Undiagnosed

Hello everyone, it’s been a week and I thought I’d give a little update on how things are going.

I had a busy work week so I didn’t do much of anything not work related until I got off.

Health wise, I don’t know how to put into words how I feel. Wether to be optimistic and cheerful or to let myself be more myself with my emotions.

I’ve been monitoring my blood pressure as I was instructed, still low 90% of the time. Especially in the morning. I’m dizzy all the time as well, especially when standing for prolonged periods and when I’ve just gotten up. My BP cuff reports my heartbeat rate as well which is often in the 50-60’s range despite having times where I’d feel like my heart was racing even without feeling anxious or doing any activity.

My chest feels tight, filled with discomfort and even pain. I’ve had times where I’d be completely relaxed but feel shortness of breath. Persistent and for long periods of time.

Today it felt like the pain in my chest radiated to my inner upper arms.

It feels awful.

I am still working my job, I want to keep working but I’m a little concerned about the safety aspect of my work.

I’m not terribly concerned about it but any advice would be helpful.

#Undiagnosed

Hello, my name is Angel. I’m a young adult woman who has been diagnosed with several conditions but currently I have noticed, and professionals, that my Blood Pressure levels are too low more often than they should be. There is a trend to this I have unintentionally noticed, every time I get up after sitting or laying down my BP dips very low and I will get very lightheaded. I’ve had this experience going back to childhood but never knew about the decrease in BP. I was told about a condition called Orthostatic Hypotension but I’ve never looked into it much myself. I don’t think it’s that serious for me, but some tell me to take it more seriously than I do as when I say I just ignore the lightheadedness, they get concerned. Is there anything Is should be doing differently? I’m not sure what to do.
#MightyTogether #Undiagnosed #OrthostaticHypotension

Hi, my name is lavenderbubbles I'm here looking for more support and connections from people who go through the same as me. I feel very tired, isolated and hopeless sometimes, so I hope this place can alleviate a few of these feelings.

#MightyTogether #AutismSpectrumDisorder #Arrhythmia #Dysautonomia #Asthma #HypermobilitySyndrome #GlossopharyngealNeuralgia #Migraine #ChronicPain #Undiagnosed

Yesterday a friend recommended this course to me - she insists it holistic and new. I will follow this weekend and hopefully its helpful to others as well - still free - www.udemy.com/course/new-science-holistic-wellness-solution-... #Holistic #Pain #Undiagnosed #FunctionalNeurologicalDisorder #AutismSpectrumDisorder #MentalHealth #mighty

Hey I know it’s been a while since I posted. A lot had happened so far and I’m scared and I just need people to talk to who get it.

First thing is first I am no longer on college campus. I went to college for the first couple of days I pushed myself and I ended up having my paralysis and muscle weakness episodes so I couldn’t even attend class. I’ve been at home ever since getting my bachelors with GCU online. We still don’t have an answer for the episodes

Because I couldn’t be in college campus anymore I now go to doctors appointments in New York that my auntie takes me to do we can look for an answer. I’ve seen a nurse practitioner in neurology and I got a MRI to look st the structure of my brain and a EEG to look for seizures both came out normal. I’ve also seen a cardiologist who tested me with a heart monitor which came out normal. I am waiting for an appointment with the neurologist but we keep having set backs. But I am getting somewhere and they have all been lovely and I’m more than greatful for my auntie.

As I’ve been home I’ve also been continuing with therapy online. Apparently when I was getting tested for Autism they also tested for OCD and I score really high. High enough for a potential diagnosis but they never diagnosed me. My therapist thinks I have OCD not only because of my results but because of my mental health struggles I tell her about.

I am currently considering medication for OCD since nothing I’ve been doing has been helping and my therapist thinks it’s the best option. But I’m scared if getting medication for OCD and having a OCD diagnosis will prevent me from getting physical help. My therapist and other doctors I’ve seen lately don’t think my episodes are a mental problem but I’m scared if the doctors in New York might think so.

I know this is a lot and thank you so much for reading this if you did. If you’re able to answer this: do you think I should be worried about getting an OCD diagnosis because if the doctors will dismiss me? If so what should I do? Thank you so much

#OCD #Undiagnosed #MentalHealth #LifeUpdate

I’m undiagnosed, but have elevated liver enzymes. I’ve been dealing with a lot of pain in my upper abdomen that feels like my organs are just so distended, it’s an unbearable sensation that I’ve never felt anything like. It often radiates to my shoulder or back. I also have unexplained weight loss, nausea, loss of appetite and fatigue. I’ve already been through lots of tests for things like viral hepatitis, CMV, mono and nothing has come up. I feel like I can’t do this any longer, all I want is to just feel better.
#ChronicPain #Undiagnosed #AutoimmuneHepatitis