Testresults

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Good news this morning

I had blood work done on Thursday last week and the results came back today. 4 months ago my a1c was 9.8. Now it's down to 6.2! I knew it would be better but this blew my mind. And my cholesterol is within normal range finally. I'm gonna schedule a virtual appointment with my doctor to discuss the test results. Hell be very happy.

#Diabetes #Testresults #CheerMeOn #CheckInWithMe

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My undiagnosed illness symptoms

Here are my symptoms at the moment:

Weight gain

- Previously I was always on the thin end of the spectrum now on the overweight boundary

- Have been passively been trying to loose weight for 18 months (usually I barely have to try to loose weight)

- Average exercise 30-60mins/ day

- I look pregnant

- None of my clothes fit anymore

Brain fog

-Can’t concentrate

- Poor memory

- Feels sludgy, no smooth thoughts

- Almost constant headache

Frequent illness/ infections

- Getting ill once a month with a cold/ flu something like that

- Have developed nasal polyps as a result

- Recovery slow avg 2-3 weeks which means I’m ill 50-70% of the time

Absolutely exhausted

- Could sleep for England Sometimes struggle to get to sleep

- Can easily sleep well over 12hrs but up to 24hrs at a time

- Difficult to get up in the morning, everything heavy

Loss of libido

- 3-4x per week down to 1x per month

Nipple discharge

- Started in January 2022

- Can be clear, milky or clear with yellow in it

- Often spontaneous after a shower

Numbness and tingling in hands and fingers

- Palm of right hand feels like ice is being rammed into it. Almost feels like the nerve is exposed and cold but it doesnt hurt and there’s not anything I can find that helps

- Left hand pinky and ring finger often go numb

- Often comes in waves where it will be almost constant for a few days or weeks then subsides for a bit

Temperature sensitivities

- Often too hot or too cold and struggle to get to the right temperature without swinging too far the other way

Loose, clicking joints

- My ankles are always giving way and often hurt for days after a particularly bad roll

- Many joints click when I move and I sound like a 1 man band, in particular my knees

- The arch of my right foot clicks but I don’t think there’s any joint or anything there to click?

Skin changes

- Lots of bruises that I don’t know where they came from

- Spots particularly on chest also more acne on my face than I had during teenage years

- Fragile skin that tears if I take a plaster off

- Purpura and pietache

- Stretch marks on my sides and thighs

Bowel changes

- Swing between constipation and almost loose/ diarrhea

Hair thinning

Slow healing of wounds

Recent additions

- Longer, heavier periods (14 days and bleeding through onto clothes started 6-9 months ago)

- Twitchy muscle thing

- Can feel blood in my legs

- Intermittently feels like I have a UTI for a few hrs then it goes away

- Bone in my lower leg hurts (both sides)

Test results

- Normal pituitary MRI

- Nasal polyps found on MRI

- Normal ovaries (NOT PCOS)

- mild anemia which worsened with heavier periods

- Normal WBC even when ill

- High IgA and IgM with normal IgG and recent EBV infection

- Negative ANA

- intermittently elevated liver enzymes, negative liver antibodies

- Negative HIV

- TSH mid of normal range, T4 on lower end but normal

- CRP normal, ESR borderline

- high Phosphate swings between high and low but usually low and rarely normal

- Intermittently but usually high estrogen, DHEAS, testosterone, cortisol, LH

- Low good cholesterol (slightly), all other cholesterols are normal

- Normal vit D, platelets, urea, electrolytes, albium, calcium, HbA1C, B12

If anyone has any suggestions of things to look into that'd be really helpful.

#Undiagnosed #chronic #ChronicIllness #chronicallyill #searchingforanswers #Gaslighting #Answers #Diagnosis #Testresults #symptoms

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Blood work and imaging

I got some blood work done. I only have half of the results because half of it had to be sent out to the Mayo Clinic. Also I have two different types of imaging that have to get done and now they are a week apart. I just want to know the whole answer to what is going on so I can stop stressing about what ifs and get a clear plan of care. #Testresults
#DistractMe

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Doctor needs me to come in to review test results. Concerned

I've had NUMEROUS tests performed by numerous types of specialists, but I've never had a physician tell me I need to come in to go over my results.

I had my 1st appointment with a new Rheumatologist 3 weeks ago; they took A LOT of blood (maybe 15-20 vials).

They called me 2 weeks ago - stating my Vitamin D level was 26, and they were prescribing a 50,000 IU supplement...and I thought that was that.

Then, this past Friday, I received another call from them - stating that the doctor needs me to make an appointment for Monday (tomorrow) to go over my test results.

....I had thought that, last year, my Neurologist had done a full lab workup for rheumatoid factor, autoimmune disorders, etc. (that's what they led me to believe)...But, after reviewing my medical records & test results, I've realized there were a few blood tests that hadn't been performed....blood tests that this new rheumatologist DID perform.

I have a family history of Rheumatoid Arthritis and such. I don't know
what to expect.

I'd really love to not have Rheumatoid Arthritis (or something else) on top of Fibromyalgia. I'm turning 29 in 2 weeks, but I feel 85.

#Worried #anxious #Uncertain #scared #Testresults #Rheumatologist #RheumatoidArthritis

3 comments
Post

Doctor needs me to come in to review test results. Concerned

I've had NUMEROUS tests performed by numerous types of specialists, but I've never had a physician tell me I need to come in to go over my results.

I had my 1st appointment with a new Rheumatologist 3 weeks ago; they took A LOT of blood (maybe 15-20 vials).

They called me 2 weeks ago - stating my Vitamin D level was 26, and they were prescribing a 50,000 IU supplement...and I thought that was that.

Then, this past Friday, I received another call from my rheumatologist's office - stating that I needed to make an appointment for Monday (tomorrow) to go over my test results.

....I thought that, last year, my Neurologist had done a full lab workup for rheumatoid factor, autoimmune disorders, etc. (that's what they led me to believe)...But, after reviewing my medical records & test results, I've realized there were a few blood tests that hadn't been performed....blood tests that this new rheumatologist DID perform.

I have a family history of Rheumatoid Arthritis and such. I don't know what to expect.

I'd really love to not have Rheumatoid Arthritis (or something else) on top of Fibromyalgia. I'm turning 29 in 2 weeks, but I feel 85.

#Worried #anxious #Uncertain #scared #Testresults #Rheumatologist #RheumatoidArthritis

1 comment
Post

Another normal result

I know it may seem odd, but I got another normal medical test result today and if just tore me apart. I have been sick for almost 4 years now, with no diagnosis. I have had countless tests done (many abdominal CT scans, so many ultrasounds, countless labs, brain MRI, hidascans, heart monitors) and they all come back normal. I’m just lucky that I am now with a doctor who doesn’t think it’s “all in my head” like doctors in the past. For most, normal test results are a good thing. For me, it is just another discouragement. #ChronicIllness #Thisisreal #Testresults

1 comment