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    Community Voices

    I’m in pain but I don’t know why

    Hi everyone! I’m new here n I saw this app when I was searching for people who have similar experience as mine.
    I’m 20yo and around four years ago in 2019 i had some back problems that affect my nerves system as well and I’ve been going to physical therapy sessions for three months, three days in a week two hours each day, and at that time I started to feel pain in my joints (shoulders, knees and elbows) and day after day I started to feel pain all over my body literally everywhere, muscles pain, headache, digestive system problems whole body aches and weakness, and through these four years I went to 7 different rheumatologists and gastroenterologists, I’ve done some many check-ups n they told me everything is good except my tests shows that the CRP is positive and my ESR is so high, and all this affect my life in a bad way.
    I’m in pain all the time but there are some times the pain get stronger and stronger and hold me from doing even the simplest tasks in life.
    No one believes that I’m really in pain cuz I look normal, I look fine.
    When I see others who’ve been diagnosed with Fibromyalgia I kinda feel like I belong but my rheumatologist didn’t say anything about it he just said that i need to do more check-ups and they gave an appointment in November but I feel like I can’t wait the long and really don’t know what do.
    *I forgot to mention, when I started to feel that pain I was mentally stressed also #Pain #ache #Rheumatologist #Bodypain

    3 people are talking about this
    Community Voices

    Think i forgot to post the painting on my last post 😅 ?

    Rheumatologist went well, thank you for all that asked and gave advice! He's not sure yet if there is anything he can help me with, but he's the first doctor who's spent that much time trying to find answers! Plus just a very nice person. Here's the last bettafish i did. I cohosh remember if I'd posted him and liked back and don't see him so if i posted him before, i apologize! I'm Currently working on a mermaid watercolor. 🧜‍♀️ I'll post her when I've finished. 😁🧜‍♀️💙 #ChronicPain #ChronicIllness #Art #ArtTherapy #BackPain #Rheumatologist #AnkylosingSpondylitis #SpinalStenosis #ChronicMigraines

    11 people are talking about this
    Community Voices
    Community Voices

    Do you live with low-level daily pain?

    <p>Do you live with low-level daily pain?</p>
    8 people are talking about this
    Community Voices

    Myasthenia Gravis? What to say to specialist?

    Hi everyone,

    I think (not sure) I'm suffering from Myasthenia Gravis. I have been severely unwell for around 2 years. I have episodes where I drop to the floor with weakness, so many more extensive symptoms. I'm going to see a specialist next week and I'm nervous. I have been treated very very badly by the NHS and only now I am going to see a top professional do I feel like they're taking it seriously. I am traumatised beyond belief by what has happened in my body, how I've been treated and still no diagnosis after 2 years. I'm scared he will disregard my symptoms too (I know he won't!), but how should I approach it? What symptoms did everyone else have?

    All the best,
    Len x #MyastheniaGravis #Rheumatologist #Depression #Anxiety #chronicconditions

    3 people are talking about this
    Community Voices
    Community Voices

    Hyper mobility issues #hypermobileehlers-DanlosSyndrome(hEDS)

    Well. I am very hyper mobile and I installed some decorative lights in my room today. But I didn’t wear my braces because I’m bruising from them from my anemia right now.

    Guess whose bed ridden and can barely stand.

    Thank god I see the #Rheumatologist next week to figure out what exactly is happening.

    I’m in so much pain and my joints feel completely out of place.

    Ugh. I just want answers.

    How does everyone else with #HypermobileTypeEDS deal with your joints constantly aching?

    Community Voices

    Rheumatologist Joy

    So I've seen my rheumatologist twice now, the first visit she requested blood tests from my local clinic, they did all but a few and at my second visit they took the rest and the rheumatologist kind of said in a very nice way there wasn't much more she would be able to do for me and didnt recommend a third visit, but I was more than welcome to come see her if I had questions or needed help with something. She also said if there was nothing significant with the blood tests that I probabaly wouldn't here back from them. Well today I got a call from their labs saying the results were back in and the rheumatologist would like to see me (it's a 6 he drive one way to see her) so I requested a zoom visit and they said yes. So now I get to wait till the 6th to see what they found so interesting that they want me back 🙄😭 I love waiting.

    #Rheumatologist #EhlersDanlosSyndrome #hypermobileehlers-DanlosSyndrome(hEDS)

    14 people are talking about this
    Community Voices

    Doctor Appointment Tomorrow

    My rheumatology appointment is finally here. I'm going for the first time to figure out what the heck is going on with my body. My anxiety is kicking in, though. I got caught up in the rear that they won't fine anything wrong. I ignored all of my contacts skills today to make sure all of my symptoms are good and noticable. But now I'm stressing to work about what they WILL find. I'm also thinking about the length of the process. How long will it take to get a diagnosis, to get a treatment plan, to level it all out? The appointment is in the afternoon too so I'll be pretty useless all morning during class. My mom is going to come with me, but will probably have to just wait in the car. All these restrictions are going to make it all set so much worse, going in by myself and having to wear a mask through all of my anxiety. I guess we'll see how it goes...

    #Anxiety #Depression #Rheumatologist #ChronicIllness #Undiagnosed #newdoctor

    5 people are talking about this
    Community Voices

    So yes, I've been alone with my thoughts all day, and now I'm freaking myself out. I am being sent to the #Rheumatologist thursday on the pretense I may have #Fibromyalgia I already have #HashimotosThyroiditis #HypothyroidismUnderactiveThyroidDisease And #Bipolar or maybe its it's not bipolar who the hell knows anymore. I know I'm sick. I know I'm in #ChronicPain I know I trip over my words I have #BrainFog #ChronicFatigue Etc. But maybe I dont want To know. Maybe I cant handle another diagnosis, another label. I know its irrational because, if I have it, i have it, with or without a diagnosis. But I'm scared. I've already had to sacrifice so much. I'm not ready to give up more. I'm not ready for another fight. I'm just not ready. I have to go, because, well I have to. But I dint want to. I dont want to know. I'm not ready to change anymore than I have over the past year. I'm so scared so anxious and so sad. I'm not ready for this. I need #help

    14 people are talking about this