What weighs most heavily on my heart is the stark absence of awareness or comprehension surrounding gastroparesis, and the relentless barrage of symptoms and excruciating pain that it imposes daily. It is a struggle that feels almost insurmountable, and as time passes, I find my hope waning, consumed by the overwhelming silence and misunderstanding that surrounds this affliction
2 reactions Hi, my name is groovy63. I'm here because I feel like no one believes me. How i feel and that I'm sick. I was told I have gastroparesis about 2 years ago but I haven't seen the main dr for it yet because I can't drive and my husband has a bad back. The dr is 3 hours away. I tell myself that's way but I really don't think my husband believes I have it. He doesn't believe what drs say. Anyways last Friday I threw up and started feeling dizzy. My sugar went up really high and I haven't been able to get it down. I went to my family dr she thought maybe I had a flu or something but she did blood work and my white count was alitttle high and I was dehydrated. So she said to drink more water. So today I just really felt bad and I went to the er. My head was killing me, I thought I was going to throw up and I was dizzy. They did test and nothing showed up but my blood pressure was high. He gave me a pain shot it got rid of the headache but made my chest hurt. By the time I got home I felt the same way I did when I got there. Are these all signs of gastroparesis? I have so many other things work with me I don't know the difference between what's what. I have been sick for the past 35 years. I just feel like no one believes me when I tell them how I feel. They look at me like I'm crazy. Can someone tell me if any of this goes with gastroparesis or am I crazy. Thanks
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I’ve got Gastroparesis, Lupus and Al sundry list of chronic illnesses. I’ve been in bed for 4 days now with what I believe is a gastrointestinal bug or could be a Gastroparesis flare. I am having horrible stomach pains and if I take my stomach medicine it gives me a migraine . I’m starving as I’ve had two packs of ritz crackers and 2 pieces of toast in 4 days. My hubby is trying but he’s basically playing video games to ignore my illnesses. I’m starting to feel depression kicking in. Just needed to vent.
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Hi! I have never posted before but if anyone is looking for mutual support please feel free to reach out! #Depression #Anxiety #PTSD #Grief #Trauma #Diabetes #MentalHealth #ChronicIllness #Gastroparesis #MightyTogether #CheckInWithMe
3 reactions Hi, my name is krocco12. I'm here because I was recently diagnosed with gastroparesis
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My counselor actually told me about the groups! I'm 48. Fully wheelchair bound for 10 years this October. I had 3 spinal surgeries that didn't go well. Probably because of my undiagnosed EDS! In 20 covid hit me hard and it's been a roller coaster since. I have gastroparesis. I have an ileostomy and I'm fully IV fed. Fun right?? LOL
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I was diagnosed about 15 years ago with just so Neue hypoallergic pots gastroparesis and later on MCAS before that decades of what they called fibromyalgia con fatigue syndrome, many miscarriages, and a lot of what they call just happened to be bad luck medical situations. I was recently sent to a pain management Specialist by another pain management Doctor Who worked with my spine doctor. He wanted me to have a consult with this person this person went over my extensive medical history examined me, and I told him I do not have a history of being super flexible if anything always uncoordinated and clumsy While my some of my kids are very flexible and can do all those wrist and arm things that I cannot do he examined me as I’m dealing with yet another episode of a side joint syndrome and then looked at me and said you REDS you have been all this time Is this possible as for all these years the doctors have been trying to figure out where my just saw Denoia came from as mine has gotten worse and worse over the last few years I have many specialist, dealing with each part of my body for my gastroparesis for a neurologically, my proprioception and Gate and Balance And I’m very sensitive to all medication which I’ve been told could be my mass cell issues. I guess I’m just right now Steine after seeing so many doctors for so many years any input or thought would be very welcomed and appreciated. Bless you.
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About Pots,fibromyalgia,ehlers-danlos,&chronic-fatigue
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sue Lindsay
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Diagnosed EDS at 72 yrs ?
I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.
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About Pots,fibromyalgia,ehlers-danlos,&chronic-fatigue
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do you suffer from all 4..?? or have tips on how to manage them all at once?
94
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Anniecom
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sue Lindsay
1m
Diagnosed EDS at 72 yrs ?
I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.
6 reactions I’m still wondering if this is possible . I have dysautonomia diagnosed over 15 years ago, seen by some of the best was told I had pot hyper adrenergic form and a bunch of other initials. Fast forward a few years later the IBS was gastroparesis and the rashes were MCAS. Neurologically, they thought it was MS, but it wasn’t trouble with Balance gate and proprioceptor. Pain throughout my body has been as far back as I can remember. But having someone tell me this this far into the game now I’m just wondering is it really possible that no one picked it up until now or should I take this diagnosis with a grain of salt. I was referred to this specialist a pain management facility and this person has a special interest with EDS patients. Went over my complete medical history from childhood to now and had a family member take me and examine that person briefly who is very hyper flexible but I am not and that’s what always made me believe there could be no connection. Any opinions are appreciated. God bless you all.
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#Gastroparesis I spent yesterday evening on the bathroom floor in agony after eating a sandwich, I nearly passed out with the pain and lost all control while feeling extremely sick all on top of severe fatigue and weakness. Parents called for an ambulance but were told to put me in the car! No help came. I have been going through this for nearly 15 years and just told it is IBS. I am now afraid to eat and wondering how to survive this
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