This is me every day!!!!! I am always hot and sweaty from my POTS but need the heating pad for my pain. My husband knows if I ask him to fetch my heating pad he needs to bring the fan as well hahaha #PosturalOrthostaticTachycardiaSyndrome #POTS #BackPain #EhlersDanlosSyndrome #ChronicPain #JointHypermobilitySyndrome #PolycysticOvarySyndrome
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I took the dog and my baby on a walk this morning and pushed the stroller with one hand for TWO minutes of the walk. Cue wrist destroyed, major flare up and I will be enjoying this brace for at least a week. You would think I would learn and stop doing this to myself……… #EhlersDanlosSyndrome #HypermobilitySyndrome #JointHypermobilitySyndrome
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After 20+ years, I feel like I’m getting close to answers on why life has been so hard from a health perspective. One speed bump ahead: a triage call with the only genetic testing option in my state. This clinic is overwhelmed with requests and incredibly hard to get into. It took me several tries and several doctor referrals before I made it to the “triage” list. Now I’m worried that I’ll be dismissed if I’m not super careful about every word I say. My doctors suspect I gave non-EDS hypermobility, and it would be incredible to know more of the why so that I can better adapt.
Has anyone gone through genetic testing / consulting for hypermobility? What was it like? Help.
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Hi, my name is Jackolidus. I'm here because
#MightyTogether #Depression #Anxiety #BipolarDisorder #JointHypermobilitySyndrome
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A little walk in nature searching for glimmers and beauty. #EhlersDanlosSyndrome #JointHypermobilitySyndrome #Endometriosis #Osteoarthritis
It's that time of the week again! In the comments below, tell me three things you are thankful for.
#PTSD #MentalHealth #BipolarDepression #BipolarDisorder #Anxiety #Addiction #ADHD #ObsessiveCompulsiveDisorder #Depression #ChronicFatigueSyndrome #Lupus #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Schizophrenia #TouretteSyndrome
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I am so frustrated and have searched online to no avail as to how to deal with this but my hypermobility in my hands and wrists is causing so many issues with things I want to do (cooking, playing instruments and any other fine motor activities).
What should I be doing? I can't find any devices or anything that seems to help, there doesn't seem to be a way to remedy this and I don't want to give up more things I love to Chronic health problems and I feel like I'm almost there and I can't stand to lose something else--please someone help me!
#HypermobilitySyndrome #EhlersDanlosSyndrome #Hypermobility #handhypermobility #ChronicPain #JointHypermobilitySyndrome #Jointpain #HEDS
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People with chronic illnesses are good at being professional patients. I have ME/CFS and suspect HSD. I’ve been having this issue for a month now. My eyes swell up and can be anywhere from normal but a little swollen to quite swollen with almost a welt? The skin also peels when the swelling goes down!Which is fun. It affects my eyes and only my eyes. The only thing I can put on it is this calendula olive oil salve I have, but anything else burns for obvious reasons. My first thought was contact dermatitis, but it’s inconsistent enough even when I cut things out that I’m suspecting otherwise. (Cutting out all my skincare and makeup for a while didn’t do basically anything).
In short, anyone have ideas? 😚💗thanks
#ChronicIllness
#MyalgicEncephalomyelitis
#JointHypermobilitySyndrome
#EhlersDanlosSyndrome
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Spoke with the rehab doctor today. I did not fit the diagnosis criteria for hEDS due to skin qualifications. When I asked about HSD she dodged the question and said that this doesn't mean hypermobility isn't an issue.
My chart current says Polyarthralgia/ Polyarthritis with joint hypermobility. I just keep getting bounced around. Ugh.
#HypermobilitySyndrome #JointHypermobilitySyndrome
#Hypermobilespectrumdisorder
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Hi, my name is scretladyspider, or you can call me Elle. I'm here because I live with a lot and I felt like I should share some of that with other people who do, too.
#MightyTogether #EatingDisorder #PTSD #ADHD #Depression #Anxiety #DerealizationDisorder #ChronicPain #ChronicIllness #JointHypermobilitySyndrome #BulimiaNervosa #DepersonalizationDisorder #Asthma #Endometriosis
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