alwaysinbed

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    Jigsaw puzzles app.

    I’ve recently started doing jigsaw puzzles on an app on my iPad. Anyone else do these? They are a fun and fantastic distraction while in bed!
    Hope you are having a good day, Beddies! I wish you good days ahead and lots of reasons to smile
    Raven #ChronicIllness #ChronicDepression #ChronicPain #MultipleSclerosis #ChronicFatigue #Lupus #bedbound #alwaysinbed #Nerve and joint pain #Anxiety #AutoimmuneThyroidDisease #HypothyroidismUnderactiveThyroidDisease #TheMighty

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    In bed, in pain

    If you have Lupus, Fibromyalgia, and MS like I do, or if you have just any one of these three, I know you know the pain of muscle spasms in your ribs back shoulders and chest. Last night I was awoken at 1:30 in the morning to blinding excruciating pain. I dared to feed my horses their grain and give my husband a break and do about 10 minutes worth of pruning my plants yesterday. This is the cost.
    Why does it have to be SO painful?? It’s not like I bench-pressed a Buick or something!!
    Anyway, spending the day in bed watching tv and playing games on my phone ( one armed ). Giving my worse shoulder a bit of a break.
    Anyway, if anyone can relate, or lend some encouragement, I sure could use it today. This makes me so sad. I’m trying to stay grateful for my life and positive in my thoughts though.
    Smiles and hugs to you all,
    Raven
    💕💕💕

    #Fibromyalgia #MultipleSclerosis #Lupus #TheMighty #DistractMe #alwaysinbed #ChronicIllness #ChronicPain

    13 reactions 16 comments
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    What are your go-to movies, TV shows, books, podcasts, video games, etc. when you're having a rough symptom day?

    Happy Friday, friends! I hope you're all having a low-symptom day.

    However, when you do have a painful day or are experiencing lots of symptoms, what do you like to do? What movies or TV shows bring you joy?

    When I'm stuck in bed all day, I love to do crossword puzzles or play the same Nancy Drew computer games I've played a million times before. I'm also a big fan of rewatching my favorite Parks and Recreation episodes!

    So, my fellow zebras, what do you watch, read, play, or listen to when you have to take it easy?

    I'm looking forward to getting new recommendations!

    #EhlersDanlosSyndrome #POTS #CheckInWithMe #DistractMe #Spoonie #ChronicPain #ChronicFatigue #hypermobilityspectrumdisorder #alwaysinbed #Migraine

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    What’s your opinion on eating in bed? 🛌

    Finding the most comfortable place to eat can be tricky sometimes especially since there may be places where you prefer to eat and places that are off limits. What are your opinions on eating in bed? It’s likely unavoidable to eat in bed especially when most of your time is spent in bed because of health challenges, but some people have rules. Do you have rules in what foods you enjoy eating in bed vs. what foods you would prefer not to eat in bed? Do you eat everything in bed? Are there certain times of the day where eating in bed is ideal, while other times not so much?

    There is no wrong answers!

    Let's share in the comments below 👇

    #ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
    #Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis
    #IrritableBowelSyndromeIBS #InflammatoryBowelDiseaseIBD
    #ChronicEpsteinBarrVirus #MentalHealth #Depression #ChronicDepression #Anxiety #PanicAttack
    #InvisibleIllness
    #alwaysinbed

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    Have you started any new hobbies?

    Being in bed all the time can certainly encourage us to be a little creative in ways to keep ourselves from going stir crazy with boredom. Recently, I’ve started to sketch again. It’s been over 20 years since I’ve done so, so it’s like learning all over again, especially since I now have trouble with fine motor skills. I’ve done a tree, and I’m working on a squirrel ( see photo ) so far. It’s tough but I’m starting to get a groove going! Pretty excited about it.
    Have you guys started any new hobbies or projects that you’re doing from bed? Please share and let us know. It might just lend someone else don’t encouragement to try. Hope you’re having a great day, Beddies! #ChronicIllness #ChronicDepression #Neuropathy #PeripheralNeuropathy #Gastroparesis #Disability #bed #alwaysinbed #Lupus #MultipleSclerosis #BackPain #ChronicPain #MyalgicEncephalomyelitis #InflammatoryBowelDiseaseIBD #AutoimmuneDisease #DistractMe #MentalHealth #TheMighty

    14 comments
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    Functioning Under a Blanket of Apathy

    There is a reason why you can’t figure out what is spelled out in the picture. It isn’t actually writing at all. It is the path of a rodent burrowing beneath the snow on my patio, looking for the nuts and seeds it knows I scatter there regularly.
    Blinding apathy has been telling every fiber in my being not to leave My Nest for several years now. I battle with it every day and have been slowly improving. Seeing all of this faithful effort from a hungry little creature reminds me of me when I feel cut off from the world by my limitations but I try anyway.
    Get up with me today. Take some deep healing belly breaths and push yourself up off Your Nest. Break through the heavy blanketing suppressant of apathy and go let the sun shine directly on your face for a few minutes. Fill your lungs with some outdoor air. Or sit on the floor and remind your muscles what being stretched feels like. Dare to step into the shower and feel hot water run over you. Do something different today. Emerge and feel. Go find something you need. Share with us here if you did or if you couldn’t. Your Apathy Family is interested to know. ☀️🌻

    #apathy #Depression #Anxiety #Fibromyalgia #ChronicDepression
    #MajorDepression #BipolarDepression #alwaysinbed #couchpotato #struggling #ChronicFatigue #MyalgicEncephalomyelitis #sad #Grief

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    Jenny

    My lab mix Jenny. She stays on the bed with me all day. I have 6 pets in my house 3 belong to my husband and I and three belong to my adult daughter who lives with us. Jenny is the sweetest dog you’ll ever meet. She loves people and puts up with a lot from the cats. Her best friend is Ems, my tuxedo cat.

    #MightyPets #Fibromyalgia #Scoliosis #mightychristian #IBS #alwaysinbed #+others I can’t remember!!

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    This week’s Unique Bed

    Ok, I’m not sure I’d want to feel like part of a sandwich when I curled up into bed. But this bed is definitely unique. What a crazy cool idea! Pass the mayo and give me extra cheese, please! #ChronicIllness #ChronicDepression #ChronicPain #Neuropathy #Gastroparesis #Fibromyalgia #MyalgicEncephalomyelitis #BackPain #Pain #Disabled #DistractMe #TheMighty #bed #alwaysinbed

    4 comments