Hi, my name is Jace_Nicolas. I've been diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), and I’m soon to see a geneticist to be diagnosed with Ehlers-Danlos Syndrome (EDS). I’m aware I have EDS, but I don’t know what type, so that unknown factor is what I’m currently battling.
#MightyTogether #ChronicOrthostaticIntolerance #InappropriateSinusTachycardia #ehlers-DanlosSyndrome #Anxiety #BenignParoxysmalPositionalVertigo
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Hi, my name is bluenoteL. I'm undiagnosed and wanting to hear from other people who might be going through similar things: muscle twitches, joint pain, muscle pain, joint hypermobility, neuropathy, fatigue, eye issues, concentration issues, hypersomnia, coordination issues, TMJ, tinnitus, vertigo, nausea, dizziness, bloating, weight loss, lack of appetite, cognitive issues.
I assume fibromyalgia or something neuromuscular as that's who I'm being referred to next, but this is over 2 months of no answers and meds that don't help much, feeling beyond hopeless. I've been turned into an idiot, and am unable to exercise or really do anything, any hobbies or anything I enjoy.
#MightyTogether #Anxiety #Depression #Migraine #PTSD #ChronicDailyHeadache #MultifocalMotorNeuropathy #Hypersomnia #cramp-FasciculationSyndrome #BenignParoxysmalPositionalVertigo
Hi, my name is Missy. I'm here because sometimes we all need to talk with someone who understands and "gets it."
#MightyTogether #MultipleSclerosis #Anxiety #Depression #BipolarDisorder #PTSD #Migraine #BenignParoxysmalPositionalVertigo #TrigeminalNeuralgia #OpticNeuritis
Hi, my name is snowfiew. I’m new to The Mighty and look forward to sharing my story.
#MightyTogether #Anxiety #Depression #Dysautonomia #PanicDisorder #pans/PANDAS #PanicAttack #BenignParoxysmalPositionalVertigo #ChronicLymeDisease #DerealizationDisorder
Hi, my name is Carmela. I’m new to The Mighty and look forward to sharing my story.
#MightyTogether #ChronicLymeDisease #PerniciousAnemia #IronDeficiencyAnemia #GallbladderDisease #Anxiety #Depression #BenignParoxysmalPositionalVertigo
Hi, my name is lorriebaker. I’m new to The Mighty and look forward to sharing my story.
#MightyTogether #BenignParoxysmalPositionalVertigo
Spending a lot of time in bed lately. My wife/caregiver is having another bout of benign paroxysmal positional vertigo (BPPV). It's an inner ear condition that goes away in days or weeks. Since she's been getting this 18 months ago, we've met several others who do too.
We already visited the ENT specialist. He prescribed exercises (Epley maneuver) and waiting it out. It's tough on her but keeping spirits up.
#multiplesclerosis #BPPV #Vertigo #Wheelchair #Bedrest #Depression #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support
I've got a follow up appointment tomorrow after doing a ton of labs and an MRI, and...I'm scared.
I'm not sure if I'm more scared for a serious diagnosis, or that they might find nothing. Again.
And to my frustration, my nerves are showing up as physical symptoms, and I'm worried I won't be well enough to make the journey to my appointment. Which stresses me out.
I'm living in a circle of doom.
Any suggestions for distraction or staying calm?
#Anxiety
#Undiagnosed
#DiabetesType1
#PolycysticOvarySyndrome
#GastroesophagealRefluxDisease
#ChronicPain
#BenignParoxysmalPositionalVertigo
#Depression
#IrritableBowelSyndromeIBS
#Costochondritis
My dearest friend struggles with Vertigo. She does exercises that her doctor recommended to help. But sometimes it’s not enough. I have seen quite a few posts asking what products people like for pain management. I’m wondering for people who struggle with vertigo, what products have helped you manage your vertigo? I would like to put together a little gift pack for my friend. Thank you for taking the time to share!!
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