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What is something you wish people knew about living with Crohn's?
What is something you wish people knew about living with Crohn's?
Your response may be used in an article or video on The Mighty.
4 comments
Inflammatory Bowel Disease (IBD)
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Inflammatory Bowel Disease (IBD)
Inflammatory Bowel Disease (IBD)
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Camp America
Has anyone done camp America with Crohn's disease or any other condition? I'd like to do it but after speaking with some camps I'm now a bit nervous because of how accommodating they can be. So anyone who has done it what insurance did you use? Roughly how much was insurance? How did it work with medications? How did you manage symptoms if any? And how supportive are camps and is it possible to get through it if having bad days with fatigue or other symptoms? #ChronicFatigue #CrohnsDisease #InflammatoryBowelDiseaseIBD
2 reactions Post
How do I get doctors to take me seriously?
These past four months have been one of the worst times of my life and I'm at a point where no doctor is helpful at all. The "it's all in your head" bullshit is stronger than ever right now. From both my family members and the doctors. I can't find any doctor at all that'll take me seriously. What do I do? I'm really desperate.
#Fibromyalgia #ChronicIllness #InflammatoryBowelDiseaseIBD #IrritableBowelSyndromeIBS #ChronicPain #Anxiety #Depression #ObsessiveCompulsiveDisorder
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11 comments
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I'm new here!
Hi, my name is BetsyS. I'm here because I want to learn more about MCAS, Ehlers-Danlos, Dysautonomia, and IBD.
#MightyTogether #Depression #Fibromyalgia #Crohn 'sDisease
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Tip Tuesday (&New Year's Eve)
Some "To Don'ts". Which one are you taking?
#AutismSpectrum #Agoraphobia #AnorexiaNervosa #Anxiety #Addiction #BipolarDisorder #BackPain #MentalHealth #ChronicFatigueSyndrome #CeliacDisease #Cancers #ChronicIllness #InflammatoryBowelDiseaseIBD #InterstitialCystitis #ADHD #EatingDisorder #Lupus #Grief #Schizophrenia #PTSD #JointHypermobilitySyndrome #MoodDisorders #NarcissisticPersonalityDisorder
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How do you explain or share about your Crohn's and/or UC with others?
Living with a health condition like Crohn’s disease or Ulcerative Colitis can be challenging, frustrating, painful, and uncomfortable. It can also be hard to know how much to share — or how to explain something that isn’t always visible but affects every aspect of your daily life.
Maybe you use medical terms to help others understand the seriousness of it. Maybe you simplify things to avoid long explanations. Or maybe you keep it private unless you really trust someone.
What’s your approach? How do you talk about your condition with friends, coworkers, or family members — and what helps those conversations go more smoothly?
#UlcerativeColitis #CrohnsDisease #InflammatoryBowelDiseaseIBD #CheckInWithMe #ChronicIllness #Spoonie #MentalHealth
4 reactions Post
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Exactly how I felt off my last appointment, but add to that extreme anxiety that made me physically sick to my stomach with the WORSE headache I ever had and feeling like screaming and crying and bundling up in a ball in my bed covers over me and just not participating in life for a bit... That's how I felt because I got diagnosed with yet ANOTHER autoimmune disorder... #autoimmunedisorders #SjogrensSyndrome #InflammatoryBowelDiseaseIBD #Gastroparesis #Gastritis #Colitis
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