Undiagnosed

Well there you go, 2nd time I could ever come out anywhere. Oof. Yow. That just feels worse the more I think about it. It's not like one living soul ever responded positively to this fact. Can I get an "I" on the group label? Do I even want representation more than to be rid of some bugged out chromosome? Why would I even want the American medical establishment to know me this well? Big nope to doctors on this one too. I wouldn't mind a physical from someone who's not shrugging off my pathophysiology but who could that be? Doctors & TSA grabbing my junk is not fun, so why should I be fussed about the consequences of avoiding reminders of molestation?

By the way I'd be happy to help with some IT security for The Mighty just for my own peace of mind. Being ostracised this much sure taught me a lot of ethical hacking wisdom. The overwhelming feeling is that I'm more acceped among machinery. If mighty staffers want help with bots & trolls & AI & IT I just want to pay something forward rather than ruminate on my wacky self.

It's a good thing to lose sleep over when the only person I ever told this to IRL stands to benefit from more perspective someday though. One person out of billions is the only reason I'm even alive to say this.

Somehow despite the nagging presumption I can't really have any relationships, the fact that I'm wrong about that probably must be the only reason I survived as long as I have. That's something I need to be direct about with someone who helped me. I think #Autism leads to disastrous misconceptions about emotions & gender roles as a result. As a guy, in the majority of that group, I feel it's more frowned upon to talk about this.

I have undiagnosed ADHD, and living with it feels like I have nowhere to go. Many times I have found myself mushed between not trying to self-diagnose myself, but also knowing that I don't fit in the norms like others do. I just don't have any answers to provide when people ask about what I have or why my certain habits or mannerisms are a bit different; they often label them as me being "careless", "reckless", or just simply "slow" or "picky" I have so many names given to me, yet each one of them feels very nameless. It's like I just can't fit in anywhere.

#ADHD #Undiagnosed

Hi, my name is AdorableHawksbill50. I'm curious about

#MightyTogether #PolycysticOvarySyndrome #ChronicIllness #MentalHealth #Undiagnosed

Been struggling with different symptoms for 3 years now. First diagnosed with chronic migraine, then ebv, then pcos. Lately things hadn't been adding up. We're suspecting pots, perhaps lupus, or other autoimmune. It's been kinda tough... the anxiety is the worst:(

#PolycysticOvarySyndrome #POTS #AutonomicDysfunction #ChronicEpsteinBarrVirus #Migraine #ChronicVestibularMigraine #Undiagnosed #Lupus #ChronicFatigue

What's hardest for me as an undiagnosed patient is the feeling that I have no place. I'm too healthy for the sick but too sick for the healthy. I'm expected to do everything everyone does, keep functioning, in a body that is just broken. I don't have a valid medical ticket to validate and excuse myself

#Undiagnosed #POTS #AutonomicDysfunction #ChronicFatigue #Migraine #ChronicVestibularMigraine

Been trying to prevent the er with communicating with my docs and being assertive. Even when admitted into the hospital I was being assertive with them. With the lack of availability of staff and budget cuts it has been hard trying to get home health covered by my insurance. I can’t afford private pay. I have been disabled for a long time. I only get Medicaid and SSI because my disabilities happened at age 23 not before age 22 and I haven’t worked enough prior to qualify. I was working prior to Covid. I got a lot worse since then but I’m still trying to finish my bachelors degree so I can work again. I need help at home with everything right now. When I was getting discharged and finally able to get dressed I hurt myself in the bathroom. I still need help with everything and am just almost as bad as I was coming into the er.
I reached out to my brothers saying dad and I are very stressed and need help. He can’t keep up with everything around the house ontop of taking care of me 24:7 with everything. It’s very overwhelming and fustrating handling this all by ourselves.
They told me I should went to rehab facility and demanded it and I need to move out. I told them I have been trying to get help before it got this bad. I get passed around. Even my docs and the social workers couldn’t find anywhere to go or have home health come in. Their is no other options.
They told me to hang in there and will call me tomorrow when have a chance. My anxiety is through the roof. No one has been listening that things are very bad bc I can’t get help. I need help right now. I don’t want to keep going back to the er. I’m doing everything I can to not crack. I have been pro active assertive and persistent. Things haven’t gotten better. They’ve gotten worse. I’m trying not to sink. I just keep treading water not moving forward. I’m exhausted physically mentally and emotionally. Nothing is working. I’m not a major priority when I should be.
Even in the er I had true serious emergency and didn’t get attended to fast enough when the er wasn’t even super busy nor had life or death situations that every second counts comes in. What not being able to move nor being able to not have bladder and bowel control with that much pain doesn’t count as an emergency when I was able to walk and even pee that morning? Having ptsd flashbacks with this all doesn’t help either. I’ve literally been screaming for help demanding it and not getting it. Our healthcare system is getting worse instead of better.
Government services for people who need them are getting taken away or changing their qualifications for people not to receive it who desperately need it. I’m scared for what America is turning into and will become in my future. Will I even be able to survive down the road? I should have accessible healthcare that’s affordable for all my chronic conditions but I don’t. Things literally changed overnight for me 15 years ago and slowly got worse. Before then I was a very healthy 23 year old. I’m now 38 years old needing the most care I have ever needed in my life and not getting it. I have lost friends over the years due to my health. Don’t want to lose my family as well.
I don’t see any light at the end of this tunnel anymore. I don’t want to be in a nursing home for the rest of my life with not getting proper care there due to lack of staff. It happens every day bc not enough help and staff don’t want to do something that’s not their job. What happened to people being decent kind caring and hardworking wanting to help others? #CheckInWithMe #MentalHealth #IfYouFeelHopeless #Anxiety #Undiagnosed #ChronicIllness #ChronicPain #Depression #FamilyAndFriends #Trauma