Benign Paroxysmal Positional Vertigo

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Benign Paroxysmal Positional Vertigo
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    I’m new here!

    Hi, my name is chroniclyMimi. I recently spent a week in the hospital and was diagnosed with Adrenal Insufficiency and acute renal failure. My blood pressure would drop so low I would pass out when sitting up or standing and at times was even 60s/30s at rest. I live with a slew of debilitating, chronic medical issues that have come to light over the last 13+ years, including Rheumatoid Arthritis, h-EDS, multiple orthopedic surgeries, a h/o uterine cancer, anxiety and depression to name a few. I had to retire with disability at the age of 44 from a 20+ year nursing career and I can tell you with complete certainty that it’s definitely harder to be a full time patient than the health care professionals. I usually consider myself pretty badass and I’ve learned how to adapt and live with my limitations and disabilities (except the motorized bugggy in the grocery store, I refuse to ride on one of those!!) But this most recent diagnosis has me a little concerned and scared, I understand that it is most likely due to the high dose and lengthy tapers of Prednisone I’ve had to take frequently for RA flares, as well as stress being a factor. My initial appointment with the Endocrinologist isn’t until May, so I came back to The Mighty for support from people I trust to help me understand and also guide me through how to adjust to life with this additional chronic condition .
    #MightyTogether #Anxiety #Depression #RheumatoidArthritis #OrthostaticHypotension #ehlers-DanlosSyndrome #DegenerativeDiscDisease #Fibromyalgia #PTSD #addison'sDisease #UterineCancer #BenignParoxysmalPositionalVertigo #ChronicIllness #ChronicKidneyDisease

    16 reactions 7 comments

    I’m new here!

    Hi, my name is Jace_Nicolas. I've been diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS), and I’m soon to see a geneticist to be diagnosed with Ehlers-Danlos Syndrome (EDS). I’m aware I have EDS, but I don’t know what type, so that unknown factor is what I’m currently battling.

    #MightyTogether #ChronicOrthostaticIntolerance #InappropriateSinusTachycardia #ehlers-DanlosSyndrome #Anxiety #BenignParoxysmalPositionalVertigo

    11 reactions 4 comments

    I’m new here!

    Hi, my name is bluenoteL. I'm undiagnosed and wanting to hear from other people who might be going through similar things: muscle twitches, joint pain, muscle pain, joint hypermobility, neuropathy, fatigue, eye issues, concentration issues, hypersomnia, coordination issues, TMJ, tinnitus, vertigo, nausea, dizziness, bloating, weight loss, lack of appetite, cognitive issues.
    I assume fibromyalgia or something neuromuscular as that's who I'm being referred to next, but this is over 2 months of no answers and meds that don't help much, feeling beyond hopeless. I've been turned into an idiot, and am unable to exercise or really do anything, any hobbies or anything I enjoy.
    #MightyTogether #Anxiety #Depression #Migraine #PTSD #ChronicDailyHeadache #MultifocalMotorNeuropathy #Hypersomnia #cramp-FasciculationSyndrome #BenignParoxysmalPositionalVertigo

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    I’m new here!

    Hi, my name is Missy. I'm here because sometimes we all need to talk with someone who understands and "gets it."

    #MightyTogether #MultipleSclerosis #Anxiety #Depression #BipolarDisorder #PTSD #Migraine #BenignParoxysmalPositionalVertigo #TrigeminalNeuralgia #OpticNeuritis


    I'm new here!

    Hi, my name is lorriebaker. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #BenignParoxysmalPositionalVertigo

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    World gone topsy-turvy: How many here struggling with vertigo (BPPV)?

    Spending a lot of time in bed lately. My wife/caregiver is having another bout of benign paroxysmal positional vertigo (BPPV). It's an inner ear condition that goes away in days or weeks. Since she's been getting this 18 months ago, we've met several others who do too.

    We already visited the ENT specialist. He prescribed exercises (Epley maneuver) and waiting it out. It's tough on her but keeping spirits up.

    #multiplesclerosis #BPPV #Vertigo #Wheelchair #Bedrest #Depression #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support

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    I've got a follow up appointment tomorrow after doing a ton of labs and an MRI, and...I'm scared.

    I'm not sure if I'm more scared for a serious diagnosis, or that they might find nothing. Again.

    And to my frustration, my nerves are showing up as physical symptoms, and I'm worried I won't be well enough to make the journey to my appointment. Which stresses me out.

    I'm living in a circle of doom.

    Any suggestions for distraction or staying calm?