Joint Hypermobility Syndrome

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Joint Hypermobility Syndrome
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Help! My hypermobility in my hands and wrists is unmanageable!!

I am so frustrated and have searched online to no avail as to how to deal with this but my hypermobility in my hands and wrists is causing so many issues with things I want to do (cooking, playing instruments and any other fine motor activities).

What should I be doing? I can't find any devices or anything that seems to help, there doesn't seem to be a way to remedy this and I don't want to give up more things I love to Chronic health problems and I feel like I'm almost there and I can't stand to lose something else--please someone help me!

#HypermobilitySyndrome #EhlersDanlosSyndrome #Hypermobility #handhypermobility #ChronicPain #JointHypermobilitySyndrome #Jointpain #HEDS

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Anybody want to “diagnose” this ?

People with chronic illnesses are good at being professional patients. I have ME/CFS and suspect HSD. I’ve been having this issue for a month now. My eyes swell up and can be anywhere from normal but a little swollen to quite swollen with almost a welt? The skin also peels when the swelling goes down!Which is fun. It affects my eyes and only my eyes. The only thing I can put on it is this calendula olive oil salve I have, but anything else burns for obvious reasons. My first thought was contact dermatitis, but it’s inconsistent enough even when I cut things out that I’m suspecting otherwise. (Cutting out all my skincare and makeup for a while didn’t do basically anything).

In short, anyone have ideas? 😚💗thanks

#ChronicIllness
#MyalgicEncephalomyelitis
#JointHypermobilitySyndrome
#EhlersDanlosSyndrome

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Updated

Spoke with the rehab doctor today. I did not fit the diagnosis criteria for hEDS due to skin qualifications. When I asked about HSD she dodged the question and said that this doesn't mean hypermobility isn't an issue.
My chart current says Polyarthralgia/ Polyarthritis with joint hypermobility. I just keep getting bounced around. Ugh.

#HypermobilitySyndrome #JointHypermobilitySyndrome
#Hypermobilespectrumdisorder

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Just when you think you’ve heard it all…

It’s comments like these that can make a person wonder what it’s like to live in another person’s body. Is swaying a useful suggestion for anyone? Because it certainly wasn’t for someone living with frequent joint injuries and chronic pain.

#EDS #EhlersDanlosSyndrome #ChronicPain #ChronicIllness #JointHypermobilitySyndrome

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#ChronicIllness fighter . Living her best life! Overcomer ! #epilpseywarior Hidden Invisible Autitsc Striped zebra! With a creative mind!

#epilpsey Sezure awareness ; #MentalHealth
Hidden disbalty . Fribomlga warrior #LymeDisease #AspergersSyndrome / autism awareness! ADHD . #OsteogenesisImperfecta { brittle bones/ cognitive tissue disorder} hypersensitivity.
Sensory processing disorder! #JointHypermobilitySyndrome hypermobile Elers Danilo’s syndrome #RsdCrps

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Making A Statement

Hi everyone, I wanted to share an important press conference I was so grateful to be apart of. It was regarding my personal heath journey, and speaking out about the difficulties with health insurance. I wanted to speak out publicly for everyone who’s enduring this battle and to know you are not alone! Please watch www.facebook.com/share/v/p5zkjhmpFx9ASJi5
#Grief #Depression #BrainInjury #SpinalCordInjury #AlopeciaAreata #Anxiety #MentalHealth #Addiction #ChronicIllness #JointHypermobilitySyndrome #ChronicFatigue #Loneliness #MightyTogether

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