ARFID

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When Picky Eating Is More Than Picky Eating: Understanding ARFID

Personally, I’ve always considered myself a picky eater. I remember refusing certain foods that found their way onto my plate night after night. Things like broccoli, pork chops, or fatty bacon.

I think when people think about picky eating, they imagine a child who refuses vegetables or only wants chicken nuggets.

For me, I had my safe foods. My comfort foods. Dishes that I knew exactly what to expect from.

I learned early on that I was sensitive to textures, smells, and tastes. But as I’ve grown older, my taste buds have expanded and I’m more open to trying new foods. Even with that, I still go back to the meals that make me feel comforted and safe.

I knew that autistic people can sometimes experience food aversions and sensory differences around eating, but I didn’t know there was a condition called ARFID (Avoidant/Restrictive Food Intake Disorder).

I’ve personally never experienced this condition, but my godson has. And he has taught me that ARFID is so much more than what it sounds like.

I’m still learning about ARFID. I asked his mother, my best friend, the other day what it really looks like for him. She lives in Michigan, so I only get to visit about twice a year, but when I do go out there, I try to stay as long as possible to spend time with them.

I’ve noticed his distaste for most foods. Even ones that most kids love.

He won’t touch anything with cheese (mac and cheese, pizza, grilled cheese)—all out the window. He doesn’t like sandwiches unless they’re peanut butter. His favorite safe comfort food is Chicken McNuggets. He can go to town on those. Also, give him some French fries and he’s a happy camper.

His mom told me that any type of chicken tender she gives him has to be similar in size, shape, texture, and flavor. Jokingly, she told me she gave him those dinosaur nuggets once, and he refused them because they looked different.

One memory that really sticks with me happened when we took a little day trip to Frankenmuth, Michigan. It’s such a cute little German town, and they have the largest Christmas store I’ve ever seen. The best part is that it’s open all year round.

After walking around for a while, the three of us—my godson, my best friend, and I—decided to go out to eat. We went to one of the local eateries, a place known for their fried chicken.

We sat down in a nice booth and ordered our meals. Naturally, my friend ordered chicken tenders for her son.

When the food arrived, he took one bite and spit it out.

It wasn’t what he was used to.

The chicken looked different, tasted different, and had a different texture. He also could’ve been extremely overwhelmed by the restaurant itself. There were different smells, sounds, and a lot happening around him.

So instead of focusing on the fact that he wasn’t eating, I just started playing Hangman with him.

I remember feeling bad that he didn’t eat, but I also understood why.

Before I knew what ARFID was, I probably would’ve assumed he would eventually “grow out of it.” I didn’t understand that eating could genuinely feel overwhelming.

ARFID is an eating disorder where a person eats a very limited range or amount of food. It can be connected to sensory sensitivities, fear of negative consequences like choking, vomiting, or getting sick after eating, or simply having little interest in food.

It isn’t stubbornness. Certain textures, smells, tastes, or even the thought of trying something unfamiliar can cause real distress.

As I’ve learned more about autism and sensory differences, I’ve come to understand how closely food can be tied to feeling safe.

For my godson, having familiar foods is about predictability. It’s knowing what to expect.

And when so much of the world can already feel overwhelming, that predictability matters.

Watching him has changed the way I think about food.

As a kid, I probably would’ve been right there with him. I was drawn to foods that made me feel safe: mashed potatoes, pasta, cheeseburgers. But as an adult, I’ve noticed myself asking, “Why won’t he just try it?”

Now I know the better question is, “What would help him feel safe?”

As he’s getting older, his mom is trying to give him little tastes of something new. Of course, she tells him it’s new because she told me you never want to trick them into eating anything.

Even though he’s more than likely to spit it out, he’s willing to try.

He actually discovered he likes flan. A food I’m not particularly fond of because of its texture, but it made me really happy that he found something new that he enjoys.

I won’t lie, it sometimes breaks my heart to see him eat the same thing every day, always having to be the same brand name. But I understand so much more now, and I’m just happy he has foods that make him feel comfortable.

I’ve learned that you can’t force someone with ARFID to eat something or pressure them into trying new foods. You have to respect their safe foods and celebrate those small steps.

My godson has taught me that food isn’t just about what’s on the plate. Sometimes it’s about comfort. Sometimes it’s about safety. And sometimes it’s about knowing that someone understands you.

I may never fully understand what eating feels like for him, but I can listen, learn, and meet him where he is.

And honestly, if Chicken McNuggets are what make him happy right now, then I hope he enjoys every single one.

#MentalHealth #ARFID #Neurodiversity #Autism #MightyTogether

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Hi!! I'm new here!

Hi!! My name's Atlas! I'm here because I have Autism, ADHD, Anxiety/Social Anxiety, Depression, Pica, and ARFID!! And I'm looking into getting some diagnoses. I hope you all have a nice day, night, afternoon, or evening! 💜

#Autism #ADHD #Anxiety #SocialAnxiety #Depression #Pica #ARFID #EatingDisorders

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gastroparesis diagnosis - finally

Hi y’all, my name is Sarah. I’ve been a part of the Mighty for mental health stuff for a few years. But for the past year or two, my body has been getting progressively more and more hard to exist in. I get full after a bite of food and I feel sick all the time; I can barely work anymore. I’ve been seeking medical care and diagnosis for years, and it’s been a long journey of gaslighting and condescension. All my tests came back normal, so I was told there was nothing wrong. I was told this was just a relapse of my old eating disorder, even though I wasn’t having any eating disorder thoughts. I finally got a positive result: gastroparesis. I’m feeling so conflicted honestly. So relieved to know why I feel so horrible. But scared because this doesn’t have a cure and I might never feel better. But mostly just angry, at all those doctors and all the people who felt like I was choosing to not eat on purpose, even though I told them that wasn’t what was happening. I’m tired of being told I’m not trying hard enough when this has nothing to do with trying. I’m just so discouraged and depressed and ill and I just wanna feel ok in my body. Anyway, thanks for reading the whole rant if you made it this far :) I would appreciate any support y’all can spare. #Gastroparesis #ARFID #EatingDisorders #ChronicIllness

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Doctors just won’t listen #AnorexiaNervosa #EatingDisorders #ARFID

Hi y’all. I’ve been really struggling with my eating disorders. I’m in the hospital right now because my body is totally shutting down. I’m so weak and dizzy, I can barely walk and for awhile I couldn’t really talk. But. My labs are good. My vitals are stable. So I can’t get the help I need. Something is wrong, but my only option is php or residential, if they even let me in there. I need a lot of help. I’m not ok. But because my body is “medically stable”, no one can or will do anything. This has been my life for years and I’m so tired of it. I just want help.

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I’m worried I’m dying

Hi y’all. I’ve struggled with anorexia for years, but in the past few months my eating disorder has taken a turn that is scarier to me. I’ve developed ARFID, which essentially means that my body rejects most foods and I have a hard time getting in enough nutrition. This past week, my body has shut down. I’m so dizzy and weak and tired and I can barely move. I haven’t been able to go to work. My doctor says I might need higher level of care. I’ve never felt this way and I feel like my body is dying. I’m trying my very best to get in enough food, but I need help. I’m scared. I’m not really looking for advice, just support and feeling seen. I don’t really know anyone with ARFID and I feel so alone. #ARFID #ED #AnorexiaNervosa

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I don’t know how to fix this #ARFID #AnorexiaNervosa

I have struggled with anorexia for about 4 years, but recently my ED has transformed into something else. And I don’t know how to fight it. My ED is looking a lot more like ARFID right now. There’s a block in my brain that won’t let me eat. I’m really scared and I feel like my team doesn’t know what to do with me. I’m not necessarily looking for solutions, I guess I just wanna feel less alone. Anyone else out there who knows what this feels like? #ARFID #AnorexiaNervosa

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Any adults with #ARFID or similar?

Long time suspected I have an #EatingDisorder but when I went to my psychologist with the lengthy list of reasons why, the list of behaviours and beliefs and I was really open, I was told flat out that as I ‘don’t count calories’ and don’t weigh myself consistently, I don’t have an #ED and that was it.

Let’s be clear. I do not want another diagnosis. I have plenty to get along with.

I want help to understand myself and to help myself get better and live a healthier and happier life.

The bizarre thing, is that I posted an anonymous ‘asking for a friend’ post in a Facebook support group, and everyone responded with ‘yes, your friend needs help and they definitely have an illness and need to seek support immediately’ but then when I revealed to a few friends that it was me and it was about me, they accused me of ‘wanting to have an ED’. Which as you can imagine is absolute rubbish.

Anyway. Anyone been in a similar situation? Any suggestions? How did you manage it? Have you found a way to manage it?

Thank you.

#EatingDisorders #adultswitheatingdisorders #eatingdisordersupport

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Anyone diagnosed with #ARFID as an adult?

I’m not sure if this is the right group, so sorry if it’s not. I want to first make it clear, I do not *actually* want a ‘diagnosis’, I already have several mental illnesses I don’t need another one! What I am trying to find is support and understanding, and how I can manage my life better. I have suspected for a long time that I have an eating disorder (not just ‘disordered eating’) but have not been able to find a way to understand it and to get support. I did once approach my psychologist about it and I had made a list of all these things I do and behaviours and reasons why I believe I have an eating disorder. But, because I don’t count calories, I was told I don’t have an eating disorder. And that was it. I felt, completely let down. And I know a lot of people here talk about how to handle their children with #ARFID or other issues, but I want to find anyone who has had to deal with this on their own as an adult.
Please any help is appreciated.

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