Merld

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    I did something❣️

    I started a blog. It's a free one for now. I am looking at the plans for annual payment. Hoping this will bring in some money in so I feel I am #doingimportantworkagain .
    I have only posted two blogs so far.
    queenmoonbeam.wordpress.com if you want to check them out. I have a rating and feedback option.
    This last one about #Merld was a harder and linger blog. We #startedtheJourney in 2010... so, there was a ton of information to organize off my FB MERLD page. I am hoping that even though I feel like I missed something, I got all if the information into the #Blog . I feel it would be helpful if it is easily found in one spot.

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    Accomidations in chaos

    Accomidations in this chaos are few and far in between. I don't participate in any extra #chaos . Our home is one with a variety of thins already going on on a daily bases.... people struggling.
    We are a home it a fully disabled Army combat wounded veteran with the inability to work. So, you're talking... #intervert , #PTSD , extra #Depression because he is still able to work in his mind and told he can't, #TraumaticBrainInjury , #PhysicalMedium , #SleepApnea , #closterphobic (in certain situations), #HearingLoss ... and what other #Undiagnosed issues he had prior.. besides #temperment . To add to it... the oldest (teenager) in our home also has a variety of issues...#ADHD , #Merld , #GAD , #undiagnosedasd , #odd , #RaynoldsSyndrome , #mildDyslexia , #boarderlineBiploar ... #sensitive #empath
    Next, a seven year old. He is Super tall for his age and has tons of #growthspurts along with everything else. He is a #SensitiveEmpath with #PTSD and signs of #SPD (#SensoryProcessingDisorder ). He may also have #auditoryprocessing issues. He receives #OT , #St , and #SociaWork services.
    Next is a smart, stubborn, five year old; and a smart, overly active three year old. You are lucky if they keep their shoes on most the time anywhere. 💯🤪🤣
    With all the professional knowledge from my college years (associates degree) and learning from friends I have in the higher up professions of environmental control, Industrial Hygene, constitutional attorney... it also makes me not want to play along with all the chaos that occurs in our current world, let alone make my kids participate.
    Healthcare facilities are being able to break all laws, oaths, and rules they want currently because the ADA is doing nothing just as OSHA has been doing. Instead of helping prevent illness, they are spreading it more. They refused my 7yo this summer from a tick bite, instead of looking at his hip to see it if was #LymeDisease that required antibiotics. Then, I had to fight with them at ER showing my wide knowledge to get my child help.. stressing us out in the process. He was so #anxious the was tightly gripped on my arm as we wanted the room to get seen. He needed #antibiotics .
    Recently, my husband whom had a #spinesurgery last year was to be seen by his primary #NP . She refused a virtual appointment, and refused to see him in person without a mask 😷. He knows masks at these levels don't work for virual (#mocksuits #biochemicalsuits ), gets #clisterphobic , aren't going by #FederalPPEGuidlines , and already is having issues breathing (#musclespasms around his esophagus and #lockjaw ). He asked if they ever tried breathing through a pillow because it is how he will feel with a mask on if he here to wear one. (Plus. Some of those are put together in dirt.. and dipped in chemicals.) My husband was terminated of their care and not allowed to come back to #Bronson . When he got looking at our chart information... our WHOLE family was #terminatedofcare from #BronsonHealthSystem .

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    VeteranWifeLife

    #veteranwifelife is NOT easy. Nothing about it is easy and it is often #drainingonmultiplelevels .I am a mom, a wife, a caregiver, an advocate, a teacher, a Nanny, an assistant.... I am these things for him and the four kids we have. This is work many get paid lots to do. I get no monies for this. It is not covered by the V.A. or insurance. I get no respite care, or breaks. My husband has been deemed #perminatelydisabled by the VA... but, only for #PTSD and not his other issues, as they have #refusedtoclaimthoseissues . The VA doctors have agreed and noted they are from him being a #combatveteran around guns and bomb... loud noises and super bright lights ( #nightblindness ).
    Out of our four kids in the home... two are special in some form. #PTSD #Merld #developmentallydelayed #Autism #Dyslexia #ADHD #GeneralizedAnxietyDisorder #OppositionalDefiantDisorder #raynaudssyndrome

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    The Journey with my #Merld

    Not many people know about #Merld (mixed expressive-receptive language disorder). Most that get this diagnosis are ones going into the ER with #swhile ,everehesdtrauma. While there are some, 6%, whom are #bornwithit ... like my son.
    I had a hard pregnancy... not just because of my son's stubbornness. I was engaged for 3 years... and had things going okay. Then, we started fighting a ton. I was ready to end the relationship, when I found out I was pregnant. During this time, my treatment from my fiancé started getting worse. I had panic attacks... I was pushed, punched... I was in a fight for me and my unborn child. I had never been hit until now. I often wonder... if this is what caused my son's issues he has. I know some are genetic... but I wonder about the Merld one with this the most, as it is the fontal lobe that is affected and causes these issues.

    I new when my son was young that he had something going on. he would get anger bursts as a baby. He was evaluated at age 5 by the U of M for Autism. He was denied... with videos of his outbursts and all his delays. It was $150 out of pocket and I was a struggling single mom. I was working 2 to 3 jobs at the time.
    I was told my son's issues were caused by me from relatives. I was given crazy looks from teachers. However, I kept fighting for my son, as his proper education is important to me. I knew how hard being different growing up is. I also grew up around my special cousins. I knew that something inside my son was not connecting
    My son was diagnosed at 5 years old with ADHD and MERLD at Lifeways in our home town. He was seen there from 2010 until 2017.
    As he has grown, he has gotten more issue that we have seen and brought attention to. ASD tendencies (He is still high functioning for this and doesn't meet enough markers for an official diagnosis... limiting the help he is eligible for.), mild dyslexia, Generalized Anxiety, ODD, Sensory issues, Sleep apnea, Raynaud's Syndrome (https://draxe.com/health/raynauds-syndrome/ )....
    Some of these issues he will grow out of like his sleep apnea... and hopefully his Raynaud's Syndrome. He was recently told he no longer needs his sleep apnea machine (c-pap). I am hoping that his Raynaud's will be the same. If not... he has circulation socks and gloves.
    So up to this current day... Our freshman son reads above this district's average (thanks to a k12.com school - MGLVA that helped him in 4th grade). He still has some dyslexic issues in Math. History this year was horrible for him and it is his favorite subject.
    I will always be an advocate for m children. I have one rule... that they try their hardest to learn and do their best. I will not help unless they have not tried first. I refuse to do the work for them.
    I have thought about doing a blog for my MERLD ... but, I have no clue about blogs. I think it would not only help others, but my Merld son. Any suggestions on the blog?

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