side of it and tingling in my right leg, this I realise explains the pain on the left side of my neck (the brain has a crossover effect, where one side of the brain controls the other side of the body). I also suffered from bad bouts of constipation through literally stopping my bodily processes.

Once recently on a return trip from a winter break, I had stress show up in the form of a knot in my solar plexus as my wife was getting nearly hysterical because we'd missed a turn which might have shortened the journey. Rather than explode under the pressure, I controlled my emotional response but at a cost. Massage helped but couldn't help with the previous situation mentioned.

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