Terminal Cancer

I'm a little late but here the week 3

Day 11 – A Practical Tip That Helps

My walking stick for everyday. Don’t miss a meal and stay hydrated. It makes the symptoms worse, even if it’s hard to remember. A structure and a gourd are my best allies to remember them.

Day 12 – Thank a Healthcare Professional

My physical therapist, without whom I would be in the most complete pain

Day 13 – Living With Comorbidities

For me, it’s autism, asthma, orthostatic hypotension, and chronic urticaria.

Day 14 – Something I’ve Learned From Research

It's the Road to 2026 who gave me hope because right now, it’s up to the patient to assemble a medical team as best they can. From now on, he will have a real medical protocol for monitoring EDS and HSD. It’s no longer the specialist doctor who will impose on us when he wants to see us or not. There will be a real framework.

Day 15 – Wear #reds4veds

Day 16 – My Type, My Experience

I want that people understand hEDS and HSD are a chronic illness with more consequences that just hypermobility. Even at 21, I am learning new things about my body. It's not because Just because we don’t have terminal cancer (sorry, friends, but the able-bodied often use you to compare us) doesn’t mean that our experiences and problems don’t matter.

Day 17 – A Message to Someone Newly Diagnosed

Your experience matter. Your feelings and sensations matter. We must accompany you to understand your body, not reject you. Chronic illness will teach you more about life and your loved ones than a "normal" person would know.

Day 18 – What Rest Means to Me Now

I know it’s necessary now and I don’t reject it but we still have a complicated relationship. I try to understand it and adapt the rest to my life.

Day 19 – One Boundary I’ve Learned to Set

It's hard to set boundary.

Have a good week, see you Sunday

Wolf

#Autism #EhlersDanlosSyndrome #ChronicIllness #Disability

I’m so upset! I got a small cold right before the holidays and it seemingly went away until a few days ago it came back with a vengeance. I’ve been hacking up a lung and can hardly breathe. I also have this gross sore inside of my nostril that only getting worse. It’s a throbbing persistent pain I originally thought was from all of the congestion and blowing of my nose, but anything I’ve tried to use to help this pain isn’t working. And the internet isn’t helping because it’s pretty much telling me it’s cancer, the last few times I’ve been to my general doctor she’s gaslit me into saying all my problems can be resolved with nature. I’m still dealing with painful bowl attacks and have nearly crapped myself several times since then.

So obviously I’m not in a great headspace due to this cold combined with all of my mental health issues.

All of this reached ahead today during the packer game, my one aunt has been on this washing hands kick because apparently her husband and son do not. I was talking to another one of my aunts and jokingly told her that I spit in her shower gel I gave her for Christmas. The first aunt who wasn’t listening to our conversation and going on and on about how our hands are so dirty immediately started in saying that I could kill her by doing that and I should know better. I asked her when she was taking a shower at the second aunts house because last time I checked shower gel isn’t used to wash hands.

Instead of apologizing she just continued to aggressively argue this point about hand washing.

This aunt is currently dealing with terminal cancer, however she’s always been very rude and callous even before her cancer diagnosis. So no it’s hard to feel bad for someone who’s so cruel.

I’m upset because once again my mom just let her belittle me and didn’t stop her at all. Neither did my other aunt. I’ve talked at nauseaum with my therapist about how this first aunts attitude has always affected negatively and how my family just lets her get away with it. I’m pissed. I’ve been dealing with serious mental health issues for months as well as a suicidal attempt. My depression is at an all time low. So her rude comments are not acceptable nor appropriate.

I want to figure out a way of talking with my family members about how they can better help with this situations because I’m at my wits end here. Either they tell my aunt to knock it off or I’ll simply stop coming around. I’m not their punching bag and I don’t appreciate everyone ignoring these snide comments.

Anyone know how I can talk with my family about this?

#CheckInWithMe #Depression #MajorDepressiveDisorder #SuicidalThoughts #Suicide #FamilyAndFriends

Sorrowful. Close family member with terminal cancer. She’s still alive but the grief is already here. Draining all our energy and joy. Already grieving. #Grief #fightingdepression #sorrow

So, I have pretty severe cPTSD. My early childhood was full of parentification and emotional neglect. Due to other needs in the family and mine being less obvious- I always had to be ok on my own. I've recently learned so much about what childhood should be like and some of the reasons I struggled so much. I'm a single mom to an amazing teenager. Thankfully, I have been able to break the cycle for him. He has a healthy sense of self and doesn't question his worth- even though I still struggle.
My dad died 3 years ago, about a year after a terminal cancer diagnosis. My mom followed a year ago from a COPD associated heart attack.
Despite all I know about what was wrong in our relationships- I had established healthy boundaries with them more than a decade ago. They didn't accept much of what I know to be true, but we managed to connect and enjoy one another. It's so hard to miss them, while also being relieved that I don't have to fight so hard to keep my boundaries. Love is complex.

My sister is dying from cancer. It has progressed to the point the the hospital sent her home with hospice to die comfortably in her home. I'm anger and sad and scared. How do I do this life without my big sister? 💔 who will listen when I am down and make no sense? Who will advise me and tell me its going to be okay? She is too young to die she is only 59.Her older years have been stolen from her. I'm unbelievably broken hearted! I don't want her to go yet I had to give her my permission 😫 and tell her not to worry about me. She told me so calmly over the phone that she wasn't going to get any better and wouldn't be talking to my again. What choice did I have but to tell her it was okay. #Cancer #Depression #Loss #LiverCancer TerminalCancer

I'm not a daily caregiver of someone who has cancer. I am however the sister of someone who has terminal cancer. The doctors have told her they cannot save her life they can only prolong it some. I have virtually no friends. The reason I am not her caregiver is because she is far away from me. Otherwise I would be there daily. I am broken-hearted and she isn't even gone yet. I'm at a loss and and so much frustration. I'm helpless and I'm sad. I'm also a sufferer of major depression and bipolar disorder as well as anxiety. So the worry and the sadness is triggering other illnesses. I was hoping to find some support here. But like I said I'm not a caregiver so I don't quite fit the group. Is it okay for me to be here? Is there a cancer group on here for families I don't know about? Please let me know. #Cancer

My gram is in the hospital. She had a stroke. She has to do rehab then move into assisted living. We will have to empty her apartment and storage garage. Then move her in the assisted living. She also is battling vulvar cancer. Can’t operate because of her age (88) and she’s decided not to do chemotherapy because it will be extremely painful. My gram basically raised me because my parents were working. I’m so worried about her and I want to be with her as much as I can. I’m very overwhelmed. #CheckInWithMe #Hospital #Stroke #Depression #TerminalIllness #TerminalCancer #Cancer #VulvarCancer