Stroke

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I'm new here!

Hi, my name is newME4ever. I'm here because I feel lost in the sea of anxiety's physical sensations. It's been 5 years of the anxiety rollercoaster... only to learn that I have been married to a narcissist for 15 years.

We have split up, live apart and I have gone NO CONTACT.
My anxiety has gotten worse in last 2 1/2 months. Sensations (new & old) seem to flooding me with wave after wave.

My support system, is my mother, that's it. I had no friends due to my marriage and partly my choice because people always ended up hurting me in some way. It was safer to not invest in friendships.

My heart is FINE (had it checked twice in 4 years) but my go-to thoughts of sensations is heart attack or stroke.... and I'm not even 50 years old.

I'm hoping to find ways to work through this really challenging time of my life.

#MightyTogether #Anxiety #Fibromyalgia #RheumatoidArthritis

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dysautonomia?

Well, Doctors have always been a challenge for me. Not only do I feel like my past continues to haunt and challenge me when it comes to living my life but I have been having dizzy spells and some chest pain.. sometimes sharp chest pain when I am overly stressed. My doctor is either just tired of me coming in or this could actually be a diagnosis that makes sense? She is going to get me to do a ecg. I have had one in the past but no results came back. I struggle with serverr depression and have some cptsd symptoms so having to do anything medical related can make me spiral a bit and feel guilty of not getting this dealt with sooner. When I researched dysautonomia I was surprised to find that the dizziness, irregular heart beat and blood pressure makes sense. Even the fainting makes sense as when I go to give blood I have to lay down after a fainting incident year ago. I also got horrible heat stroke as a child and would end up vomiting very easily if I could not cool myself down in time. I am hopeful that there is more research and understanding of this coming out there. I mean in the world of ai. I really think that the future of health will get better now that we can track symptoms and see what matches from data. Take care lovely people of the Mighty community.

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Conquering the Water

I've always loved being in the water. Being immersed in water helps my muscles relax and allows me to move my body in ways that are far more strenuous on land.

I've spent years doing various Aqua therapy programs, which have helped improve my mobility in many ways. One day, as I was staring out at a friend’s pool, admiring it, I decided I wanted to conquer the pool in a way I never had before – one hundred laps, there and back. I knew it would be a challenge and I could not accomplish such a feat on the first try, but that was okay. I had devoted the summer of 2013 to the challenge.

I committed to starting with five laps, there and back. I took a deep breath as I entered the water. I completed the five laps and kept going. Five turned into ten. Then ten turned into fifteen.

As I continued swimming, I assessed my body and pushed for just a few more laps. Exhausted, I made it to eighteen laps on my first swim of the season.

After reaching eighteen laps, I set a new goal of twenty-five. Again, I took to the water and swam with my whole heart. My goal came and went as I pushed myself harder. Thirty-eight, thirty-nine… forty laps! Once again, I had exceeded the goal I set for myself. I felt amazing.

My friends and family supported my goal by encouraging me to continue to push myself in healthy ways. They encouraged balanced nutrition, drinking plenty of water, and reapplying sunscreen as needed. They cheered me on throughout the process, giving me greater strength and determination to succeed in my goal.

As my journey to reach one hundred laps continued, I let go of everyone else’s opinions of how I should be swimming and listened to my body’s intuition as it guided me along each stroke of each lap. It didn't matter that I didn't use the "perfect form" or that I used multiple strokes to get to the end of the pool. Each lap built upon the last and I gained greater strength and stamina.

After months of practice the day arrived: I was finally going to conquer this goal. One lap after the last, in succession, I approached my goal with excitement. Ninety-eight… ninety-nine… one hundred!

What seemed to be an impossible goal not only became possible with great support and encouragement from people in my life, it was met with exhilaration that spilled over into each area of my life. I conquered the water and continue to conquer living with Ehlers-Danlos Syndrome. #EhlersDanlosSyndrome

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Heartbroken with ill cat #Cats #Pets #MentalHealth #Depression #ChronicPain

So, my older cat has had some congestion type issues pretty bad for a few months. We've been taking him to the vet and tried a few things and he gets a little relief from the twice daily inhaler but nothing else has helped. He's lost a pound and a half in a month and a half and today we took him in to get him scheduled for a CT scan and confirm there's not much we can do but wait for the results of it. While we were at the vet she noticed that there's a pretty big difference in how dialated the pupils are. In getting a picture of it I noticed the 3rd eyelid hanging out on the eye that isn't as dialated. I am so afraid we are going to do this scan and be told that there is nothing they can do for him. Tomorrow is my husband and my anniversary only I don't feel much like celebrating right now. We already made plans with friends and I'm not going to back out (unless something changes again) but I am not feeling so great right now. I keep thinking either he could have cancer or had a stroke or something and with the weight loss...I am scared we are going to lose him. But I also hate that he's suffering. Mostly this is just an emotion dump because I need to get it out somewhere. I know we are doing the right thing working with the vet. My mother lives with us so she will be with the cat while we are out so she can keep an eye on him if anything changes. Just my husband is at work and my mom is not very good at comforting me.

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I'm new here!

Hi, my name is Tipperarian1. I'm here because I want inventive ways to look after someone with post stroke pain

#MightyTogether

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Story of the Week: What's your take on self-care when you live with a chronic illness?

We often hear about self-care and think of it as prioritizing your needs, getting outside, taking breaks, or enjoying the occasional bubble bath. But self-care is so much more—especially when you're living with a chronic illness. There are added layers of considerations, demands, and limitations that are often overlooked.

What are your thoughts on self-care while managing a chronic illness or chronic pain? What does self-care look like for you? What do you wish others understood about taking care of your needs and health as someone with a chronic condition?

📖 Need a thoughtful read on the topic? Check out today's Story of the Week here: 5 Alternative Thoughts on Self-Care for Chronic Illness

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction
#PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis
#Cancer #Anxiety #PTSD
#CheckInWithMe

5 Alternative Thoughts on Self-Care for Chronic Illness

“Bubble baths and ‘me’ time are great, but there’s much more to it than that.”
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The Silent Horror Show - What it’s like to live with Trauma induced Panic Attacks

Here we go, an impulsive seemingly random dreaded wave of panic washes over me.

What is it this time? What triggered the sudden rush of adrenaline? I was feeling so good today!?!? No time to process or identify the trigger; I have to prepare for the tsunami I feel building up inside of me.

Great, another "episode" to interrupt my day; both mental paralysis and odd bodily sensations show up pumping massive quantities of adrenaline through every vein in my body sending me into a state of panic and confusion because the world around me hasn’t changed, yet I feel like I’m about to be attacked by what!!? The dining room chair?!??

The unwelcomed duo have now fully arrived and the horror show will begin within seconds silently engulfing all of me with its insidious fangs as the world around me keeps carrying on. I grow quiet and turn inward as my mind is always the first participant to be tortured behind the invisible curtains from the people around me.

It's time. I prepare to fully surrender and get comfortable with the uncomfortable; to “let go” and "float" so I can get through this internal nightmare labeled “Panic Attack” quickly without anyone noticing. The psyche is always the first to be victimized into the trance of corrupted narratives stuck in a persistent loop of false reality. The words on repeat telling me I am going insane and will drop dead from a heart attack, stroke, seizure or brain aneurysm.

How can this just be all in my head!?!! The terrifying catastrophic thoughts triggering such mental anguish and fear!?!? The bizarre unsettling physical symptoms so intense you fight every urge to not run out of the room screaming like a lunatic, or even worse, call 911 because your mind has literally made up its mind that the Grim Reaper is the next guest to show up. Oh, and then there’s the compulsion to whip out your phone frantically researching DR. GOOGLE’s online medical records so you can really convince yourself that the tingling hands and feet is a confirmation that you now have a neurological disorder.

No matter how many hundreds, actually probably closer to thousands, of full blown panic attacks I’ve experienced in the last 20+ years of my life; my brain refuses to believe we’re going to be okay. Every single time the thoughts race around my head like a dog chasing its tail; exerting energy and getting nowhere.

I whisper to myself “Please don’t let me lose my mind or die this time.” At this point, I am just waiting for the day when permanent insanity joins the dynamic duo of mental paralysis and bodily sensations become the three musketeers, the ring leaders of the horror show.

The intensity increases rapidly as it pulls me into a dissociative state of terror like a riptide's tumultuous force dragging you out to the depths of the dark sea.

Great, another “episode”….. My body is extremely tense, my chest is tight, my limbs are wobbly and trembling, my breathing is labored from the rapid inhalation of hyperventilation resembling what feels like drowning in air.

I obsessively start mentally scanning my body frantically checking in on every little sensation of anything that could resemble a heart attack. "This is it. It has to be!" My inner dialogue intensifies growing louder with each overly drawn breathe. #PanicDisorder #Anxiety #PTSD #ComplexPosttraumaticStressDisorder #PanicAttacks

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Hi everyone :) first post, looking for some direction :) I’ve always known that the way I am , was always a little different from the norm, but aside from meltdowns that first appeared during my early teens I was able to “keep it together” for the most part. After essentially being mostly bed ridden for 10 years (my epilepsy was out of control) in my studio, in a very low stimulus environment, I’ve finally been living again the past 9 months. However, whenever I’m thrust into normal life, I get overwhelmed/overstimulated by certain sounds , smells and crowds, need to rush home (I found that putting on noise cancelling headphones helps a lot before I’m to reach my place) and need to rest for a couple of days as I’m absolutely exhausted/drained and my angst, frustration, sadness, anxiety are turned up to a 100. (Meltdowns are common for me the following days if someone talks to me for too long) I suspect that all of this is due to the stroke I suffered as an infant and due to the brain damage I suffered from my seizures due to my epilepsy, which all hit the emotional centres of my brain). However, I have no idea what specialists to contact to see if they can help me further to help me with a diagnosis and also a specialist that can help me to cope with certain behaviours I have due to what I have (like mitigating those I mentioned above). I’ve been doing CBT over the past 6 years for depression and ocd but the therapist is not specialised in neurodivergence. My neurologist is solely focused on the medical aspect of things, that’s it. What do you recommend I should do first? Who should I contact? It’s really overwhelming. Thanks so much in advance :) #Depression #Neurodiversity #MentalHealth #OCD #Epilepsy #Stroke #BrainInjury

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