Stroke

I have so much shit on my plate right now, I'm so overwhelmed!!! Between needing to pack, try and get money for storage, figure out how to safely make it down 4 flights of steps and back up to do laundry while barely able to stand up, get the trash out, all my appointments from home health to Drs ... I'm so exhausted! I can't do it all myself. Didn't mention I have 21 days to find a place and move out...

I have no help. The home health people don't help with anything, just vitals, nagging, notes, and exercise... I just think, "Okay b*tch my blood work is normal I'm not dehydrated, take the water crap and shove it. " Hell, between them and my family they just smile and nod when I say "i haven't been eating much cause I don't feel safe cooking, can't sit or stand long enough."

My family, "Be grateful you have family to help..." then when I need help, "Can you offer maintenance a few bucks to do it for you?" wtf?

I want out. I don't want to be in pain anymore.

( no religious replies, please.)

#overwhelmed #Stroke #POTS #CRPS

It's sad that we have to worry about being gaslighted by our doctors and the people who are supposed to care.

I was worried after my tilt table test because how the nurse described it, basically it's the cardiologist personal interpretation when reading it. Not that I wanted a POTS diagnosis but any diagnosis is validation of what I have been experiencing.

Today I was validated, all the falls and light-headedness, dizziness make sense now. They suspected it and tossed the diagnosis around. - I have POTS.

It's a weight off my shoulders in I know what's going on but in another way it's a darkness I'm walking in to. I have so many questions.What does my future life look like with POTS and CRPS?

Will I lose my independence for good? No more long walks alone because I could pass out? Am I wheelchair bound because I could fall and seriously injure myself?

#POTS #CRPS #Stroke

What do you do when you're tired of being poked and examined? I just want to cancel all appointments and say enough. The amount of appointments and tests coming up is overwhelming.

I'm worried they'll gaslight me with this, "well tests are normal...are you seeing a therapist?"

Okay dude my tests may be normal but my depression isn't causing my blood pressure to drop or the gastro bleeding...

I need a break from life.

The little happiness I've had in my 38 years is not even a half percent worth the physical, emotional pain and heartache I've experienced and it just keeps piling up. This isn't a gift, it's hell.

( please no religious replies. Thanks.)

#CRPS #POTS #Stroke #MDD #Gaslightling #exhaustion #givingup

Hello everyone,
It’s with a heavy heart that I share the passing of my beloved husband. He battled both stroke and traumatic brain injury, and for years we did all we could to keep him comfortable at home, surrounded by love. Losing him has left an emptiness I can’t explain—but I hold onto the peace that we gave him comfort and dignity in his final days.

Now, I have a collection of medical equipment that supported him—items that were well cared for and still have so much to offer. I would be honored to give these to someone who truly needs them.

Available items include:

Foldable power wheelchair

Hospital bed

Portable oxygen concentrator

CPAP machine

Recliner lift chair

Bedside commode

Walker with seat

Suction machine

Blood pressure monitor

Feeding pump

Overbed table

Pulse oximeter

Adult shower chair

Nebulizer

If any of these can help ease your burden or a loved one’s, please don’t hesitate to reach out. Giving them a second life would mean the world to me.

Grief has many layers. One of the hardest is sitting with the quiet after all the care and love you’ve poured into someone. I’m choosing to let some of that love keep moving—by giving away the medical items that once brought my husband comfort. If they can ease someone else’s pain, then something good still grows.

#griefsupport
#Caregiving
#medicalequipment
#disabilitysupport
#strokerecovery
#TBI
#Loss
#ChronicIllness
#HomeCare #MightyTogether #giveaway #WidowSupport

Hi, my name is Brinney. I'm here because my daughter had a stroke at the age of 2. Going on 5 now we face many uncertainties, so many countless appointments and still no answers as to why she had a stroke.

#MightyTogether #Stroke

So July 8th- 14th I was in the hospital, my last 48 hours there I saw 3 different doctors who were going to decide if I went home to unsafe environment or if they'd keep me there longer.

So finally last day there the newest doctor decided because hospital policy he'd discharge me even though I lived alone and was experiencing frequent falls, I fell that morning in the hospital. He refused to listen to my nurse who felt I wasn't ready to be discharged. He told me that not having help at home wasn't a hospital problem, it was a social problem, blaming hospital policy for his decision. He told me I could appeal his decision and I'd go to another unit and would not receive any further treatment or care, I'd just take up space in the hospital.

I chose not to appeal even though I was scared going home alone and was in tears ..My nurse was in tears and trying her best to get the doctor to listen to her. She told me I have a really bad feeling you're going to end up back here with severe injuries that we could have prevented.

This asshole recommended therapy and counseling in my discharge papers because I felt unsafe to be home alone because of my current health issues.

My primary Dr was pissed and even though she works for the same company, said I have a case of malpractice against the hospital.

#POTS #Stroke #CRPS #MDD

I stopped quilling almost 2 years ago due to my #CRPS but am remembering how relaxing it was and how much I enjoyed making things. Bought a new kit and going to try my hand at it again this weekend.

#crafts #CRPS #POTS #Stroke #MDD #paperquilling