Celiac Disease

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Partner resentful of me, how to proceed with job apps

My partner is working 2 jobs to support us both. I’ve been out of work for two years after getting fired because of my illnesses.

Getting let go from multiple positions in a row really shook my confidence. Today he and I had a big fight because he feels like he’s carrying all the weight and responsibility of the income, and has been very frustrated with me and snapping at lots of little things that turned out to be big resentment about me not working. He feels I’ve been unemployed way too long and need to get it together and be an adult. It’s hard with arthritis, brain fog, pots, celiac and EDS :(

He gets frustrated about things like needing to do the stairs to grab something when I can’t, or getting annoyed from seeing me wincing in pain, or when I get upset at strangers’ invasive questions. He feels like a caretaker not a partner. He just wants me to get a job.

I took a certificate course in medical coding, but have been slow to schedule the state exam because I’m terrified to fail and also don’t really know how to navigate getting hired & retained with visible disability, chronic illness and as a cane user.
Really need a hug and maybe some tips?
#EhlersDanlosSyndrome #AutonomicDysfunction #CeliacDisease #Arthritis

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Not one more QOL ruining thing, please!

I have been dealing with some new loss of balance and muscle weakness symptoms recently. The neurologist is concerned. My partner thinks it's stress. But right now, all I can think about are my 17 existing diagnoses, all of which impact quality of life, none of which impact length of life. I'm not sure I can handle one more diagnosis like that. #AutismSpectrumDisorder #ADHD #PTSD #ChronicFatigue #Fibromyalgia #GenderDysphoria #Arthritis #Diabetes #CeliacDisease just to name a few

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Lovely afternoon

Hi, I’m Rae!
Today was more pleasant than I expected. My new cane is wonderful and helps me walk longer distances without any joints dislocating or hurting! I am receiving ableist comments from my family about using it as a late 20s person, but it’s good for all of us to remember that anything people say is just projection of their own insecurities and really has nothing to do with us. I grilled up some smoked mackerel, green beans in chili oil, and fluffy rice in a Sichuan sauce as an early dinner. :) #EhlersDanlosSyndrome #CeliacDisease

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I'm new here!

Hi, my name is Sentence_4_life.

I'm worried about where to go from here. I have been dealing with these issues for a very long time. I feel like the doctors are tired of finding more and more autoimmune issues. I am tired of hearing it and having to deal with the effects. The medical issues I have, hold me back. But the medications are worse. I want to move and live my remainder of my life somewhere I would like to be. Because the regulations of the medications, it is the real issue of me not being able to move somewhere more affordable. The government has stepped in, and the doctors are no longer taking the proper care for you and your stuck if you are put on opioids early on and moving to another state isn't as easy as it sounds. Finding another set of doctors like I have now. Is extremely difficult, regardless of all your images, records, reports, medical documentation. They want you to start all over again and not prescribe the same meds. I am 62 years old. I just want to move where I wish to. Go to a doctor's office get to know the doctor like the old days. Get my medication filled and go back to my life. I have been attempting it for 3 years. I hit brick walls of what another doctor wants and etc. I'm old, tired, and want to relax for my remainder here.

#MightyTogether #Anxiety #Depression #Migraine #ADHD #RheumatoidArthritis #OCD #Fibromyalgia #MultipleSclerosis #Endometriosis #LupusNephritis #Lupus #RaynaudsPhenomenon #CeliacDisease #SjogrensSyndrome #Arthritis #PeripheralNeuropathy

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Are you struggling with chronic pain, anxiety, or age-related health challenges?

Meet Kristo—he suffered from pains in his body, fibromyalgia, three heart attacks, and one stroke, and has been using a sleep apnea device since 2012.

After 25 years of diligently following the medications and surgeries prescribed to him, his long-term doctors informed him in mid-May 2019 that they could no longer do anything for him. By this point, his body had deteriorated significantly.

He could no longer walk well. His vision was only 30% after two failed eye operations. Using two crutches, he could move a maximum of 100 meters before losing balance and falling over due to the pain. He had been suffering from chronic fatigue for at least 30 years, dragging himself through each day.

His wife, his caregiver for many years, juggled her job in childcare with an unpaid "job" as a nurse, driver, cook, cleaning lady, gardener, and chef, leaving her little time in her busy, hectic life.

Kristo was told to get comfortable in a scooter for disabled people and a wheelchair because that was going to be his life going forward. Their world fell apart - until a friend introduced him to our program.

See the new man! Kristo’s journey from chronic fatigue and debilitating pain to renewed vitality is just one example of how our program is helping many people get their lives back holistically, without medications and surgeries.

We are looking to talk to 60 men and women, especially those over 50, who have health problems and are serious about finding a proper solution.

Your insights will help us build a program tailored to your needs. Participants will be rewarded with a 10% discount when the program launches. It provides transformative results, by the way.

Interested? YES or NO?

Comment below if you want to participate!

Thanks!

#ChronicFatigue #ChronicIllness #ChronicDailyHeadache #ChronicLungDisease #ChronicPain #chronic #ChronicLungDisease #ChronicInflammatoryResponseSyndrome #ChronicPancreatitis #ChronicTraumaticEncephalopathy #ChronicObstructivePulmonaryDisease #ChronicOrthostaticIntolerance #ChronicVestibularMigraine #MentalHealth #Addiction #chronic #Anxiety #Arthritis #BackPain #CeliacDisease #CommonVariableImmuneDeficiency #ComplexRegionalPainSyndrome #Eczema #EosinophilicEsophagitis #HashimotosThyroiditis #ChronicLymphocyticLeukemia #HashimotosThyroiditis #InflammatoryBowelDiseaseIBD #InterstitialCystitis #IrritableBowelSyndromeIBS

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Disability is Headed to the International Stage!

Hi all! I have been a part of this community for a while and you guys have given me so much strength so I want to include you amazing humans in this achievement.

Today I was crowned Miss North America Revolutionary and I will be headed to the international competition in February.

I’m really excited for this year because I get to tell everyone about my platform which I’m calling Breaking the Glass Ceiling.

I’m focusing in on the idea that as a community those of us with disabilities often struggle to find gainful employment and so we can have a lower quality of life when compared to others.

My goal is to help educate employers and government officials on how to create meaningful accommodations in the workplace.

I would really appreciate your help sharing my message! So, could each of you share my story with your friends and family? Let’s make an impact!

Follow us on IG and FB !

#Advocacy #functionaneurilogicaldisorder #EhlersDanlosSyndrome #CeliacDisease #zebralife

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What people don’t realize

You know what sucks? People don’t realize that having celiac doesn’t mean if I avoid gluten I’m fine. I still just sometimes feel sick, for no good reason. Todays one of those days. #CeliacDisease #BadDay

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Hey y'all!

I'm new, my name is Labradored. I am here because of multiple medical and mental health issues. My oldest daughter was born with Rett Syndrome (a pervasive developmental disability with serious health issues) and died from a seizure in my arms at 12 years old in 1993. My youngest daughter died in a car accident at 17 in 2000. They were my only children. I was so very blessed to be their momma.
My medical issues include long term insulin dependent diabetes II, exocrine pancreatic insufficiency, Celiac disease, asthma, osteoarthritis, severe food, drug and environmental allergies, dysphasia, Barrett's esophagus, eosinophilic esophagitis, GERD, chronic stomach issues, and IBS.
My mental health concerns include Major depressive disorder, generalized anxiety, OCD and ADHD, and complicated grief related PTSD.
The memes on this site are helping me get through this current gastro flare, I've been nauseous all day today with vomiting and diarrhea for the last 12 hours . This happens about twice per month. My food menu is quite limited due to allergies to gluten, soy, most non citrus fruit, lactose intolerance and tree nut and peanuts. I feel like I develop a new food allergy every year.
My medical issues began shortly after my youngest girl died. Don't let anyone tell you that grief is just an emotional response, grief has wrecked serious havoc on my body.
I have a wonderful husband, supportive and loving friends, a great career as a behavioral health counselor and three fur babies who provide unconditional love and entertainment.
Most of the time I manage pretty well, but when my health conditions flare, it tanks my mental health as well.
Looking forward to sharing and receiving. 🩵🩷 Blessings upon you all.

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