Gallbladder Disease

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Health anxiety

A few months ago I had to go to the hospital. I was having severe back pain that was all encompassing and horrible. This last time was the third time it happened. One time my mom and I went into the hospital, the second time the pain passed before we got to the hospital, and the third time was the last time. My dad and I were there for hours. I had thought it was gas( that’s what they said the first time) and I was just praying they would give me strong antacids or stomach soothers. And they did. And it didn’t help. In fact, the pain got worse. They took blood and found that my liver enzymes were high and my white blood cell count was high, which made the PA think it was my gallbladder. She sent me for an ultrasound and it revealed my gallbladder was full of stones and that I was having gallbladder attacks (extremely painful movement of gallstones within the gallbladder typically brought on by fatty food). She said she was going to call a surgical team and the surgical team agreed that I needed surgery and that I would likely have it that day. I was admitted. I was there all night (we had gone at around 11:40 the previous night and i was told about surgery around 6am) and all day and I had the surgery around 6ish. Ever since, my health anxiety has been rampant. Every time my back hurts I get nervous, if my stomach feels strange (hurts, gas, etc.) I get nervous. I’m terrified of throwing up and I’m terrified of back pain. I see a therapist and an acupuncturist but it’s always there in the back of my mind.

Any advice? Similar stories? #Health anxiety #panic attacks #GallbladderDisease #cholecystectomy

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Thank you for reaching out to me. I am tech challenged and not sure how to navigate the website. I created a new community. Probably should not have done that.

Anyway, I am 61 years old and I believe that I have had EDS all my life. I was born with left hip not developed. Was in a harness or cast. Learned to walk in it. I have swan fingers, pinky and knees hyperextend. My entire life, I have had chronic headaches, back, neck pain, anxiety, extreme fatigue, face pain, flat feet, etc. Gastro issues, burping, heartburn.

March 2021: gallbladder removed (chronic gallbladder disease).

May 2021: I had tingling in my neck. Had MRI of cervical neck. Diagnosed with significant degenerative disc disease, severe osteoarthritis, bone spurs, facet joint hypertrophy, mild subluxations from C2 through T2. I have not been formerly diagnosed with EDS but I fit much of the criteria and then some. I return to neurologist next week and then have an appointment with Rheumatologist (new doctor). My OB-GYN, said to discuss everything with the new Rheumatologist doctor-concerns with EDS, symptoms, spine surgery (given my severe osteoporosis). Nerve roots are compressed from C2 through C7 (bilateral). I am extremely frightened given that I probably will need surgery; however, I don't think that I am a candidate given my weak bones.

At age 43, pre-menopause, diagnosed with severe osteoporosis. After asking osteoporosis doctor why I had this disease so severe, she asked if I was flexible. I said yes. She mentioned something about collagen defect. That was in 2012. Also, in 2012 I had left bunion surgery that did not heal properly. Surgeon said it was due to osteoporosis. Surgeon also said that my bone quality was a 3 out of 10. That was before I even went through menopause.

Paternal History: Uncle born with club foot. Had episodes where he would just faint and fall. This was in the 1970s. 2 cousins had jaw deterioration and had all teeth removed as well as knees popping out. 2 other cousins, faint and fall.

Maternal side: I don't know if this is related. My Mom's sister at age 23 (1956) was out dancing, came home, vomiting. The next day she was paralyzed from neck down.

I was wondering if anyone knew of any doctors on Long Island, New York who specialize in EDS and if any doctors on Long Island test for the disorder? I would appreciate any information that you could share. Thanks.


The After

A pile of blister packs sits to my right. The colors and shapes together remind me of candy- here a Sweet Tart, there a Mike and Ike, over there, a Tic-Tac. They’ve been in a drawer for years. I remember each and every one, though. The antihistamines I still need, if they’re good. The cold medicine would be useful. I don’t need the antacids anymore. I can’t believe there’s still ibuprofin.

Every so often, I unearth these breadcrumbs from my past. Few people understand-what it means that I survived. Things have not been good… but they aren’t this. I know how lucky I was. I will not complain.

I have a stack of papers two feet tall behind me- more breadcrumbs, more unbidden memories… That time I matched my green sweater, I would not get into it…

Stubborness can only get you so far. It almost did me in. I am glad it didn’t.

I don’t talk about this, or rather, I try not to. But, every time I use the bathroom, I see the scar that saved my life. I am grateful, but wish I didn’t look like this. I only have one picture from before, and you’d never know that it was of the same person. Looking at myself now, I sometimes wonder the same.

I hold enough science to fill a textbook, and enough stories to last a lifetime. Instead, I listen to you complain about the way I wear my hair… and I smirk to myself at the perversity of it all.

Chronic Illness

Gallbladder Disease

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Well, I'm home from the hospital. Thanks to my wonderful friends from afar, my apartment is filled with flowers. Doing this entire surgery on my own is hell.

I'll write a more detailed update when I'm able.

💌 If you want to send me some cheer, I would love Audible Credit for books to listen to during my recovery. My email is: 💌

#Surgery #Appendicitis #GallbladderDisease #GallbladerSurgery #Hospital #CheckInWithMe #lonely #Recovery

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Can't talk, I'm in septic shock. This time the sirens wailing in the distance were coming for me. I'm headed in for an emergency gallbladder and appendix removal in the morning.

My mind is now entering into absolute battle mode. All I can do now is hold on. The war continues and my battle rages on. I am a godammed Warrior. I am still here. 🛡

#SepticShock #CheckInWithMe #GallbladderDisease #Appendectomy #Surgery #EmergencyRoom #Hospital #alone
#sad #Nosupportsystem


#HIDAScan and #GallbladerSurgery Experience?

I’m getting a HIDA scan beginning of next week because we found out that my gallbladder is slightly deformed and could be the cause of my life-long chronic nausea and pain. I was fine until I heard horror stories regarding the scan and the surgery to removal the gallbladder, if that’s needed in my case. Would anyone be willing to share their experiences?
#GallbladderDisease #gallbladder #Surgery #HIDAScan #GallbladderSurgery #Scan