emphysema

I'm just wondering if anyone else says the same prayer every night. Please be honest...

Now I lay me down to sleep,
I pray the Lord my soul to keep.
If I should die before I wake.
I'll be very very grateful. Amen 🙏

I'm not looking for pity or sympathy, I'm really not.
I'm looking for anyone who hopes for the end, but refuses to give up. Anyone who is literally going through Hell because of different reasons, or a lot of things. Anyone who wants it all to stop. The physical, mental, and emotional pain, just wake up in the place that you want to be, not where you are.
I will not give up on my hopes and dreams of a better life ahead. I have too many hopes and dreams to just quit. But sometimes I want to.
Will you ? I hope not.
#MentalHealth
#BipolarDepression
#ChronicPain
#ChildhoodSexualAbuse
#emdr Gone Wrong
#CPTSD
#ChildhoodAbuse
#Emphysema
#Loneliness
#LivingInHell
#warrior
#helpme
#CryingAgain
#Guilt
#AAAAAHHHH !!!!

I haven’t noticed /come across a chat about Emphysema aka COPD .
I have severe emphysema and am happy to chat with anyone out there who also has the same or some other respiratory illness which they find debilitating that falls under the COPD umbrella.
#ChronicIllness #Emphysema #COPD

I’ve been out for 2 1/2 yrs. My mind gets so distracted. Some days are certainly better than others. #Emphysema,# #ADHD #AnxietyDisorders #IrritableBowelSyndromeIBS #CervicalRadiculopathy

I'm 35, diagnosed with severe Emphysema, ending a new career on Railway.
I would like to gain a support group for young(er) sufferers to be able to help us all feel less lonely and help to deal with health, life, fear, and surgery etc.
Its bizzare, looking around the clinic and all the leaflets have pictures of older ladies knitting etc 😁,,
Its a weird place for us to be so young, and to share some stories, feelings, tips, and ideas,,,,,,
Please contact me if you feel this way, let's not suffer this alone.
❤️🙏✌️🕉️🍀

So, having 3 chronic lung illnesses with severe persistent daily asthma as the worst of the 3, it is a daily decision to live for the day and risk dying or by not doing anything being dead to the world to ensure survival again for another day.

Some days I'm all for living my life as full as possible with as many interactions with others as possible. But this comes with greater risk. The risk lies in the issue of the more active I am, the more likely I have a fatal asthma attack. So to live is to risk dying. If I decide to do nothing and stay home away from the world, it's weather, it's people, I most likey dont have a fatal asthma attack but this is dying inside to me as I am a social butterfly and love participating in life to the max daily. Then throw in constant 24/7 labored breathing at best. Most days I try to find a balance between the 2, dying to live or living to die.

I have come to a peace about it all though. I have already lived a life enough for 5 lives. I have already completed a very full bucket list and have started a second bucket list. I should not be alive if justice was served because of everything I have been through. So I am already very lucky to be alive let alone be able to live a somewhat full life still even though my lungs are really bad. I need to live life as free and full as possible while trying to accommodate my illnesses. This is where my heart and soul is. This completes me.

So when I go about my every day doings and have 1 of daily several asthma attacks and am faced with "is this the one that takes me... " I try not to panic, use rescue inhaler ASAP and do everything I can to make it througn the attack no matter how severe which usually my attacks are moderate to life threatening. most attacks it gets to the point of not being able to breath at all for at least 20 seconds. Some attacks I end up in emergency room. Mysevere doctors have told me the more active I am, the more likely it is that I will have a fatal attack.

So living is dying and dying is living. This is my daily struggle with how much do I want to risk dying to be able to live life comfortable for me.

I hope this can bring comfort to other asthmatics. Our struggle is real but life is more real to me so I will be there in life... to live as full as possible. #Asthma #ChronicObstructivePulmonaryDisease #Emphysema #Chronicbronchitis #ChronicIllness