cervical spondylosis

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    Undiagnosed neuropathic pain.

    I turned 26 this year and have been suffering from chronic pain since I was around 19

    Lots and back and forth with multiple specialists and doctors appointments has eventually lead me to a diagnosis for my hip pain - I have hip dysplasia that has somehow gone un-diagnosed since birth.. I have been told I need to have PAO surgery to correct this.

    However, alongside this hip pain I have been suffering from many neurological symptoms which seems to have been swept under the rug since my DHD diagnosis. I am still chronically ill underneath my hip pain and no one seems to be doing anything about it.

    My nuerological symptoms include the following:
    - Sickness/nausea
    - Dizziness
    - Hyperosmia
    - Neuropathic pain in my legs, arms, shoulders
    - Complete numbness/change of sensation in my shoulder blades and between T7-T12
    - Numbness that radiates down my left leg
    - Muscle spasms/ spacsticity in legs
    - Bladder issues
    - Chronic fatigue
    - Balance issues
    - Cognitive issues such as thinking and concentrating
    - Occassional blurred vision/ vision changes
    - Migranes

    I have been seen by and dismissed by numberous doctors and consultants, no one can seem to figure out what is wrong with me. Some of them have actually accused me of making my symptoms up.

    I have seen 2x Rheumatologists that investigated Arthrtitis and Lupus, both concluded that there was nothing wrong with me at all whatsoever.. I have a positive ANA and Anti-dsDNA but still no diagnosis. Discharged by both of them with no further action.

    I am currently under the care of an Orthopaedic Surgeon (for my hip) who seems to think my symptoms point toward Fibromyalgia but obviously this would be diagnosed by a rheumatologist and I have already been discharged by two.

    I am currently on a waiting list to see a neurologist. I have been on this waiting list since May and I am lead to believe I will be waiting quite a few months yet.

    I feel incredibly alone in my journey. Everyone I know who is my age have no idea what it is like to deal with chronic pain, let alone the burden of an undiagnosed illness. Every time I attempt to talk to anyone about my ailments, people are dismissive, don’t understand or are simply uninterested.

    Can anyone offer any advice ? I feel hopeless. I have no support. 😢

    #ChronicPain #DevelopmentalDysplasiaOfTheHip #DegenerativeDiscDisease #Fibromyalgia #MultipleSclerosis #MyalgicEncephalomyelitis #ChronicIllness #Migraine #Lupus #Arthritis #CervicalSpondylosis #AnkylosingSpondylitis #Neuropathy #PeripheralNeuropathy #AutoimmuneDisease #BackPain #ComplexRegionalPainSyndrome #Undiagnosed #RheumatoidArthritis #sjogrens

    Post

    Supplements

    I’m trying to figure out how to know what supplements to take and at what dosage. How do y’all figure that out? I just don’t want to put in my body what I don’t need…

    #Arthritis #Osteoarthritis #CervicalSpondylosis #supplements #naturalmedicine #ChronicPain #chronicheache #PainManagement

    Post

    How do you cope with your diagnosis

    So, I’ve just been struggling lately with the realization that I cannot get rid of my arthritis. I’ve had a headache because of it for 8 months. I’m afraid I’ll never make the pain break. Even if I do, I’m afraid it’ll come back.

    How do you cope with knowing it’s a part of you, like, forever?

    I haven’t had such trouble coping with something for so long. I’m usually so well put-together, but this has started to wear me down.

    #Arthritis #CervicalSpondylosis #ChronicPain

    Post

    I’m tired

    Most days I have a positive outlook on my situation. I’ve had an unremitting headache since early October. 8 months of constant pain is…exhausting.

    I was scared for a while, but it went away.

    I recently got diagnosed with Cervical Spondylosis.

    The fear is back.

    I’m 21. There’s so much pain in my head and neck. I’ve been reading the treatments for my condition, and it’s what the doctor’s have been doing this whole 8 months.

    Nothing has worked, and this diagnosis isn’t going to change the trajectory at all.

    I know there’s not a cure for arthritis. Which that concept has crushed me, especially tonight.

    I don’t know what to do. I really don’t.

    #ChronicPain #Arthritis #CervicalSpondylosis #chronicheadache

    Post

    Just got diagnosed.

    I got an MRI and was told I have a minor case of Cervical Spondylosis. I’ve had a chronic headache for 8 months.

    Any ideas of how to work with this diagnosis? I’m tired of pain…
    #CervicalSpondylosis

    Post
    See full photo

    Anyone suffering from Neck Pain?? #CervicalSpondylosis

    #ChronicPain Anyone? Surgery? #SpinalFusion

    Post

    Endless run without any diagnosis #Fibromyaliga #RheumatoidArthritis #neckpain #CervicalSpondylosis #shoulderpain #ChronicFatigue #ButYouDontLookSick

    I am diagnosed with seronegative rheumatoid arthritis (poly arthritis, undifferentiated arthritis) and fibromyalgia. Severe pain in muscles and joints. Every square inch hurts. What's worse for the past few months is the neck pain. Along with severe neck pain, I have pain radiating from neck to my right shoulder, upper arm, and lower arm. I feel like I've almost lost the grip in my right hand when pain increases. And pain increases with any minimal activity using the right hand. My doctor asked for an MRI of cervical spine. To my bad luck the report says everything is normal. But the pain in the neck and right shoulder is so bad, I can't really put in words. When there is pain, it's always followed by low grade fever. Making me feel so flu like.
    What could be causing such severe pain, especially when the MRI says everything is normal.
    I'm so sick of being sick.

    Post

    Cervical epidural injections


    Last week I had my first cervical epidural injection and it helped for the first several hours after. However it caused a severe pain flare. I'm supposed to get another injection next week, but I really don't need to have another flare. I'm wondering if it will work the second time or if I should just call it and not get another.

    #CervicalSpondylosis #POTS #bulgingdisc #Hypermobility

    Question

    Has anyone tried the Y strap at the chiropractor?

    I'm desperately looking for an alternative to surgery. It's dangerous, My physical appearance will be altered, The doctor said There's a possibility I could eat out of a tube for a few months, and I won'won't that much less pain anyway. He told to me to really take my time thinking about this and explore all other options. I know about massage and acupuncture. If my Insurance would only authorize them, I could afford them. Right now, no. Has anyone ever heard of the Y strap? It looks really dangerous, but if you get a good doctor It can help a lot of cervical and spine issues from what I hear.
    You lay down on a table, The doctor puts a black strap around your chin and neck, then pulls hard and fast. They massage with a special mach, and does a few other straightening adjustment. It sounds scary and looks scary. That's why I'm asking. Than you!
    #cervical Kyphosis #cervical #neck #CervicalSpondylosis #DegenerativeDiscDisease #Chiropractor

    Post

    sick of hearing it

    Will NOT be getting better EVER. Just sucks to hear every god damn day from every god damn person who cares. I get it you care, but thats toxic positivity. No more please. #Toxicpositivity #EhlersDanlosSyndrome #ChronicIllness #InvisibleIllness #Osteoarthritis #Hypermobility #POTS #hyperPOTS #migrains #GERD #Cervical Kyphosis #CervicalSpondylosis