Joint Hypermobility Syndrome

After 20+ years, I feel like I’m getting close to answers on why life has been so hard from a health perspective. One speed bump ahead: a triage call with the only genetic testing option in my state. This clinic is overwhelmed with requests and incredibly hard to get into. It took me several tries and several doctor referrals before I made it to the “triage” list. Now I’m worried that I’ll be dismissed if I’m not super careful about every word I say. My doctors suspect I gave non-EDS hypermobility, and it would be incredible to know more of the why so that I can better adapt.

Has anyone gone through genetic testing / consulting for hypermobility? What was it like? Help.

#HypermobilitySyndrome #JointHypermobilitySyndrome

Hi, my name is Jackolidus. I'm here because

#MightyTogether #Depression #Anxiety #BipolarDisorder #JointHypermobilitySyndrome

I am so frustrated and have searched online to no avail as to how to deal with this but my hypermobility in my hands and wrists is causing so many issues with things I want to do (cooking, playing instruments and any other fine motor activities).

What should I be doing? I can't find any devices or anything that seems to help, there doesn't seem to be a way to remedy this and I don't want to give up more things I love to Chronic health problems and I feel like I'm almost there and I can't stand to lose something else--please someone help me!

#HypermobilitySyndrome #EhlersDanlosSyndrome #Hypermobility #handhypermobility #ChronicPain #JointHypermobilitySyndrome #Jointpain #HEDS

Spoke with the rehab doctor today. I did not fit the diagnosis criteria for hEDS due to skin qualifications. When I asked about HSD she dodged the question and said that this doesn't mean hypermobility isn't an issue.
My chart current says Polyarthralgia/ Polyarthritis with joint hypermobility. I just keep getting bounced around. Ugh.

#HypermobilitySyndrome #JointHypermobilitySyndrome
#Hypermobilespectrumdisorder

Hi, my name is scretladyspider, or you can call me Elle. I'm here because I live with a lot and I felt like I should share some of that with other people who do, too.

#MightyTogether #EatingDisorder #PTSD #ADHD #Depression #Anxiety #DerealizationDisorder #ChronicPain #ChronicIllness #JointHypermobilitySyndrome #BulimiaNervosa #DepersonalizationDisorder #Asthma #Endometriosis

#epilpsey Sezure awareness ; #MentalHealth
Hidden disbalty . Fribomlga warrior #LymeDisease #AspergersSyndrome / autism awareness! ADHD . #OsteogenesisImperfecta { brittle bones/ cognitive tissue disorder} hypersensitivity.
Sensory processing disorder! #JointHypermobilitySyndrome hypermobile Elers Danilo’s syndrome #RsdCrps