Stroke

Hi, my name is JuniperGal. I'm here because I need help. Mentally Physically Spiritually. Been in pain since I was 12. I've been through 22 surgeries, body casting at age 2 for 2 1/2 years the first time. 2nd time age 24 for a year & again at 26 for a year. Then metal brace for a year. First operation was a triple osteotomy of left pelvic area. After a year they realized it was nonunion. Revision of osteotomy. Then 9 dislocations of a hip and 2 of the shoulder. Years of chronic systemic metal ion poisoning. Then came the spine- Compression fracture of vertibre by just putting jeans on. Fell and broke my right shoulder. Fell again, 4 more vertibre compression fractures. Then a failed spinal fusion. Haven't walked since. At age 24 the pain Dr at Rush diagnosed me with Reflex Sympathetic Distrophy of left leg (now called complex regional pain syndrome). My most recent ER visit for falling flat on my back & hitting my head pretty hard. Was a joke. I also lost ability to move left foot (foot drop). They said my muscles were weak and I wasn't an emergency. My constant migraine was just a headache. No x-rays, CT scan, MRI, nothing I was told to call someone to drive me home. Second and third ER visit (my PCP told me to keep going back) accused of being in opioid withdrawal, searching for pain meds. My doctor said to try going to a different hospital ER. 8 hours later, dismissed as usual. FINAL visit; a doc recognized that I had a massive concussion and admitted me for more testing! A couple days later the doctor came in kinda laughing states "Well you're right, there's something wrong and boy your husband is going to be pissed.) " You had a stroke. Would I mind being discharged to a rehab facility. They also said I had sepsis, a hole in my heart, pneumonia, that the constant migraine, and hallucinations should get better soon. At discharge the lovely nurse decides I don't really need to go to rehab. What an idiot. So that brings us to the present 4 months of laying in bed (can't have any pressure on my pelvis)loss of all muscle 💪. Some tendons & ligaments have turned to bone like material.
Stay tuned in for Part 2. *. Fighting for my meds!

#MightyTogether #Depression #PTSD #EatingDisorder

Imagine having your #BPD under control having many years of hard work with DBT. You finally you have "built a life with living," practice mindfulness, self-soothe and self-regulate. You have been clean for several years and you find a loving, handsome and exciting partner and travel to another continent with him. Life, at last, feels magical, gratitude is embodied within you and then you suffer a severe #Stroke at the age of 46. It leaves you speechless (aphasia) leaves you visually impaired and your brain is permanently damaged.

I am 2 years and 3 months post-stroke now and finally ready to write about it all, the stroke, the recovery, #Neuroplasticity and healing. Watch out for up-coming articles.