Can we start a thread on coping skills for dealing with the sensory overload that goes hand in hand with chronic illness? We are constantly in a state of overwhelm in a room all by ourselves, and when you add in daily life and all of the outside stimulation… life just sometimes gets to be too much. I’m just curious to see what other warriors do to survive and keep their sanity in tact.
A little backstory: I’ve basically been on a journey to find myself and figure out my place in the world since well my whole life. But due to a car accident in 2006 that resulted in a TBI, I’ve been living with un-acknowledged amnesia and I forgot my self. I recognized all my loved ones, and I remembered how to do basic life skills… But I forgot the essence of me, including all my childhood memories. However, the subconscious works in amazing ways and my amnesia was recently cured. Granted it was cured bit by bit over the last almost 16 years via signs from the universe, and triggered memories. The most recent traumatic experience I endured was a narcissisticly abusive relationship, that I thankfully escaped, but I’m pretty damaged from it. On this healing journey I’ve been on since April, I’ve realized a number of things about my inner workings. I have A LOT of sensory processing issues that I’m trying to figure out how to live life with. I’ve discovered I’m dyslexic, and suffer with dysphasia. I also have figured out the reason I hold on to all my traumas and can’t forget them, is because I have Hyperthymesia, an autobiographical memory, emotions and all. I was diagnosed with ADD in elementary school, ADHD in high school, but truth be told I’m pretty sure I have Asperger’s. Also a little Williams-Buren because I want everything to be happy and loving in my life, I can’t thrive in chaos.
So I will kick off the thread by sharing my coping skills:
Art & Journaling
Loose fitting clothing
Calming music/ocean sounds
Teaching myself ukulele
Munching on a healthy snack
Researching medical reasons for my oddities
Shaving my head
My electric blanket
Watching documentaries on Netflix
Learning to set and honor my own personal boundaries.
Please share yours tricks and tactics for navagating life, feel free to share links for products you can’t imagine getting through life without too! #ChronicIllness #InvisibleIllness #HEDS #POTS #NMH #Fibromyalgia #MyalgicEncephalomyelitis #neurodivergent #MentalHealth #sibo #TraumaticBrainInjury #learningtocope