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    Community Voices

    Wishing you all a peaceful day! Good evening to me!

    <p>Wishing you all a peaceful day! Good evening to me!</p>
    4 people are talking about this
    Community Voices

    How will you respond?

    <p>How will you respond?</p>
    5 people are talking about this
    Community Voices

    Tinnitus makes each night harder


    This tops off my other health problems. Sleep is tough..taking Ambien but sometimes that doesn’t even work.

    Community Voices
    Community Voices

    A picture can hide 1000 words

    <p>A picture can hide 1000 words</p>
    Megan Glosson

    26 Different Types of Headache and Migraine Disorders You Should Know

    People often assume all headaches are the same. However, people who live with headache or migraine disorders know all too well that this isn’t the case. In fact, there are actually over 20 types of headaches and migraines, and knowing which type you have can help you and your doctor determine what type(s) of treatment will be most effective. Some headache and migraine disorders are stand-alone conditions, whereas others are secondary symptoms to another health condition. Also, some are fairly common, whereas others are so rare you may have never heard of them. So, let’s take a look at 26 different types of headaches and migraines, sorted by type. Primary Headache Disorders 1. Tension Headache Tension-type headaches (TTH) are the most commonly occurring type of headache disorder worldwide. These headaches cause feelings of pressure or tightness in a band-type shape around the head, and can also spread into the neck. 2. Cluster Headache Cluster headache (CH) is a headache disorder in which people experience severe headaches around one eye or on one side of the head. In addition to the extreme pain they cause, these headaches can also come alongside symptoms like red or teary eyes, sweating around the face, runny or stuffy nose, and restlessness or agitation. Approximately 1 in 1,000 adults live with cluster headaches. Secondary Headaches 3. Caffeine Headache Caffeine headaches are a type of secondary headache caused by either a caffeine withdrawal or overuse of caffeine. Although these headaches are not typically life-threatening, they can be frustrating and painful for people who experience them. 4. Hormone Headache (Menstrual Migraine) Hormone headaches, or menstrual migraines, are headaches that occur either right before or during a person’s period. The headache can last anywhere from a few hours to a few days and can get worse with certain lights, sounds, smells, or movements (much like a migraine). Because these headaches are typically caused by changes in estrogen levels, sometimes doctors will prescribe certain types of birth control to help people manage severe forms of hormone headaches. 5. Sinus Headache Many people experience sinus headaches when their sinus passages become congested or inflamed. This often causes intense pressure or pain behind and around one’s cheeks, nose, eyes, and forehead. These headaches are often treated with over-the-counter medications, but sometimes are the result of a sinus infection, which requires antibiotics to cure. 6. Hypertension Headache Elevated blood pressure can cause what’s called a hypertension headache. It typically feels like a pulsating type of pain on both sides of the head and can be a warning sign of a more serious medical condition. 7. Exertion Headache An exertion headache, or exercise headache, usually occurs as a result of intense physical activity. These headaches can last a few hours or a few days. They usually have no underlying cause. 8. Rebound Headache Rebound headaches, or medication overuse headaches, frequently occur in people who live with another type of headache disorder. They are usually caused by the overuse of NSAIDs or other types of pain relievers. Common treatment includes temporarily discontinuing certain medications. Migraine Types 9. Migraine With Aura Migraine with aura is a type of migraine disorder in which people experience aura, visual and sensory changes that occur shortly before the migraine headache, or attack, begins. About 25 percent of people who live with migraine experience migraine with aura. 10. Migraine Without Aura Migraine without aura is a migraine disorder in which the two warning phases (prodrome and aura) do not occur. Besides that, migraine without aura includes most of the hallmark symptoms of other types of migraine. 11. Migraine With Brainstem Aura Migraine with brainstem aura is a migraine disorder where the aura symptoms originate from the brainstem. This can cause symptoms like slurred speech, vertigo, tinnitus, and impaired hearing in addition to typical migraine symptoms. 12. Episodic Migraine Most people who experience migraine live with what is called episodic migraine. This simply means they have migraine attacks up to seven times per month on average. People can experience episodic migraine with any of the types of migraine disorders on this list. 13. Chronic Migraine People who experience migraine attacks at least 15 days per month have what is called chronic migraine. The intensity of the attacks can vary, and people with chronic migraine are susceptible to rebound headaches because they often need to take medications more frequently than most other people. 14. Hemiplegic Migraine Hemiplegic migraine is a migraine disorder that causes weakness and tingling or loss of sensation on one side of the body. People who deal with hemiplegic migraine may confuse their symptoms for signs of a stroke, especially when the symptoms occur without the presence of head pain. 15. Acephalgic Migraine Acephalgic, or silent migraine, is a migraine disorder in which people experience all of the common migraine symptoms without head pain. People who live with silent migraine deal with visual disturbances, nausea, fatigue, and more. 16. Ocular (or Retinal) Migraine Retinal migraine is a migraine disorder in which the aura phase causes a temporary loss of vision in one eye. It is most common in women, and can be a sign of other underlying health conditions. In most cases, though, the vision loss reverses itself. 17. Vestibular Migraine Vestibular migraine is a migraine disorder that causes vertigo, or repeated dizziness, in people who experience migraine symptoms. People with this type of migraine may also deal with other common migraine symptoms, such as sensitivity to light, sound, and smell, nausea, and more. People who deal with vestibular migraine may or may not experience headache pain. 18. Status migrainosus Status migrainosus is a term used to explain migraine attacks that may not respond to any traditional treatment and last more than 72 hours. Unfortunately, this condition often lands people in the hospital, and it can be hard to diagnose. 19. Ophthalmoplegic Migraine Ophthalmoplegic migraine is a type of migraine that impacts the eyes. People with this rare type of migraine experience headache pain around their eyeballs. They may also experience eye weakness, double vision, and an inability to move eye muscles during an attack. 20. Abdominal Migraine People who live with abdominal migraine experience extreme pain like any other migraineur. However, the pain is concentrated in the abdomen instead of the head. It’s far more common in children than adults. Rare Types of Headache and Migraine 21. Ice Pick Headaches As the name implies, ice pick headaches are short-lasting, intense headaches that create sharp pain that feels like you are being stabbed with an ice pick. They usually occur in the orbit, temple, and parietal area of your head. 22. Cervicogenic Headache Cervicogenic headaches are ones caused by pain in your neck that feels like it is in the back of your head. These headaches can come as the result of a neck injury or from a lesion on the spine. 23. SUNCT Headache Short-Lasting Unilateral Neuralgiform Headache with Conjunctival Injection and Tearing (SUNCT) is a rare headache disorder that only occurs in approximately 6 out of every 100,000 individuals. SUNCT headaches typically occur as bursts of piercing, throbbing, or burning pain and typically happen around the eye or temple on one side of the person’s head. Each episode can last for up to four minutes, and people usually experience multiple attacks per hour. 24. Hemicrania Continua Hemicrania continua is a rare type of primary headache that often occurs as continuous daily pain. Although it can fluctuate in severity, it usually occurs on one side of the head or face, and causes additional symptoms like red, watery eyes, blocked nasal passages, and/or a runny nose. 25. Paroxysmal Hemicrania Paroxysmal hemicrania is a rare form of headache that typically occurs in adults. People who live with paroxysmal hemicrania report severe claw-like, throbbing pain that lasts for up to 30 minutes at a time and can occur as often as 40 times per day. 26. Thunderclap Headache Thunderclap headaches are severe, short-lasting headaches that feel like a clap of thunder striking one’s head. These headaches are rare, and often a sign of bleeding in and around the brain or other potentially life-threatening issues. As this list demonstrates, there are many different types of headaches and migraines, and they are anything but all the same. No matter what type of headache or migraine disorder you live with though, know that your symptoms and your pain are real, but they don’t make you any less worthy as a person.

    Rosario N
    Rosario N @rosarion

    Exploring the Link Between Long-Haul COVID and Suicide

    One day, I messaged greetings to a friend who also has long-haul COVID, but I didn’t hear back from him immediately. It wasn’t until the next day when I recognized the familiar, friendly Facebook new message ping that I found in my inbox his messages, where he recounted to me his ordeal. He described how he experienced a TIA, or transient ischemic attack — also known as a mini stroke. His brother and step brother had to give him CPR while his family waited for an ambulance to arrive. But he didn’t recollect any of it. “I just don’t know how much more I can take,” he cried. His confession called me back to June 2021, when I was in my own fight against long-haul COVID symptoms, including struggling to breathe with San Antonio’s high molds, to which I had become severely allergic. Day after day, I battled with the environmental allergens and there was no reprieve in sight. I was doing everything I could to fend off any exposure to mold spores and my situation became so dire that I even covered my windows with cloth. My luxury apartment community was obsessed with landscaping the lush courtyard my balcony overlooked, and the maintenance team was diligent about cleaning the resort-inspired pool and removing debris and leaves daily, which, for me, meant more pollen particles floating nearby and worsening allergies. I often needed to retreat to the bathroom until the cleanup was complete. I had uttered the same words to my mother, I recalled, explaining to her that I was not being pessimistic about my illness; I was s-u-f-f-e-r-i-n-g. I am a resilient person and have already overcome multiple hardships in life, but this illness — this long-haul COVID monster — I simply could not defeat. It was ruthless and I was in agony, and no matter how hard I tried, I was losing the battle. Two days later, while still in the hospital for the mini stroke, my friend experienced for the first time a grand mal seizure, which he explained to me looks much like what you think of when you hear the word seizure: body shaking due to violent muscle contractions and a loss of consciousness. Grand mal seizures can be life threatening and, in fact, his body went into early sepsis, a state in which the body releases chemicals into the bloodstream to fight infection. I thought about how he said he’d already felt like giving up after the mini-stroke. He had survived the TIA and seizure, but these new developments would hinder any recovery progress. I also thought about the millions of other long-haulers across the world who may feel or have felt like giving up the fight, too. Some even had taken action. Long-Haul COVID and Suicidality In March 2021, Kent Taylor, the CEO of Texas Roadhouse, a major restaurant chain, died by suicide after struggling with long-haul COVID symptoms, including tinnitus. Another high-profile long-haul COVID death followed in June 2021 when the news media reported the suicide of Heidi Ferrer, a writer known for her work with the late 1990s TV show “Dawson’s Creek.” Her husband, Nick Guthe, shared that Ferrer had been struggling with long-haul COVID symptoms for 13 months. Guthe has since advocated for the research and treatment of long-haul COVID. On January 12, The Herald reported that a Scottish doctor and reproductive clinical researcher, Professor Fiona Denison, died by suicide, after battling long-haul COVID for two years. The deaths of Taylor, Ferrer and Denison have prompted discussion about the connection between long-haul COVID and suicide. Is suicidality a risk of long-haul COVID? Researchers are now beginning to study the mental health of patients who have recovered from COVID-19 and those living with long-haul COVID. An expert psychiatrist associated with the James J. Peters Veterans’ Administration Medical Center, Columbia University College of Physicians and Surgeons and Mount Sinai Icahn School of Medicine, estimates those with long-haul COVID are at an increased risk for suicidality due to the brain inflammation damage associated with the virus as well as symptoms from its psychiatric, neurological and physical effects. The American Psychological Society considers suicidality to be “the risk of suicide, usually indicated by suicidal ideation or intent, especially as evident in the presence of a well-elaborated suicidal plan.” In fact, patient-led and academic research published in The Lancet named suicidality as a long-haul COVID symptom that warrants more research, recognizing that it has largely been omitted from discussions. Later when I asked my friend why he contemplated death, he touched upon some of the themes I echoed and witnessed daily among long-haulers in online support groups or on Twitter. Long-haulers are screaming from the tops of our damaged lungs in an effort not only to warn others that long-haul COVID is a risk, but to cry for more research, funding, treatment options, and social support protections and services. “I’m tired of being isolated.” The isolation associated with long-haul COVID comes in all forms. In some cases, those who are living with long COVID may isolate from friends and loved ones because we are too unwell to interact, or conversations — face-to-face or even those over text — may be too taxing. Additionally, we may isolate to protect ourselves from contracting the latest COVID-19 variants, as we do not want to make our situations worse, or even fatal. Even more, others may stay away from us for fear that we are contagious or shy away because they do not want to face their own vulnerability. “I’m tired of flare-ups with no explanation.” The unknown can be maddening and terrifying, and there are many aspects of long-haul COVID that remain inexplicable. “Nothing is more frightening than a fear you cannot name,” wrote Cornelia Funke, young adult fiction author. While patients have named long-haul COVID, the many symptoms and illnesses associated with it are not defined. There is yet to be a map for how to navigate this virus and overcome it. In the meantime, patients are relegated to monitoring and troubleshooting symptoms without an overall understanding of the virus. “I can’t [believe] how the medical community doesn’t give a f***.” The patient experiences of those seeking diagnoses or treatment for long-haul COVID can range from the supportive and validating to the horrific and contested. As patients who are managing through long-term, debilitating illness, we cannot fathom how the medical community has remained disjointed — even broken— while millions of people living with long-haul COVID continue to suffer. We understand that doctors and nurses are humans, too, as The Atlantic writer Ed Yong’s recent article on the mass exodus of healthcare workers in the U.S. reminds us. But add in the motives of governments, insurance companies, the pharmaceutical industry, corporations and schools — and it results in a global healthcare breakdown. Yet hope is dwindling and our patience is expiring. “I’m tired of the [world] not taking this s*** seriously.” While COVID-19 and long-haul COVID continue to be widely politicized in the media and on platforms like Twitter and Facebook, the debates about masking, schooling, and workplace standards continue. It is distressing for long-haulers to sit on the figurative sidelines and watch the debates ensue. Some able-bodied individuals don’t want to wear masks. Others don’t believe COVID-19 is real. Meanwhile, long-haulers are screaming from the tops of our damaged lungs in an effort not only to warn others that long-haul COVID is a risk, but to cry for more research, funding, treatment options, and social support protections and services. HELP US. “I’m tired of no longer being human.” This final protest is probably the most difficult. Personally, I am two years into this illness and as the months roll on, I am coming to understand that transitioning to a life with chronic illness is accompanied by innumerable losses — partners or spouses, friends, employment or school, money, homes, goals, dreams, and hobbies. These losses are on top of physical abilities that have diminished too. It has been the sorrow of my life to say goodbye to important parts of my identity and to enter a realm — possibly for the rest of my life — of subsistence rather than existence. Perhaps it would be more bearable if we knew help was on the way. Alas, we don’t know if it is. Suicidality and Chronic Illness Research and advocacy group Body Politic reminded the public that suicidality and depression are not uncommon in people living with chronic illness, offering an explanation of why this change in the mind occurs. In response to Taylor’s death in 2021, the group published the following statement: “Like many issues long COVID patients face, suicidal ideation and depression are not unique to the experience of having Covid-19. People living with chronic illnesses of all types are twice as likely to experience depression and anxiety than the general population. Chronically ill young people aged 15–30 are three times more likely than their peers to attempt suicide. No matter what stage in life a person becomes chronically ill, the sudden changes to our physical bodies, our social lives, and our imagined futures can be difficult to face.” My friend is back home now, and following up with doctors about his prognosis, while my own doctor has issued me two more diagnoses. The outlook, whether positive or dismal, is one that we grapple with every day. There is no doubt it’s useful to know that some people living with long-haul COVID are more at risk for suicidality for many reasons. Even more, this fact underscores why it is important — no, it is a matter of life or death — that our global communities do not leave long-haul COVID patients isolated and in the darkness, but that we do everything in our power to be a guiding light.—— If you are in the U.S. and are in crisis and having thoughts about harming yourself or another, please call the National Suicide Prevention Lifeline at (800) 273-TALK (8255). The lifeline also offers online chat support, 24 hours a day, seven times a week. If you are located outside the U.S., please share your country’s resources in the comments.

    Community Voices

    I am the Tinnitus!

    <p>I am the <a href="https://themighty.com/topic/tinnitus/?label=Tinnitus" class="tm-embed-link  tm-autolink health-map" data-id="5b23cec200553f33fe99e628" data-name="Tinnitus" title="Tinnitus" target="_blank">Tinnitus</a>!</p>
    2 people are talking about this
    Community Voices

    MS specialist MRI 2nd opinion?

    This is my first post, so my intoduction might be kind of long (apologies!). I'm completely overwhelmed with questions, but I'll try and keep them specific for now and go from there.
    My introduction:
    I'm a 45 year old man. I have not yet been diagnosed with MS (or anything else explaining my condion). I've had unexplained episodes of fatique, muscle weaknes, brain fog, tinnitus/head pressure, and other symptoms over the last 20 or more years. Most were limited to days or weeks. Over the last 8 months or so I've had all those symptoms (more severly) along with many other. Some of these include: worsening of my color blindness (I've had it mildly all my life), loss of coordination, vertigo, "brain zaps" (possibly Lhermitte's sign), 'MS hug' like chest/side/back pain or tightness, muscle and joint pain/stiffness, blured vision, light sensitivity, and others.
    After many years of going along with my primary care doctor's belief that I was "in the honeymoon period of my life" physically, so I should focus on my mental health as the most likely cause of my symptoms (as opposed to pursuing physiological explanations or tests), I finally swicthed to someone else (largely on the recommendation of my long time pyschiatrist who believed I had something systemic going on). My new doc ordered blood work and an antibody test which showed a mildly positive ANA with speckled pattern; but further testing and a rheumatology exam ruled out most things in that realm. At that point he ordered a brain MRI which turned up a very obvious parietal cortical lesion (2/8/22). Since then (after an unbelievable amount of greif and self-advocacy) I've had another MRI (with contrast) and and initial neurology exam (at University of Virginia). My radiology reports were extremely limited, and apparently only focused on the one glaring area (which they thought was 'most likely from a small chronic infarct'). I have done thorough reaserch, and consulted with other physicians, and I'm highly confident that particular lesion looks a lot more like a typical demylinating lesion (involving u-fibers, distinct demarcation, ect.), and also that there are other less obvious lesions and signs pointing in the direction of a demylinating condition (most likely MS).
    My neurology appointment did not go at all as I had imagined. I was dumbfounded when the neurologist told me he didn't believe my condition was "anything in the neurologic realm," and didn't even order any further tests. Presumably this was because the most acute phase of my symptoms was past by that point, so the neuro exam didn't show anything glaring; aside from a lack of right arm swing and my color blindness being severe. He dismissed the lack of arm swing as 'likley favoring it due to shoulder pain' (which I hadn't had for months); the worsening color blindness as 'a common hereditary trait' (presumably disbelieving that it had drastically changed); and any MRI evidence that could possibly point away from the radiology report out of hand (although I overheard him tell his fellow that the cortical lesion was indistinguishable from an MS lesion, and that maybe I'd 'come back in a couple years with more lesions'). He didn't want to pursure looking further into possible causes for the presumed "old stoke" either, saying it wasnt likely they'd find anything. He offered no explanation for why I might of had a stroke, and no reassurances when I expressed concern about my future risk. I had no signifigant risk factors or history to suggest I had a stroke in any case.
    I later learned (online) that he leads a crusade to avoid overdiagnosis of MS at all costs, and is very vocal in his critisism of the 2017 McDonald Criteria, beliving it is too liberal.
    I decided to seek a second opinion (at John Hopkins). The first thing they asked for, after I was referred and sent them my chart and images, was spine MRIs. My original neurologist reluctantly ordered them, but stated he will not appeal if my insurance won't cover them. I have them scheduled for May 1st, and assume I'll probably end up paying out of pocket.
    I'm terrified of being dismissed again, or having my pysical symptoms writen off as 'most likely just pychological' when I do finally get in to see someone at John Hopkins; especially considering the notes in my chart from my previous primary care doctor and neurologist are so biased in that direction.
    So finally to my first question:
    Is there anything I should do to prepare? Specifically, is there a second opinion service for evaluating MRIs specifically for MS anyone might recommend? I sent my second set to Docpanel, but it was before I had done my own extensive research, so I wasn't able to ask the right questions or point out my observations. Also, the radiologist reading it wasn't someone specialized in demylinating conditions. It came back very general, brief, and inconclusive as to possible demyelination; but also with notable inconsistencies from my initial reports.
    Any other advice is more than welcome of course. Thank you to anyone who took the time to read all that!

    6 people are talking about this
    Community Voices

    Depression Stigma

    <p><a href="https://themighty.com/topic/depression/?label=Depression" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7600553f33fe991123" data-name="Depression" title="Depression" target="_blank">Depression</a> Stigma</p>
    11 people are talking about this