Systemic Lupus Erythematosus

For years I have lived with a “fibromyalgia” diagnosis and numerous strange symptoms that come and go. Recently things have escalated and changed and bloodwork revealed the probability of autoimmune disease; my PCP is guessing lupus or sjogrens. For all these years I have felt and seen the disbelief of people close to me and them thinking I’m just being “dramatic” or anxious. My ex husband went so far as to tell me to not tell anyone I have fibromyalgia because it’s embarrassing. When I recently received the lab results that I am not in fact “being dramatic “, I felt like throwing up my middle finger to everyone who turned their back and brushed me off. My mother even told me that she thought I was just having anxiety issues. My psychiatry nurse pointed out it is like I am validated now, even though having an autoimmune illness is definitely not something anyone wants. I feel like after all these years I am not just being a whiny butt. Now will come the hard part of waiting to see a specialist, it’s months to get in and that part sucks. I don’t have a lot of people in my circle and this does feel isolating so I’m here to try and be proactive, try and keep anxiety about the unknown and off the wall symptoms down and connect with others who are in the same boat. #autoimmune #ADHD #Undiagnosed #whatswrongwithme
#SjogrensSyndrome #SystemicLupusErythematosus #RaynaudsPhenomenon

Hi, my name is Mixitup13. I've been diagnosed with RA, and am in the process of adding a SLE diagnosis. I am also a primary care provider, specializing in family practice, with a passion for rheumatology and chronic pain management. I am looking for a community that can help me be me.

#MightyTogether #Anxiety #Depression #RheumatoidArthritis #ADHD

Hi, my name is WhatisHome44. I'm here because I feel like my life is over due to my chronic illness, my childhood/current trauma, and my deteriorating body. Because of this, everything I’ve spent my life working toward has fallen apart. And I have no way to make it any better. I’m 34. I’m losing weight astronomically fast. I have an illness that is exacerbated by stress, and there are people in my life who go out of their way to cause me stress. I don’t have a family physician. I’ve been bounced around from nurse practitioner to nurse practitioner, and am in a horrible situation at a private clinic. I’m losing all of my savings and these private clinics are cleaning me out. I didn’t have much to begin with. I cannot afford food. My wife works every single day and I work 5 days out of the week from home. I’m a musician/composer/audio engineer, but I’ve been struggling to hold my instruments. I’m losing mobility in my arms and legs. My brain is not functioning correctly, and I haven’t slept longer than 4-5 hours in over a year. I’m so tired. It’s so hard to work and even harder to function. I have no pain control. And I’m eligible for M.A.I.D in my country. I am trying to hold on. But am ready to exit. This was quite long but barely scratched the surface. I apologize for the heavy subject matter.

#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #Migraine #Fibromyalgia #PTSD #EatingDisorder #OCD #Grief #RheumatoidArthritis #SystemicLupus #reactivearthritis #NeurologicalDisorder #musician #Burden #PanicDisorder #AnorexiaNervosa #nightterrors #SleepTerrors #ChronicFatigue #ChronicPain #chronicinsomnia #Insomnia

Hi, my name is WhatisHome44. I'm here because I feel like my life is over due to my chronic illness, my childhood/current trauma, and my deteriorating body. Because of this, everything I’ve spent my life working toward has fallen apart. And I have no way to make it any better. I’m 34. I’m losing weight astronomically fast. I have an illness that is exacerbated by stress, and there are people in my life who go out of their way to cause me stress. I don’t have a family physician. I’ve been bounced around from nurse practitioner to nurse practitioner, and am in a horrible situation at a private clinic. I’m losing all of my savings and these private clinics are cleaning me out. I didn’t have much to begin with. I cannot afford food. My wife works every single day and I work 5 days out of the week from home. I’m a musician/composer/audio engineer, but I’ve been struggling to hold my instruments. I’m losing mobility in my arms and legs. My brain is not functioning correctly, and I haven’t slept longer than 4-5 hours in over a year. I’m so tired. It’s so hard to work and even harder to function. I have no pain control. And I’m eligible for M.A.I.D in my country. I am trying to hold on. But am ready to exit. This was quite long but barely scratched the surface. I apologize for the heavy subject matter.

#MightyTogether #Anxiety #Depression #BorderlinePersonalityDisorder #Migraine #Fibromyalgia #PTSD #EatingDisorder #OCD #Grief #RheumatoidArthritis #SystemicLupus #reactivearthritis #NeurologicalDisorder #musician #Burden #PanicDisorder #AnorexiaNervosa #nightterrors #SleepTerrors #ChronicFatigue #ChronicPain #chronicinsomnia #Insomnia

Hi, my name is TenaciousTiger. I've been diagnosed with Lupus SLE

#MightyTogether #Lupus #OCD #Anxiety

Hi, my name is alex. I've been diagnosed with SLE, and was originally on hydroxychloroquine to treat it. i’m now going to be taking methotrexate and i’m pretty scared because I know it’s low dose chemo if i’m not mistaken. the possible side effects make me nervous and I hate that i’m starting to look and feel sick now.

#MightyTogether #Lupus

Hello friends. I've had to go on medical leave due to an extreme flare. I was diagnosed about 11-12 years ago and after I got on benlysta I felt fantastic! Now, it has stopped working and its all I can do to get out of bed all day. Does anyone have similar experience with Benlysta?#Benlysta #flare #SLE #Lupus

Hello friends. I've had to go on medical leave due to an extreme flare. I was diagnosed about 11-12 years ago and after I got on benlysta I felt fantastic! Now, it has stopped working and its all I can do to get out of bed all day. Does anyone have similar experience with Benlysta?#Benlysta #flare #SLE #Lupus

Hi, my name is terriebriant. I'm here because
I look for any information that can help me get through Lupus flares. I also need support from others who understand the struggle with SLE #MightyTogether #Lupus