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    Anyone with #PosturalOrthostaticTachycardiaSyndrome ran a fever 🤒 when water in a shower has been run over your head?

    Do any of you #Potsie s run a fever when you take a shower? Spike in heartrate? Drop in blood pressure? You think that you may pass out? But, if you take a bath it isn't as bad, but you find your hygiene suffering? I find that even taking a bath, I have to cover my head with water. What do you do to get through this? I'm on medication, but I can't go on a higher dose cuz of side effects. You know how people feel so "refreshed" and "revitalized" after a shower; that's not me. I feel such a itchy and sticky feeling - like I had just gotten back from the gym (and I don't use hot water - so it's not dry skin) - does anyone else have this? or my heartrate goes even higher afterwards and during. It's not when I get my body wet, just my head. Or I will run a temperature about 100°F for no other reason. And no hot water. Does this happen to you, too? I absolutely hate the way that a shower makes me feel in regards to physical symptoms. I hate that I can't take a shower before a doctor's appointment, because then I'd run a fever when I got there and they'd make me get a covid test (which would normally make sense - so I just don't take a chance).

    So, who else with #PosturalOrthostaticTachycardiaSyndrome or any other #ChronicIllness has a terrible reaction to water being ran over top your head? Horrible, huh?!

    #Anxiety #Depression #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion #Potsie #BipolarDisorder #Bipolar1Disorder

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    Is anyone else scared to sleep with the lights out?

    My sleep doctor has a fit everytime that we discuss this. But, trauma has caused me to need to sleep with the lights on. Does anyone else have this problem?Even a lamp won't do. I feel like the light is a warm blanket. Does anyone have any suggestions for getting through this? My sleep hygiene is horrible 😫.

    #Anxiety #Depression #BipolarDisorder #PTSD #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Upallnight #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion

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    What's your FAVORITE comfort beverage? Mine is Chicory Coffee ☕️!!!!!

    So pull up a mug/glass/cup and chill with the Shanster!!!! Allow yourself to take some comfort in yourself and enjoy a special warm or cold beverage that meets your fancy!!!! 😃😃😃😃😃

    #Anxiety #Depression #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #COVID19 #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #funactivities #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion #Comfort #warmth #Love #caring

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    Someone Share Something HAPPY with me cuz I am feeling a little Down

    Hi All! I am relatively new here and I need some motivation and happy thoughts sent my way! One of my friends ditched me the other day and told me that, I was annoying and hasn't spoken to me since. I am taking this hard. I want to be positive and am hoping that you guys could tell me about all the happy things going on with you ❤️!!!! Happy and fun hobbies! Anything that just makes you smile 😃! Maybe music 🎶? Anything really? I just need some cheerful words!

    #Anxiety #Depression #Bipolar1Disorder #BipolarDisorder #PsoriaticArthritis #Narcolepsy #Gastroparesis #small intestine bacteria overgrowth sibo #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #COVID19 #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #funactivities #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion

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