Undiagnosed

Hello everyone, it’s been a week and I thought I’d give a little update on how things are going.

I had a busy work week so I didn’t do much of anything not work related until I got off.

Health wise, I don’t know how to put into words how I feel. Wether to be optimistic and cheerful or to let myself be more myself with my emotions.

I’ve been monitoring my blood pressure as I was instructed, still low 90% of the time. Especially in the morning. I’m dizzy all the time as well, especially when standing for prolonged periods and when I’ve just gotten up. My BP cuff reports my heartbeat rate as well which is often in the 50-60’s range despite having times where I’d feel like my heart was racing even without feeling anxious or doing any activity.

My chest feels tight, filled with discomfort and even pain. I’ve had times where I’d be completely relaxed but feel shortness of breath. Persistent and for long periods of time.

Today it felt like the pain in my chest radiated to my inner upper arms.

It feels awful.

I am still working my job, I want to keep working but I’m a little concerned about the safety aspect of my work.

I’m not terribly concerned about it but any advice would be helpful.

#Undiagnosed

Hello, my name is Angel. I’m a young adult woman who has been diagnosed with several conditions but currently I have noticed, and professionals, that my Blood Pressure levels are too low more often than they should be. There is a trend to this I have unintentionally noticed, every time I get up after sitting or laying down my BP dips very low and I will get very lightheaded. I’ve had this experience going back to childhood but never knew about the decrease in BP. I was told about a condition called Orthostatic Hypotension but I’ve never looked into it much myself. I don’t think it’s that serious for me, but some tell me to take it more seriously than I do as when I say I just ignore the lightheadedness, they get concerned. Is there anything Is should be doing differently? I’m not sure what to do.
#MightyTogether #Undiagnosed #OrthostaticHypotension

Hi, my name is lavenderbubbles I'm here looking for more support and connections from people who go through the same as me. I feel very tired, isolated and hopeless sometimes, so I hope this place can alleviate a few of these feelings.

#MightyTogether #AutismSpectrumDisorder #Arrhythmia #Dysautonomia #Asthma #HypermobilitySyndrome #GlossopharyngealNeuralgia #Migraine #ChronicPain #Undiagnosed

Yesterday a friend recommended this course to me - she insists it holistic and new. I will follow this weekend and hopefully its helpful to others as well - still free - www.udemy.com/course/new-science-holistic-wellness-solution-... #Holistic #Pain #Undiagnosed #FunctionalNeurologicalDisorder #AutismSpectrumDisorder #MentalHealth #mighty

Hey I know it’s been a while since I posted. A lot had happened so far and I’m scared and I just need people to talk to who get it.

First thing is first I am no longer on college campus. I went to college for the first couple of days I pushed myself and I ended up having my paralysis and muscle weakness episodes so I couldn’t even attend class. I’ve been at home ever since getting my bachelors with GCU online. We still don’t have an answer for the episodes

Because I couldn’t be in college campus anymore I now go to doctors appointments in New York that my auntie takes me to do we can look for an answer. I’ve seen a nurse practitioner in neurology and I got a MRI to look st the structure of my brain and a EEG to look for seizures both came out normal. I’ve also seen a cardiologist who tested me with a heart monitor which came out normal. I am waiting for an appointment with the neurologist but we keep having set backs. But I am getting somewhere and they have all been lovely and I’m more than greatful for my auntie.

As I’ve been home I’ve also been continuing with therapy online. Apparently when I was getting tested for Autism they also tested for OCD and I score really high. High enough for a potential diagnosis but they never diagnosed me. My therapist thinks I have OCD not only because of my results but because of my mental health struggles I tell her about.

I am currently considering medication for OCD since nothing I’ve been doing has been helping and my therapist thinks it’s the best option. But I’m scared if getting medication for OCD and having a OCD diagnosis will prevent me from getting physical help. My therapist and other doctors I’ve seen lately don’t think my episodes are a mental problem but I’m scared if the doctors in New York might think so.

I know this is a lot and thank you so much for reading this if you did. If you’re able to answer this: do you think I should be worried about getting an OCD diagnosis because if the doctors will dismiss me? If so what should I do? Thank you so much

#OCD #Undiagnosed #MentalHealth #LifeUpdate

I’m undiagnosed, but have elevated liver enzymes. I’ve been dealing with a lot of pain in my upper abdomen that feels like my organs are just so distended, it’s an unbearable sensation that I’ve never felt anything like. It often radiates to my shoulder or back. I also have unexplained weight loss, nausea, loss of appetite and fatigue. I’ve already been through lots of tests for things like viral hepatitis, CMV, mono and nothing has come up. I feel like I can’t do this any longer, all I want is to just feel better.
#ChronicPain #Undiagnosed #AutoimmuneHepatitis

Hi, my name is fridgewraith. I'm undiagnosed, mostly, and still looking for answers, and I found this app tonight.

#MightyTogether #Depression #OCD #Gastroparesis #Undiagnosed #Anxiety

2020... I had an IUD taken out thinking my severe sharp cramps were because of the IUD. Doctor put me on estrogen birth control and my menstrual cycle took a turn for the worst. I had a plague of symptoms that all were so severe. From severe lower back pain(I could not sleep on my back, had to sleep on my side, I couldn't just roll over, it hurt to even sit on the toilet. When I drove I had to sit on a circle pillows to keep my tailbome off the seat) I also had heavy peirods(clots, severe cramps then went into my inner thighs and would hurt my already painful back, light spotting carried on after peirods and in between periods, it was as if I only had a week off of bleeding a month) I had the worse bum cramps, peeing hurt all the time(burning, having to urinate often) Sometimes if I didn't pee I'd get sharp pains. Id have either constipation, diarrhea sometimes, depressive episodes. I couldn't wear a tampon(I ALWAYS wore them with no problem) but suddenly they didn't sit up there anymore, they'd get lodged sideways and fall out. I was forced to wear large pads. I couldn't physically go anywhere. It was a big deal to leave the house. Anyways fast forward. 2021-2022 I found a lady doctor who put me on Visanne, said if it worked it is likely Endometriosis. It worked. 98% symptoms gone. But I began getting severe left sided pain(and lower abdomen pain) She told me I needed the diagnostic surgery. Met the gyno. Specialist (who doubted it was Endo, thinks its IBS which I'm not against but that doesn't answer my menstrual issues) she put me on Myfembree. Which worked like gold! Fast forward again(after arguing with a gynecologist, I thought, "I just want to make sure it is endo and if we can get ahead of it") I had my surgery last week, they didn't find anything. She said it was just painful periods. (Btw, she BARELY read any of my history the lady doctor wrote down for me over the years, this specialist didn't read barely anything.) She isn't looking into my issues anymore. She said we will do a six week follow up on your surgery incisions and that's it. It sits so wrong with me. The medication is working, but I discussed with her before the surgery that the last med stopped working and I'm concerned about that happening again and she agreed. But now it's not a concern? I'll probably go visit the woman doctor again but I feel like I'm being ridiculous now. I feel like I'm overboard or I shouldn't be worried. Is there not other conditions this could be? Because I looked up the confusing word(painful periods) and that does not tick off my symptoms. Anyways, that's my very shortened story. Sorry about that.