Gallbladder Disease

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Gallbladder Disease
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    Asking for advice

    I've had symptoms of pain after eating, nausea with the pain and pressure. Pain in right upper quadrant. Can't walk but a few steps some days. Can't stand up for long. Pain lasts for hours. Gets worse throughout the day. Usually best in the mornings. Riding in the car makes me sick. Cant drive anymore. Have to sleep sitting up. Can't eat much and on tpn. Does this sound like gallbladder problems to anyone? I don't have gallstones, had a CT scan, ultrasound, MRI, and hida scan with nothing showing up.
    #GallbladderDisease

    Community Voices

    Thank you for reaching out to me. I am tech challenged and not sure how to navigate the website. I created a new community. Probably should not have done that.

    Anyway, I am 61 years old and I believe that I have had EDS all my life. I was born with left hip not developed. Was in a harness or cast. Learned to walk in it. I have swan fingers, pinky and knees hyperextend. My entire life, I have had chronic headaches, back, neck pain, anxiety, extreme fatigue, face pain, flat feet, etc. Gastro issues, burping, heartburn.

    March 2021: gallbladder removed (chronic gallbladder disease).

    May 2021: I had tingling in my neck. Had MRI of cervical neck. Diagnosed with significant degenerative disc disease, severe osteoarthritis, bone spurs, facet joint hypertrophy, mild subluxations from C2 through T2. I have not been formerly diagnosed with EDS but I fit much of the criteria and then some. I return to neurologist next week and then have an appointment with Rheumatologist (new doctor). My OB-GYN, said to discuss everything with the new Rheumatologist doctor-concerns with EDS, symptoms, spine surgery (given my severe osteoporosis). Nerve roots are compressed from C2 through C7 (bilateral). I am extremely frightened given that I probably will need surgery; however, I don't think that I am a candidate given my weak bones.

    At age 43, pre-menopause, diagnosed with severe osteoporosis. After asking osteoporosis doctor why I had this disease so severe, she asked if I was flexible. I said yes. She mentioned something about collagen defect. That was in 2012. Also, in 2012 I had left bunion surgery that did not heal properly. Surgeon said it was due to osteoporosis. Surgeon also said that my bone quality was a 3 out of 10. That was before I even went through menopause.

    Paternal History: Uncle born with club foot. Had episodes where he would just faint and fall. This was in the 1970s. 2 cousins had jaw deterioration and had all teeth removed as well as knees popping out. 2 other cousins, faint and fall.

    Maternal side: I don't know if this is related. My Mom's sister at age 23 (1956) was out dancing, came home, vomiting. The next day she was paralyzed from neck down.

    I was wondering if anyone knew of any doctors on Long Island, New York who specialize in EDS and if any doctors on Long Island test for the disorder? I would appreciate any information that you could share. Thanks.

    Community Voices

    The After

    A pile of blister packs sits to my right. The colors and shapes together remind me of candy- here a Sweet Tart, there a Mike and Ike, over there, a Tic-Tac. They’ve been in a drawer for years. I remember each and every one, though. The antihistamines I still need, if they’re good. The cold medicine would be useful. I don’t need the antacids anymore. I can’t believe there’s still ibuprofin.

    Every so often, I unearth these breadcrumbs from my past. Few people understand-what it means that I survived. Things have not been good… but they aren’t this. I know how lucky I was. I will not complain.

    I have a stack of papers two feet tall behind me- more breadcrumbs, more unbidden memories… That time I matched my green sweater, I would not get into it…

    Stubborness can only get you so far. It almost did me in. I am glad it didn’t.

    I don’t talk about this, or rather, I try not to. But, every time I use the bathroom, I see the scar that saved my life. I am grateful, but wish I didn’t look like this. I only have one picture from before, and you’d never know that it was of the same person. Looking at myself now, I sometimes wonder the same.

    I hold enough science to fill a textbook, and enough stories to last a lifetime. Instead, I listen to you complain about the way I wear my hair… and I smirk to myself at the perversity of it all.

    Chronic Illness

    Gallbladder Disease

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    Home

    <p>Home</p>
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    Battle

    <p>Battle</p>
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    I’m getting a HIDA scan beginning of next week because we found out that my gallbladder is slightly deformed and could be the cause of my life-long chronic nausea and pain. I was fine until I heard horror stories regarding the scan and the surgery to removal the gallbladder, if that’s needed in my case. Would anyone be willing to share their experiences?
    #GallbladderDisease #gallbladder #Surgery #HIDAScan #GallbladderSurgery #Scan

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    Community Voices

    My Gallbladder Surgery

    So the surgery itself was uneventful.
    Took out the gallbladder through 4 holes.
    Glued the holes shut.
    Pretty straight forward.
    I was supposed to stay the night and go home next day.
    That didn't happen.
    My heart rate jumped to 124.
    The EKG was tacky.
    Keep in mind I had no chest pains or shortness of breath.
    They started throwing around words like PE.
    Started talking about my testosterone use.
    Which was utter bullshit but they needed an excuse.
    So they decided I needed a CT scan of my lungs.
    Which meant they needed to put in a new IV.
    They couldn't find my veins. No, seriously.
    Stuck me 8 times, blew 4 veins.
    Finally gave up trying.
    Said they could put in a central line...
    but then decided that was too invasive.
    Put me on a heart monitor and made me stay another night for observation.
    Talked about if I had a blood clot I coould die.
    My heart rate must have normalized though because...
    Discharged me the next day.
    My arms are cobbled with bruises.
    ANd I'm so glad to be home.
    #GallbladderDisease

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