Tinnitus

Hi, my name is tiff8nymonique. I'm here because I suffer from chronic migraines, tinnitus , anxiety and depression. With all of this, I know I am not alone.

#MightyTogether #Anxiety #Depression #Migraine

I feel isolated.I am 22 years old and I dont know how to get past this because i feel like i cant relate to anyone. Ive been living with tinnitus since 13 and recently got stomach issues. (probably IBS since all tests were normal). I always struggled with self-image since I have pectus excavatum and my ears developed strangely. I know it might sound funny since there are much worse things happening but all of the things combined got me feeling really anxious.

I wanted to throw this out, trying to find someone who is struggling with similar if not same issues.

#IBS #Tinnitus #stahlsear #sunkenchest

Hi, my name is Linda. I'm here because I have been in the process of getting several diagnosis, and awaiting others to get started, and searching for clues about symptoms I'm experiencing with no answers. My feelings can be best described as being on an deserted island with no compass, no resources to help me survive, wondering if I will ever find my way back home.#MightyTogether #RheumatoidArthritis #Lupus #myopathyoverlapsyndrome #Osteoarthritis #SupraventricularTachycardia #Dyslexia #SleepApnea #Asthma #heartmurmur #Hyperacusis #Tinnitus #Costochondritis #ChronicPain #GERD #Chronicbronchitis #IBS #OpticNeuritis #anemic

Hello everyone, I joined in 2017, but never joined any groups. I’m 52 years old & have delt with chronic pain for 25 years. I have hEDS, RA, deafness, tinnitus, MCAS. I’ve had so many surgeries that I’ve forgotten some! 😂 I just wanted to find a group who understands instead of being given advice on what I need to do. Believe me in 25 years, I have tried it all.

Hi, my name is Standingtall77. I'm here because I have been diagnosed with Undifferentiated Connective Tissue Disease, Fibomyalgia and a long list of food allergies … I was already living with Asthma, Hypertension, Migraine, Tinnitus and Nasal allergies and now have few more to live with.. I don’t know anyone around me who has or knows about the auto immune disease or fibromyalgia… everything I have to read online … here it will help me understand and deal with my conditions better knowing that I am not alone ..

#MightyTogether #Migraine #Fibromyalgia

MS was first brought up back in April of this year after an abnormal MRI. Although my doctor said it was “almost impossible” to be MS, something told me to start researching. MS was something I had heard of but knew nothing about. I have since become almost an expert in MS. I told myself if I did end up with that diagnosis, with all the new knowledge I had, I could easily deal with it. Then I received the official diagnosis 2 months ago and now it’s like I’m in a sort of denial, which I know doesn’t quite make sense because I deal with the symptoms daily (non-stop vertigo, tinnitus, numbness, and oh, the fatigue!) Maybe it’s because I was told MS was such a slim possibility. Or maybe it’s the thought of needing extra help (I’ve always been the one taking care of everyone else). Maybe it’s because I have no idea what is going to happen. I know what MIGHT happen, but no idea what WILL happen. (I hate not knowing.) I know this disease affects everyone differently so there is no way to tell how it will affect me beyond my current symptoms.

I also started treatment last month (daily injections) and had severe adverse reactions. Now, I’m just waiting for my doctor to refer me to a pharmacist to discuss two possible treatments. But since I’ve had a bad reaction to my first treatment, I’m scared for the next ones, which as my doctor put it, are the “big guns”.

I’m curious how other people have handled this diagnosis. I know this is probably going to sound really bizarre, and maybe even a little unhinged, but when I first got the diagnosis, I actually felt relieved. For one, I FINALLY had an explanation for the symptoms I was experiencing for almost a full year. (Actually, looking back, I think I had symptoms for a couple years, but associated it with other issues.) Then, it was relief that it wasn’t terminal and also had great treatment options. The overall stats look really good, too.

I guess I’m just having a hard time wrapping my head around this whole thing. I tend to be more rational and logical, so I’m having a harder time with the emotional aspect of this. I know all about the disease. I know about all the possible treatments. I know all about the different ways it might affect me. I just don’t know how to deal with it all. I’m curious how other people handled the diagnosis. Did anyone else feel a sort of relief, or am I just twisted? How long did it take to find a good treatment? Did you get lucky and the 1st treatment worked, or did it take a few different tries? My apologies for the essay and all the questions. I appreciate any insights and advice about the emotional side of dealing with MS.

#MultipleSclerosis #MightyTogether

This is my first post on this forum and pleased to be part of it. I contracted COVID early March 2020. I wasn’t impacted from a respiratory point of view - more cognition, mental and physical fatigue, aches, loss of appetite…
Now more than 4.5 years on, the majority of my symptoms remain and I’m really interested to hear what others are doing to ‘accommodate’ this into their lives.
Whilst I’ve had countless medical consultations, I’m still pushing for more support/help:- I’ve a forthcoming Psychiatric and Nuerology appt and also hoping to go back to a long haul clinic to learn and share.
It’s only recently that I’ve recognised how much I’ve changed over those 4.5 years - weight, confidence, not going to any social occasions, avoiding crowds, tinnitus, memory loss, still no appetite….im finding it tough currently to be honest and I’m really aware of the impact on my wife - who has been amazing- however, I do feel for her.

I know I’m luckier than many, however, I’m really struggling to find a glimmer of hope that might signal a return to me - although I know I need to live with it.

Apologies for the outpouring - but glad to be with you all.

I live with lupus and fibro and all the things that come with it. My life seems relatively "normal" although my mobility is 👇👇. Do you know that lupus can affect your hearing?? I researched and was shocked to find out it is true. I have had episodes of tinnitus and dealt with it by soft music.

I was recently diagnosed with severe hearing loss on my right side and mild loss on my left. Initially I thought it was tinnitus or wax. This was not the problem. Imagine my shock having to be fit with hearing aids; although I just shrugged and plodded along.

Have your hearing checked. This should be as compulsory as the eye checks if you use hydroxychloroquin.