Gastroparesis

I’ve got Gastroparesis, Lupus and Al sundry list of chronic illnesses. I’ve been in bed for 4 days now with what I believe is a gastrointestinal bug or could be a Gastroparesis flare. I am having horrible stomach pains and if I take my stomach medicine it gives me a migraine . I’m starving as I’ve had two packs of ritz crackers and 2 pieces of toast in 4 days. My hubby is trying but he’s basically playing video games to ignore my illnesses. I’m starting to feel depression kicking in. Just needed to vent.

Hi! I have never posted before but if anyone is looking for mutual support please feel free to reach out! #Depression #Anxiety #PTSD #Grief #Trauma #Diabetes #MentalHealth #ChronicIllness #Gastroparesis #MightyTogether #CheckInWithMe

Hi, my name is krocco12. I'm here because I was recently diagnosed with gastroparesis

#MightyTogether #Gastroparesis

My counselor actually told me about the groups! I'm 48. Fully wheelchair bound for 10 years this October. I had 3 spinal surgeries that didn't go well. Probably because of my undiagnosed EDS! In 20 covid hit me hard and it's been a roller coaster since. I have gastroparesis. I have an ileostomy and I'm fully IV fed. Fun right?? LOL

I was diagnosed about 15 years ago with just so Neue hypoallergic pots gastroparesis and later on MCAS before that decades of what they called fibromyalgia con fatigue syndrome, many miscarriages, and a lot of what they call just happened to be bad luck medical situations. I was recently sent to a pain management Specialist by another pain management Doctor Who worked with my spine doctor. He wanted me to have a consult with this person this person went over my extensive medical history examined me, and I told him I do not have a history of being super flexible if anything always uncoordinated and clumsy While my some of my kids are very flexible and can do all those wrist and arm things that I cannot do he examined me as I’m dealing with yet another episode of a side joint syndrome and then looked at me and said you REDS you have been all this time Is this possible as for all these years the doctors have been trying to figure out where my just saw Denoia came from as mine has gotten worse and worse over the last few years I have many specialist, dealing with each part of my body for my gastroparesis for a neurologically, my proprioception and Gate and Balance And I’m very sensitive to all medication which I’ve been told could be my mass cell issues. I guess I’m just right now Steine after seeing so many doctors for so many years any input or thought would be very welcomed and appreciated. Bless you.

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sue Lindsay

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Diagnosed EDS at 72 yrs ?

I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.

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About Pots,fibromyalgia,ehlers-danlos,&chronic-fatigue

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do you suffer from all 4..?? or have tips on how to manage them all at once?

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sue Lindsay

1m

Diagnosed EDS at 72 yrs ?

I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.

I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.

hi, my name is hannah! i live with many health issues, including status migraine, POTS, gastroparesis, MCAS, anxiety, and ptsd, most of which are related to my diagnosis of long covid. it sucks a lot but i’m hoping to connect with others who are similar!

#MightyTogether #

#Gastroparesis I spent yesterday evening on the bathroom floor in agony after eating a sandwich, I nearly passed out with the pain and lost all control while feeling extremely sick all on top of severe fatigue and weakness. Parents called for an ambulance but were told to put me in the car! No help came. I have been going through this for nearly 15 years and just told it is IBS. I am now afraid to eat and wondering how to survive this

Hi, my name is Dreamweaver. I'm worried about my son’s gastroparesis and I want to learn about it and try to find help.

#MightyTogether #ADHD #Anxiety #Depression #AutismSpectrumDisorder

#panic #neis #PTSD #Gastroparesis

1100pm. I am once again on the bathroom floor. I have had treatment resistant gastroparesis and intractable nausea since 2020. Also, I have had panic disorder for 42 years. If I eat the wrong thing or eat too much of something, I experience severe nausea, vomiting, and everything out the other end. It also causes panic. Panic also makes me nauseous. It's a vicious cycle. Usually, I would be able to take iv meds through my port but 2wks ago I had a blood infection and had to get the port removed. That is also why I'm panicking. I was able to take orally disintegrating zofran and ativan dissolved under tongue but nausea still severe. This is a nightmare scenario. Encouraging words would be appreciated.