Autoimmune Urticaria

My depression spikes when I experience chronic illness(es) flare ups.

I’ve been experiencing a chronic illness(es) flare up for 6 weeks straight.

I’m now at the irritability phase and getting teary eyed during sad movie scenes.

I Just Need to Vent ATM

•I Often Feel People with Multiple Chronic Illnesses Have No Place or Voice in the Chronic Illness Community.

•Words Matter the Constant Use of Chronic Illness vs Chronic Illnesses Really Upsets me on Days that I Struggle.

•I’m Freaking Exhausted with Having Multiple Chronic Illnesses. I Feel like a Single Parent with Quintuplets.

•I Get one Chronic Illness Back to Baseline However the Others Get Triggered and I’m Dealing with More Flare Ups.

•The Constant Flare Ups Really Trigger My Depression.

•I’m Tired of being in Pain.

•I’m Tired of Missing Training/Workshops.

•I’m Tired of Feeling Nauseous.

•I’m Tired of Medical Bills.

•I’m Tired of Shitty Health Insurance.

•I’m Tired of Fatigue.

•I’m Tired of Dealing with Vitamin Deficiencies.

• I’m Tired of Constantly Sleeping.

•I’m Tired of Chronic Hives.

•I’ve Tired of Swelling.

•I’m Tired of Figuring Out Which Chronic Illness is Causing Which Symptom.

•I’m Tired of Hashimotos, Fibromyalgia, Asthma, Alopecia, Chronic Urticaria and Angioedema.

•Today I’m also Tired of Crying.

#ChronicPain #Fibromyalgia #HypothyroidismUnderactiveThyroidDisease #Asthma #AutoimmuneUrticaria #HereditaryAngioedema #AlopeciaAreata #atopicdermatitis #ChronicIllness #RareDisease

Me and my teenager got a short walk Sunday night before it started raining 🌧 very hard. I’m still trying to figure out which tracking app(s) I like best. I primarily used to use Nike Training Club. I’d like to participate in more awareness walks. Many organizations tend to use Strava which is why I started using it. I also have Map My Walks. #raredisease #hereditaryangioedema #autoimmuneurticaria #walking #awarenesswalking #autoimmuneurticaria #spoonies #spoonieteen #wellness #fitness #autoimmunedisease #invisibledisabilities

Me and my teenager got a short walk Sunday night before it started raining 🌧 very hard. I’m still trying to figure out which tracking app(s) I like best. I primarily used to use Nike Training Club. I’d like to participate in more awareness walks. Many organizations tend to use Strava which is why I started using it. I also have Map My Walks. #RareDisease #HereditaryAngioedema #AutoimmuneUrticaria #Walking #AwarenessWalking #AutoimmuneUrticaria #Spoonies #SpoonieTeen #wellness #Fitness #AutoimmuneDisease #invisibledisabilities

Based on lab results, we’ve determined that this is not chronic autoimmune urticaria or symptomatic of another underlying disease (like SLE or urticaral vasculitis). Essentially they are mystery hives. I do notice that I have swelling and more joint pain in my hands and feet when the hives are bad...

I’ve been taking prescription strength doses of antihistamines for almost two months, and the hives returned a few days ago. I’m now at my max dosage. The itching makes it hard to think and I can’t sleep at night. Anyone out there who has experienced this? What has helped??

Please pray for me! I’m meeting with another dermatologist tomorrow. Hopefully he can help figure out what’s going on. I need some one I can rely on to take on my case, because these #Hives are the worst. Joint pain is one thing... They are so hot and itchy, I can’t sleep at night. Sometimes the whole site of the hives becomes swollen (mostly on my forearms). I’ve been exhausted, feel like I have something stuck in my throat and some days I can barely walk because my heels hurt so bad.

Have you experienced this?? Please tell me your story!

#MixedConnectiveTissueDiseaseMCTD #LupusVeins #lupusrash #Lupus #RheumatoidVasculitis #RheumatoidArthritis #UrticarialVasculitis #AutoimmuneUrticaria #Urticaria #HypocomplementemicUrticarialVasculitis

Urticariaday2020 -Who cares? ucare!

Who cares? UCARE!

Also in 2020, urticaria day (UDAY) remains a day where urticaria patients are the focus of attention. Now in its 6th year, UDAY is the opportunity to raise awareness of urticaria among patients, their families, doctors, politicians, the press and the rest of the world.

So join us on October 1st, 2020 by organizing your own UDAY event! A big focus this year will be on digital UDAY initiatives. Virtual congresses, educational webinars, digital art projects, social media campaigns and urticaria apps are all in the talks among participants, and perhaps we can use this opportunity to reach even further. Is there a better opportunity to set up a regional self-help group? Help make UDAY known to friends, family and other affected persons!

Be creative, and continue spreading the news about UDAY! Don’t forget to post all your events on the official urticaria day 2020 website so that your personal UDAY will be a complete success.

Every contribution counts!

Urticaria day 2020 is supported by the urticaria network e.V. (UNEV), the UCARE network and many organizations worldwide that are committed to improving the lives of patients with urticaria. #Urticaria #chronicidiopathicurticaria #AutoimmuneUrticaria #Angioedema #AutoimmuneDisease #RareDisease