Gastroparesis

Hi, my name is ohyoucleverbee.

#MightyTogether #Anxiety #Depression #Migraine #RheumatoidArthritis #Gastroparesis

Hi, my name is GracefullyDisabled.
I was diagnosed with hEDS, POTS, and MCAS several years ago and was recently diagnosed with gastroparesis. I’m here to connect with others like me—share health tips and resources and engage in community.
#MightyTogether #ehlers-DanlosSyndrome #PosturalOrthostaticTachycardiaSyndrome #MastCellActivationDisorder #Gastroparesis #Anxiety

Hi, my name is groovy63. I'm here because I feel like no one believes me. How i feel and that I'm sick. I was told I have gastroparesis about 2 years ago but I haven't seen the main dr for it yet because I can't drive and my husband has a bad back. The dr is 3 hours away. I tell myself that's way but I really don't think my husband believes I have it. He doesn't believe what drs say. Anyways last Friday I threw up and started feeling dizzy. My sugar went up really high and I haven't been able to get it down. I went to my family dr she thought maybe I had a flu or something but she did blood work and my white count was alitttle high and I was dehydrated. So she said to drink more water. So today I just really felt bad and I went to the er. My head was killing me, I thought I was going to throw up and I was dizzy. They did test and nothing showed up but my blood pressure was high. He gave me a pain shot it got rid of the headache but made my chest hurt. By the time I got home I felt the same way I did when I got there. Are these all signs of gastroparesis? I have so many other things work with me I don't know the difference between what's what. I have been sick for the past 35 years. I just feel like no one believes me when I tell them how I feel. They look at me like I'm crazy. Can someone tell me if any of this goes with gastroparesis or am I crazy. Thanks

#MightyTogether #Gastroparesis

I’ve got Gastroparesis, Lupus and Al sundry list of chronic illnesses. I’ve been in bed for 4 days now with what I believe is a gastrointestinal bug or could be a Gastroparesis flare. I am having horrible stomach pains and if I take my stomach medicine it gives me a migraine . I’m starving as I’ve had two packs of ritz crackers and 2 pieces of toast in 4 days. My hubby is trying but he’s basically playing video games to ignore my illnesses. I’m starting to feel depression kicking in. Just needed to vent.

Hi! I have never posted before but if anyone is looking for mutual support please feel free to reach out! #Depression #Anxiety #PTSD #Grief #Trauma #Diabetes #MentalHealth #ChronicIllness #Gastroparesis #MightyTogether #CheckInWithMe

Hi, my name is krocco12. I'm here because I was recently diagnosed with gastroparesis

#MightyTogether #Gastroparesis

My counselor actually told me about the groups! I'm 48. Fully wheelchair bound for 10 years this October. I had 3 spinal surgeries that didn't go well. Probably because of my undiagnosed EDS! In 20 covid hit me hard and it's been a roller coaster since. I have gastroparesis. I have an ileostomy and I'm fully IV fed. Fun right?? LOL

I was diagnosed about 15 years ago with just so Neue hypoallergic pots gastroparesis and later on MCAS before that decades of what they called fibromyalgia con fatigue syndrome, many miscarriages, and a lot of what they call just happened to be bad luck medical situations. I was recently sent to a pain management Specialist by another pain management Doctor Who worked with my spine doctor. He wanted me to have a consult with this person this person went over my extensive medical history examined me, and I told him I do not have a history of being super flexible if anything always uncoordinated and clumsy While my some of my kids are very flexible and can do all those wrist and arm things that I cannot do he examined me as I’m dealing with yet another episode of a side joint syndrome and then looked at me and said you REDS you have been all this time Is this possible as for all these years the doctors have been trying to figure out where my just saw Denoia came from as mine has gotten worse and worse over the last few years I have many specialist, dealing with each part of my body for my gastroparesis for a neurologically, my proprioception and Gate and Balance And I’m very sensitive to all medication which I’ve been told could be my mass cell issues. I guess I’m just right now Steine after seeing so many doctors for so many years any input or thought would be very welcomed and appreciated. Bless you.

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About Pots,fibromyalgia,ehlers-danlos,&chronic-fatigue

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sue Lindsay

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Diagnosed EDS at 72 yrs ?

I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.

Saved

About Pots,fibromyalgia,ehlers-danlos,&chronic-fatigue

Create a new post for group Post to Group

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do you suffer from all 4..?? or have tips on how to manage them all at once?

94

Members

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Anniecom

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Post

sue Lindsay

1m

Diagnosed EDS at 72 yrs ?

I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.

I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.