Joint Hypermobility Syndrome

#epilpsey Sezure awareness ; #MentalHealth
Hidden disbalty . Fribomlga warrior #LymeDisease #AspergersSyndrome / autism awareness! ADHD . #OsteogenesisImperfecta { brittle bones/ cognitive tissue disorder} hypersensitivity.
Sensory processing disorder! #JointHypermobilitySyndrome hypermobile Elers Danilo’s syndrome #RsdCrps

I was diagnosed with "Hyper mobile Joint Syndrome" when I was in college in my 20s, but in the last 20 years, the only other thing specialists have been able to come up with are two other auto immune disorders (Sjogrens & Fibromyalgia). A few have wondered about some sort of EDS but none have actually been serious enough to look into it.
Any advice? I'm tired of being so sick and not knowing what's going on. Alot of symptoms aren't explained by my current diagnoses.
#JointHypermobilitySyndrome #

So my question is this:
Is it possible to request for a specific manufacturer of a generic formula when I’m ordering my prescription OR at least request not to receive a specific manufacturer when getting my prescription filled?

Does a provider need to make the request OR can I request it only if agreeing to pay for any out of pocket cost?

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To give a little more background: I recently had my coverage changed, and when I received a refill of my prescription medication, the manufacturer company was different. While I have been able to receive generic instead of brand name medication for my prescription without much difference in effectiveness, this has been the first time I’m noticing that not only a difference in appearance.
I’ve received the same manufacturer company of the generic formula for several months until this month’s prescription. This “new” manufacturer has different appearance that seems to use a dye or coloring that gives an unpleasant taste. While I’ve overlooked this at first, I have noticed I don’t seem to be getting the same benefit from my medication now as I had with the previous manufacturer’s product.

I’m uncertain if the manufacturer changed because my coverage plan changed or if this was just something that changed in general based on stock at the pharmacy. But I’m starting to feel fairly certain that whether its the inactive ingredients used or the formula for this generic manufacturer, it is not being effective now. What I suspect most is that since the product itself looks different in coloring and that dye causes a noticeably horrible taste (which causes my body to feel repulsed), the inactive ingredients are likely the cause impacting the effectiveness of the medication for me. Simply - my body isn’t tolerating the inactive ingredient of the color dye used by this other manufacturer, causing the medication to be ineffective in treating what the product is supposed to treat.

And if this helps with providing an answer: my prescription is for ADHD medication - I take extended-release generic capsules of generic formula adderall. I have not had brand-name adderall dispensed for years, so I do not think it’s simply the generic formula that is impacting this change. Although I guess different manufacturers can still have different generic formulas?
#Medication #ADHD #JointHypermobilitySyndrome #Fibromyalgia #ChronicFatigue #Migraine #multiplehealthconditions

Do any of you other #EhlersDanlosSyndrome #EDS #JointHypermobilitySyndrome experience these types of subluxation? Do you reset them yourself (like I do)? Does it feel like it affects your breathing? It feels like I'm breathing through a bent straw at times. My top row of teeth shift around left right and forward and backward and I often wake up with it messed up from sleeping. My cheek bones sometimes need to be pulled back together towards the center of my face. Even my eye socket and brow bones need to be shifted back in. It gets so overwhelming when there is nothing that stays in place on its own. Can any one else relate to these particular issues?

Essentially people get weirded out by talking about dislocation like its normal… but if you dislocate and bruise stuff on a daily basis … it kinda becomes your normal?

Finding out for most people this isnt normal… is a bit reeling especially trying to figure out what everyone else calls “Pain.” And how to notice something as “Pain.”

Im dxed Hypermobile I am trying to get on a 5+ year waitlist for an Eds diagnosis with the only Geneticist in my area… however until then I only have hints that make me suspect Eds over hypermobility mostly GI comorbidities.
#EhlersDanlosSyndrome #JointHypermobilitySyndrome #HypermobilitySyndrome #ChronicFatigue #ChronicIllness #ChronicPain (I think?)

I have been diagnosed with POTS, hypermobility, CRPS, thoracic outlet syndrome and (a few other things that may or may not be related).

My new neurologist diagnosed me with migraines. I believe that diagnosis fits better than occipital neuralgia, which is what previous neurologist diagnosed me as having.

My new neurologist prescribed Emgality because I have been having 2-3 moderate to severely painful migraines per week. I just took my first double dose today. I was wondering if anyone here has taken it, what side effects (if any) you experienced, and did it work for you?