I'm new here!
Hi, my name is Iamnotmyillness7. I'm here because I love to learn and share
#MightyTogether #RheumatoidArthritis #EDS #Dysautonomia #Gastroparesis #Osteoarthritis #Anaphylaxis #CeliacDisease #Psoriasis
Hi, my name is Iamnotmyillness7. I'm here because I love to learn and share
#MightyTogether #RheumatoidArthritis #EDS #Dysautonomia #Gastroparesis #Osteoarthritis #Anaphylaxis #CeliacDisease #Psoriasis
I am new to this group. I am searching for answers. I feel so defeated. I was diagnosed around 2 years ago. I am a teacher and a mom. Between my students, my children, and the public in general, I seem to be ingesting gluten through others. It's in the air and I get ill. Really ill. It is debilitating. #CeliacDisease
Hi! I'm here because I want to learn more about recent diagnosis for chronic Lyme & dysautonomia (still figuring out what) & treatment options. I do have other co/chronic illness as well.
#MightyTogether #Migraine #Dysautonomia #CeliacDisease #LymeDisease #chroniclyme #sibo #EBV
I fight my exhaustion with exercise: youtu.be/PhHH3uyTA3Y
What do you do when you are exhausted… not just tired, but bone weary exhausted?
#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe #RareDisease
Hi, my name is Jandy_love. I'm here because
#MightyTogether #CeliacDisease #Fibromyalgia #hashimoto 'sThyroiditis#PsoriaticArthritis
Hello friends! You will notice I change the name of the group, even though the purpose of the group has not changed, I want to focus on the journey and not the destination.
This summer, I really want to continue my outdoor adventures and have as much time as I can with the people I love. What are your summer goals?
#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#RaynaudsDisease #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe
My video on coping with pain and dysfunction.
#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#RaynaudsDisease #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe
In my video, I talk about my journey from the hospital to my 9 km hike three months later.
#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe
I can smell the green of the grass and trees.
I can feel the last bit of the warm sun on my face and the slight breeze.
I can taste the cool water on my lips.
I can feel the twigs snap under my shoes.
I can see the beauty of nature all around me.
I can hear the birds chirping and honking.
#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety
#ChronicPain
#ChronicIllness #Disability #DistractMe
I am feeling and looking more like myself. When I was really sick I didn’t look like me. I had bald spots, a round face from too much steroids, I couldn’t walk, I just didn’t look or feel like me. Now when I see pictures of myself, I see myself again.
Taking care of my health and my house is a full-time job, and I am often exhausted and always in pain, but there is so much joy and I am so grateful for this second chance to soak up as much as I can. Root canal tomorrow and bronchoscopy on Monday, fingers crossed that everything goes well. Thank you all for your support and I hope you have a wonderful day.
#Abunchofrarediseases
#AddisonsDisease #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome
#PTSD #FunctionalNeurologicalDisorder #Migraine
#Asthma
#CeliacDisease #MitochondrialDisease #MastCellActivationDisorder #Trauma
#raynauds #MentalHealth
#Depression
#Anxiety
#ChronicPain #ChronicIllness #Disability