Coronavirus Disease 2019 (COVID-19)

Crimson Red by Melanie R.

Crimson red-
against the snow.
My heartache bleeds, and nearly froze!
I turn to you
and say a prayer,
release me Lord,
from pain and spare
my heart from this deep suffering.
The ache.
The hurt.
My mind wandering.

Crimson red.
Down and blue.
White of snow.
Thoughts of you.

Buffalo blizzard.
A frozen cry.
Of time felt lost, and days gone by.
Your memory will never fade.
Swirls like wind, still falls like rain.
Our hearts hold onto memories,
Days up,
then down…like swaying trees.
Crimson red.
Hearts of truth.
Cold of snow.
Thoughts of you.

Red cardinal singing
love’s forever song of faith.
Holy water springing;
by pearl of heaven’s gate.
A timely whispered love song,
her music sung deep blue.
Sets free-
releases sadness,
as spirit’s called to you.
Consecrated!
Soul guided!
As He has heard our cries!

He knows of all the suffering,
every groaning,
every sigh.

Crimson red-
the blood was poured;
robes washed white-Calvary brought forth.

A poem/song about the untimely loss of my mother in the winter of 2021.🌹

#Grief #COVID19 #MitochondrialDisease #AutoimmuneImmunodeficiency #Dysautonomia #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #PrimaryImmunodeficiency

I miss my church family.
I really miss them.
Last time I felt like this was around covid time. Then I managed to meet them.
I stopped going because I got offended by something someone said.
Im currently on the psych ward.
Ive had four days in a row of having 4 good days. Then today. A bit blaaaahhhh lazy. And bored. I need to keep staying strong. Make strong decisions. While being kind to myself. Some of the staff are more caring than others.
I feel so tired and lethargic from the meds. Also the patients are noisey.
One day at a time. Hope all mighties understand. These are the things I need right talk to the staff about more.
I seemed to close up when I am approached by the psychiatric nurse.
I need to just keep being honest and open. Not to be overwhelmed by staff who are there to help and support me.
So I gt better and know and tell them that I need. Im really struggling with just telling them how things are.
That Im scared of eviction. Due to rent arrears. The landlord issue Is very heavy now. Whenever I call to pay the payment doesn't go through.
I feel so lonely and worried.
#Depression #Anxiety

This Ask an MS Expert segment with Dr. Lisa Doggett looks at the different shots (flu, COVID, RSV, pneumonia, etc.) and autoimmune concerns. Doggett herself is living with multiple sclerosis.

#Vaccinations #MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune

My immunologist is taking me off of IVIG for 2 months to do some further testing , and during this time I have caught EVERYTHING ( can viruses and bacteria be the one thing we done share during the holidays lol?). I currently have a throat that’s SO red and swollen I can barley swallow water . ( thank goodness covid and strep were negative ). What are your favorite things to eat / drink when you have a sore throat ? #CommonVariableImmuneDeficiency