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My undiagnosed illness symptoms

Here are my symptoms at the moment:

Weight gain

- Previously I was always on the thin end of the spectrum now on the overweight boundary

- Have been passively been trying to loose weight for 18 months (usually I barely have to try to loose weight)

- Average exercise 30-60mins/ day

- I look pregnant

- None of my clothes fit anymore

Brain fog

-Can’t concentrate

- Poor memory

- Feels sludgy, no smooth thoughts

- Almost constant headache

Frequent illness/ infections

- Getting ill once a month with a cold/ flu something like that

- Have developed nasal polyps as a result

- Recovery slow avg 2-3 weeks which means I’m ill 50-70% of the time

Absolutely exhausted

- Could sleep for England Sometimes struggle to get to sleep

- Can easily sleep well over 12hrs but up to 24hrs at a time

- Difficult to get up in the morning, everything heavy

Loss of libido

- 3-4x per week down to 1x per month

Nipple discharge

- Started in January 2022

- Can be clear, milky or clear with yellow in it

- Often spontaneous after a shower

Numbness and tingling in hands and fingers

- Palm of right hand feels like ice is being rammed into it. Almost feels like the nerve is exposed and cold but it doesnt hurt and there’s not anything I can find that helps

- Left hand pinky and ring finger often go numb

- Often comes in waves where it will be almost constant for a few days or weeks then subsides for a bit

Temperature sensitivities

- Often too hot or too cold and struggle to get to the right temperature without swinging too far the other way

Loose, clicking joints

- My ankles are always giving way and often hurt for days after a particularly bad roll

- Many joints click when I move and I sound like a 1 man band, in particular my knees

- The arch of my right foot clicks but I don’t think there’s any joint or anything there to click?

Skin changes

- Lots of bruises that I don’t know where they came from

- Spots particularly on chest also more acne on my face than I had during teenage years

- Fragile skin that tears if I take a plaster off

- Purpura and pietache

- Stretch marks on my sides and thighs

Bowel changes

- Swing between constipation and almost loose/ diarrhea

Hair thinning

Slow healing of wounds

Recent additions

- Longer, heavier periods (14 days and bleeding through onto clothes started 6-9 months ago)

- Twitchy muscle thing

- Can feel blood in my legs

- Intermittently feels like I have a UTI for a few hrs then it goes away

- Bone in my lower leg hurts (both sides)

Test results

- Normal pituitary MRI

- Nasal polyps found on MRI

- Normal ovaries (NOT PCOS)

- mild anemia which worsened with heavier periods

- Normal WBC even when ill

- High IgA and IgM with normal IgG and recent EBV infection

- Negative ANA

- intermittently elevated liver enzymes, negative liver antibodies

- Negative HIV

- TSH mid of normal range, T4 on lower end but normal

- CRP normal, ESR borderline

- high Phosphate swings between high and low but usually low and rarely normal

- Intermittently but usually high estrogen, DHEAS, testosterone, cortisol, LH

- Low good cholesterol (slightly), all other cholesterols are normal

- Normal vit D, platelets, urea, electrolytes, albium, calcium, HbA1C, B12

If anyone has any suggestions of things to look into that'd be really helpful.

#Undiagnosed #chronic #ChronicIllness #chronicallyill #searchingforanswers #Gaslighting #Answers #Diagnosis #Testresults #symptoms

2 reactions 1 comment

Getting Answers

So I’ve recently been making changes and taking more charge of things in my life. This has been an ongoing quest for years. I don’t know my biological father. I would like to though…at least know a name. I was raised by a woman who claimed to be a mother, but the older I get, the more I realize she wasn’t really a mother. She was the incubator God chose for me to be present on this Earth. Obviously there is a history between this woman and myself. At this point I would consider myself to be an orphan simply because she was not a “mother” she was not “nurturing” she was simply a body. As a child I knew my household was different. As a teenager I obeyed all the strict rules (to avoid the beatings/punishments). As a young adult I separated myself. Now as a middle aged adult I tried to forgive, brought myself back around & found this woman indeed was not a mother & that I actually (now a parent myself) not only took care of myself but also took care of her, just as my aunts & uncles did. What I once thought was a stable childhood really was not and found that my Aunts, Uncles and Grandmother took a large hand in my care growing up. This journey has brought me to a point where I am faced with choices that I just don’t seem ready to make, but know how I feel and can honestly say this woman was never a “mother” she was just a body in the house I was told to call home! There is more to come with this sorry….#Answers #biologicalfather

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After waiting for all my life (31 years) I finally have a diagnosis of EDS-HT!!! Words cannot express how excited and thankful I am!!!!

#EDSHT #ahhhh #ChronicPain #ChronicFatigue #itallmakessense #stretchingmeout #Diagnosis #Answers

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#Narcolepsy #Answers #testing

Today I am going through the testing to see if I have narcolepsy. I am scared. Scared of what happens next if I am diagnosed. What will life be like? Will I be able to continue working? How does one cope? One more thing to add to my list #ChiariMalformation #OccipitalNeuralgia #Arthritis


does it ever stop! :/

Alright so this is an embarrassing question to ask but I have been on zoloft for 2 months now and a side effect from it and said will happen but goes away is diarrhea... well it's been on going for 2 months now and it's really annoying and embarrassing does it ever stop or what can I do to help it? my meds work good for me so I dont want to switch but this is embarrassing and I'm kinda done with it ! please help.
#Zoloft #meds #Medication #Antidepressants #antianxiety #GettingHelp #helpme #Answers #questions #MightyQuestions


I missed taking my zoloft (for anxiety and depression) tonight do I just wait to take it till tomorrow now?

I'm also pregnant and take iron pills every day twice a day 6am and 6pm I pissed my zoloft and iron pill at 6 so I should just wait till tomorrow correct? Also I tend to forget like once or twice a week is that bad what can happen? how do I remind myself better to take them? #Pregnancy #pregnantmom #Moms #MightyQuestions #Answers #help #meds #Depression #Anxiety #Medication #Zoloft #IronDeficiency

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Can you take expired Medication?

I’m ran out of all #Medication and I have to wait until I refill them or else I have to pay out of pocket? I’ve had mixed #Answers regarding this, is it #safe ? #CheckInWithMe please!


What do you wish you had answers to?

We all live in a fog with chronic illness but what are the main subjects we want answers for or struggle with on a daily basis #ChronicIllness #questions #Answers