Gastroparesis

Hello all. I have had a lifetime of health issues that have always been assumed to be rheumatological but I never fit all tne criteria. This past year, I have had a new "flair up" with very concerning symptoms including sensorineural hearing loss, ruptured ear drum, visual and visual field disturbances, high ocular pressure, new migrane activity, broken wrist and ankle with delayed healing, gastroparesis, internal rectal hemroids, hernia and more. I am currently seeing specialist who agree this is complicated. Looking into EDS was recommended to me, and I was absolutely shocked to see that almost WORD for WORD and symptom by symptom, I literally fit almost all the 13 subtype. I'm so scared and I'm so confused! How can I fit all of to that large of a degree. I have a wrist surgery in 2 days for a fracture that happened in January and I'm absolutely scared to go under anesthesia now or be cut on after ready the cardio and vascular forms, which again I fit criteria heavily. I have no had an echo but my heart rate and BP are having difficulty being controlled on beta blocker. Can anyone give adive or experience with the possibility of having multiple subtype and if I am putting myself at risk having this surgery. I literally don't even know where to go from here.

Hi, my name is TooManySpoons. I've been diagnosed with

#MightyTogether #Migraine #RheumatoidArthritis #Scleroderma #RaynaudsPhenomenon #GastroesophagealRefluxDisease #Gastroparesis #POTS

Hi, my name is LoraCotton.

#MightyTogether I am caregiver to my husband who suffers Gastroparesis, I.T.P. and Generalized Seizure Disorder. On top of that I suspect he suffers POTS too. I intend to ask our PCP about having him tested for POTS at our appointment the end of this month. Beyond that what more can I do to help him managed?

Hi, my name is MeadMomma271526.
i suffer daily with gastroparesis being the worst of them all.
#MightyTogether #Anxiety #ADHD #Migraine #Gastroparesis

#PTSD #Gastroparesis #Endometriosis #Sarcoidosis #ColonicInertia #Agoraphobia #MastCellActivationSyndrome #Grief #ChronicIllness #MentalHealth #SensoryProcessingDisorder Hi, my name is Abigail, but with most I go by Abby! :) I’m known as abbysgotguts (although they do not work lol) on my medical-focused social media accounts, mainly on IG. I have a non-profit called Angels Of Strength™️ that I started with my Best Friend Ali. Our non-profit’s website & applications have been on a pause/hold since Ali suddenly passed away (she also was sick since a child) on July 21, 2024. I have been trying to get it going again, it is just so painfully heart breaking to do it without her. But also, there’s NO WAY I’m letting our non-profit just fade into non-existence. It was our baby and made us both so happy. So I’ve been working on ideas/designs to use to give a HUGE upgrade to our website (have a big memorial page for Ali, change around our business cards we put in each Warrior Bag and Hospital Donation we give, but edit it so those who receive a package/donation from us, not only know us and our non-profit’s name, like the card has always shown, but I want it to be clear Ali has passed, but that this is ALL for her from now until, well, forever. Ali will be the center of it all! I vow to make Ali’s name, heart, and smile known, said and remembered forever - even hundreds of years from now when we are all gone from this Earth!!) so I can guarantee/promise that AOS will be up and running as fast as I can physically can (and also, tbh, how fast I mentally/emotionally can….as fast as my heart can handle.). So I made this account to learn more about grief, coping, Ali, my, and our AOS recipients health struggles to make everything that much more personal. I have been sick since a young child and once I hit puberty, all h€|| broke loose! I have good days, bad days, and currently, extremely absolutely horribly bad days. I’m an open book. I’m very open with any question or topic someone comes to me to talk or ask about. Ali also got very suddenly sick as a young child, and like me, seemed to get sicker over time instead of better, with less to no treatments for our diagnoses, mainly just live with it at home in our daily lives with a lot of hospital visits shoved in there….A LOT. I’ve followed The Mighty for a long time now, but I’ve decided to actually make my own account to focus on things I need to and learn a lot more about things I both need and want to for myself, my family, my friends, and honestly just for my own curious mind sometimes!! XOXO
#MightyTogether

I’ve been on a GI journey for a very long time now. The last few years feels like nothing has been done to help - regardless of the many doctors appointments. I’ve tried a few different prescriptions and metaclopramide has been a strange one. (I’ve done research). The pros are that I can actually eat and keep food and water down! But I feel painfully woozy and irritable. I feel tired yet restless, foggy yet angry, and just overall more depressed than usual. Has anyone shared this uncertain experience? It’s like I just want to step out of my body for a moment and just not feel so overwhelmed by EVERYTHING. Any advice or support would be appreciated! 💚 #AutismSpectrumDisorder

Hi, my name is jlynnMiller.

#MightyTogether #Anxiety #Depression #ADHD #PTSD #AutismSpectrumDisorder #Gastroparesis #HypermobilitySyndrome

Hi, my name is Loren. I'm here because

#MightyTogether #Gastroparesis #ADHD #PosturalOrthostaticTachycardiaSyndrome #Dysautonomia #LynchSyndrome