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Alani smiling

Alani, Rachel's daughter, smiling.

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Congenital Generalized Lipodystrophy

August 18, 2016

Growing Up With Lipodystrophy: When a Lack of Body Fat Is Not a Good Thing

My sweet Alani was born in January of 2014. She is the baby out of five children, and the only child born with an incurable rare disease. Just over 5 pounds, she was so small and frail, but so beautiful. She had an awfully large belly, being so new. I noticed she had two hernias in [...]