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My hands are very hyper mobile oof #JointHypermobilitySyndrome #EDS
Joint Hypermobility Syndrome
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Joint Hypermobility Syndrome
Joint Hypermobility Syndrome
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Would y’all in the #EhlersDanlosSyndrome community say this is hyper mobile? I’m working with my doctors to get an hEDS diagnosis. I have several hyper mobile joints as well as passing the Beighton Scale. Multiple other systemic issues as well - been diagnosed with POTS, Interstitial Cystitis, IBS and more. #EDS #JointHypermobilitySyndrome 🦓🦓🦓
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Can you relax like this?
This is my hope everyday that I can be as relaxed as this.
#EhlersDanlosSyndrome #JointHypermobilitySyndrome #HypermobilitySyndrome
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Tip Tuesday (&New Year's Eve)
Some "To Don'ts". Which one are you taking?
#AutismSpectrum #Agoraphobia #AnorexiaNervosa #Anxiety #Addiction #BipolarDisorder #BackPain #MentalHealth #ChronicFatigueSyndrome #CeliacDisease #Cancers #ChronicIllness #InflammatoryBowelDiseaseIBD #InterstitialCystitis #ADHD #EatingDisorder #Lupus #Grief #Schizophrenia #PTSD #JointHypermobilitySyndrome #MoodDisorders #NarcissisticPersonalityDisorder
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The constant battle between sweating and pain!
This is me every day!!!!! I am always hot and sweaty from my POTS but need the heating pad for my pain. My husband knows if I ask him to fetch my heating pad he needs to bring the fan as well hahaha #PosturalOrthostaticTachycardiaSyndrome #POTS #BackPain #EhlersDanlosSyndrome #ChronicPain #JointHypermobilitySyndrome #PolycysticOvarySyndrome
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Flare day
I took the dog and my baby on a walk this morning and pushed the stroller with one hand for TWO minutes of the walk. Cue wrist destroyed, major flare up and I will be enjoying this brace for at least a week. You would think I would learn and stop doing this to myself……… #EhlersDanlosSyndrome #HypermobilitySyndrome #JointHypermobilitySyndrome
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Anxiety about upcoming genetics consult re:hypermobility
After 20+ years, I feel like I’m getting close to answers on why life has been so hard from a health perspective. One speed bump ahead: a triage call with the only genetic testing option in my state. This clinic is overwhelmed with requests and incredibly hard to get into. It took me several tries and several doctor referrals before I made it to the “triage” list. Now I’m worried that I’ll be dismissed if I’m not super careful about every word I say. My doctors suspect I gave non-EDS hypermobility, and it would be incredible to know more of the why so that I can better adapt.
Has anyone gone through genetic testing / consulting for hypermobility? What was it like? Help.
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I'm new here!
Hi, my name is Jackolidus. I'm here because
#MightyTogether #Depression #Anxiety #BipolarDisorder #JointHypermobilitySyndrome
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Glimmers
A little walk in nature searching for glimmers and beauty. #EhlersDanlosSyndrome #JointHypermobilitySyndrome #Endometriosis #Osteoarthritis
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Thankful Thursday! ✨
It's that time of the week again! In the comments below, tell me three things you are thankful for.
#PTSD #MentalHealth #BipolarDepression #BipolarDisorder #Anxiety #Addiction #ADHD #ObsessiveCompulsiveDisorder #Depression #ChronicFatigueSyndrome #Lupus #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Schizophrenia #TouretteSyndrome
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