What is something you wish people knew about living with Crohn's?
What is something you wish people knew about living with Crohn's?
Your response may be used in an article or video on The Mighty.
The Mighty is a safe, supportive community for people living with health challenges and the people who care for them.
What is something you wish people knew about living with Crohn's?
Your response may be used in an article or video on The Mighty.
The Mighty is a safe, supportive community for people living with disabilities and the people who care for them.
There can be a range of reasons why we may feel physical discomfort, pain, and fatigue while spending our days in bed—from health symptoms and muscle tension to stiffness, even stress. Finding relief and some level of comfort can be a constant challenge, but it’s also essential for maintaining a sense of balance.
For some, it may involve using supportive pillows or cushions to adjust their body alignment and alleviate pressure points. Others may find relief through gentle stretches or movement, when possible, or by using heating pads or cold compresses to soothe sore muscles. Breathing exercises or practicing regular hobbies can also help reduce stress and ease the mind, which in turn can ease physical discomfort.
Sometimes, it’s about creating a comfortable environment—adjusting room temperature or dimming lights to promote relaxation. And for many, reaching out to loved ones or healthcare providers for advice or support can provide both physical and emotional comfort.
What helps you manage physical discomfort, pain, or fatigue while you’re in bed?
#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #ChronicFatigue #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancers #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness
#alwaysinbed
Hi guys,
I have a theory that i cant find any research on. I have a question for you guys, but heres some background.
My mom has ulcerative colitis. It was really bad when I was a baby, she said 30 to 40 times a day. She was breastfeeding.
I have BPD, but was not subjected to any child abuse.
I have a theory that I was accidentally traumatized by my mom constantly having to put me in my crib to use the bathroom.
*** Does anyone else have IBD and a child with bpd? What is/was your experience?***
#UlcerativeColitis #Colitis #InflammatoryBowelDiseaseIBD #BPD #BorderlinePersonalityDisorder #UlcerativeColitis #psychology #Trauma
When I have flare up and too much pain I am like my cat today…….
#MentalHealth #mightycats #MightyPets #ChronicPain #ChronicFatigue #InflammatoryBowelDiseaseIBD
I feel tired. I feel weak. My body hurts. I've been on three rounds of steroids in the past month and two rounds of antibiotics. Between my UCTD (suspected lupus), the recurring GI issues that we're now suspecting as some form of IBD, and a bout of pneumonia, I'm worn. I'm exhausted. My mental health is great until I'm sick for weeks on end. How do you maintain mental wellness when your body seems to want to quit? #UndifferentiatedConnectiveTissueDisease #InflammatoryBowelDiseaseIBD
#Lupus
Sorry for the sudden absence!
I have a lot of things going on at the moment and have many milestones close together with appointments.
Biggest milestone is that I’m seeing a doctor for my left knee pain after three years!
I’m very nervous about the appointment though as I’m worried it’ll just be getting to know the doctor and the doctor getting know you with no treatment being done or recommendations or because I’m so young they’ll dismiss me.
I don’t know if it falls under health anxiety as I don’t think anything major is going on with me but rather I’m anxious about being dismissed or misunderstood.
I’m also in a lot of pain because of my stomach too, I have IBD, Crohn’s disease, and when it gets close to my infusions the pain just ramps up really bad to the point I can’t really bend over to pick something up for example.
But I’m being optimistic as my infusions will likely help and everything gets sorted out.
Sorry for my absence! 🦋
#InflammatoryBowelDiseaseIBD #CrohnsDisease #MajorDepressiveDisorder #GeneralizedAnxietyDisorder #ChronicIllness #ChronicPain