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    Sick tax

    I missed the deadline for trading in my phone and now have to pay $400 more for my phone. I have had a tough month, just started on LDN for pain and I've been meaning to send it in. I've been super anxious and just couldn't bring myself to do it until today. I think I am four to five days late. I hope they have a grace period, but at this point I think I am just fated to never have any money. I spend $200 out of pocket a month for an out of network doctor, $250 for vitamins that are supposed to help, now my LDN is $65. My rent is going up and I have three roommates. I am never going to be able to live by myself. FML. #Anxiety #Depression #ChronicPain #sibo

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    How do you cope with life?

    Can we start a thread on coping skills for dealing with the sensory overload that goes hand in hand with chronic illness? We are constantly in a state of overwhelm in a room all by ourselves, and when you add in daily life and all of the outside stimulation… life just sometimes gets to be too much. I’m just curious to see what other warriors do to survive and keep their sanity in tact.

    A little backstory: I’ve basically been on a journey to find myself and figure out my place in the world since well my whole life. But due to a car accident in 2006 that resulted in a TBI, I’ve been living with un-acknowledged amnesia and I forgot my self. I recognized all my loved ones, and I remembered how to do basic life skills… But I forgot the essence of me, including all my childhood memories. However, the subconscious works in amazing ways and my amnesia was recently cured. Granted it was cured bit by bit over the last almost 16 years via signs from the universe, and triggered memories. The most recent traumatic experience I endured was a narcissisticly abusive relationship, that I thankfully escaped, but I’m pretty damaged from it. On this healing journey I’ve been on since April, I’ve realized a number of things about my inner workings. I have A LOT of sensory processing issues that I’m trying to figure out how to live life with. I’ve discovered I’m dyslexic, and suffer with dysphasia. I also have figured out the reason I hold on to all my traumas and can’t forget them, is because I have Hyperthymesia, an autobiographical memory, emotions and all. I was diagnosed with ADD in elementary school, ADHD in high school, but truth be told I’m pretty sure I have Asperger’s. Also a little Williams-Buren because I want everything to be happy and loving in my life, I can’t thrive in chaos.

    So I will kick off the thread by sharing my coping skills:
    Art & Journaling
    Loose fitting clothing
    Calming music/ocean sounds
    Teaching myself ukulele
    Keeping hydrated
    Munching on a healthy snack
    Researching medical reasons for my oddities
    Medical cannabis
    Shaving my head
    My electric blanket
    Watching documentaries on Netflix
    Learning to set and honor my own personal boundaries.

    Please share yours tricks and tactics for navagating life, feel free to share links for products you can’t imagine getting through life without too! #ChronicIllness #InvisibleIllness #HEDS #POTS #NMH #Fibromyalgia #MyalgicEncephalomyelitis #neurodivergent #MentalHealth #sibo #TraumaticBrainInjury #learningtocope


    I Need Some Positive Words ... Feeling a little down ...

    What is something positive that you could share with a chick that needs to feel a little more upbeat? I want to get out of this funk so much. Anything POSITIVE or encouraging or motivating is welcome. Or if you need to vent, that's okay, too!

    #Anxiety #Depression #BipolarDisorder #Bipolar1Disorder #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Narcolepsy #prolactinoma #sibo #smallintestine bacteriaovergrowthsibo #RaynaudsPhenomenon #LeukocytoclasticVasculitis
    #SpinalStenosis #Lumbarfusion #SpinalFusion


    Oh lol

    Cardiologist says I have tachycardia, so that's fun.
    Also did a breath test and it turns out I have SIBO so I'm currently getting treated for that (icky tho).

    They did an abdominal ultrasound that showed mild enlargement of my liver (benign so my doc isn't worried about it) and a small non-obstructive kidney stone.

    It's been a while since I've been on antibiotics so I gotta ask - while I'm on antibiotics (doxycycline and flagyl), can I eat normally throughout the day (when my appetite exists)?

    #sibo #Tachycardia #HEDS #antibiotics #questions


    Significant Others taking on too much

    How do you navigate what is too much for your significant other in terms of support? #sibo #Depression #Anxiety


    Anyone with #PosturalOrthostaticTachycardiaSyndrome ran a fever 🤒 when water in a shower has been run over your head?

    Do any of you #Potsie s run a fever when you take a shower? Spike in heartrate? Drop in blood pressure? You think that you may pass out? But, if you take a bath it isn't as bad, but you find your hygiene suffering? I find that even taking a bath, I have to cover my head with water. What do you do to get through this? I'm on medication, but I can't go on a higher dose cuz of side effects. You know how people feel so "refreshed" and "revitalized" after a shower; that's not me. I feel such a itchy and sticky feeling - like I had just gotten back from the gym (and I don't use hot water - so it's not dry skin) - does anyone else have this? or my heartrate goes even higher afterwards and during. It's not when I get my body wet, just my head. Or I will run a temperature about 100°F for no other reason. And no hot water. Does this happen to you, too? I absolutely hate the way that a shower makes me feel in regards to physical symptoms. I hate that I can't take a shower before a doctor's appointment, because then I'd run a fever when I got there and they'd make me get a covid test (which would normally make sense - so I just don't take a chance).

    So, who else with #PosturalOrthostaticTachycardiaSyndrome or any other #ChronicIllness has a terrible reaction to water being ran over top your head? Horrible, huh?!

    #Anxiety #Depression #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion #Potsie #BipolarDisorder #Bipolar1Disorder

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    Is anyone else scared to sleep with the lights out?

    My sleep doctor has a fit everytime that we discuss this. But, trauma has caused me to need to sleep with the lights on. Does anyone else have this problem?Even a lamp won't do. I feel like the light is a warm blanket. Does anyone have any suggestions for getting through this? My sleep hygiene is horrible 😫.

    #Anxiety #Depression #BipolarDisorder #PTSD #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Upallnight #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion

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    What's your FAVORITE comfort beverage? Mine is Chicory Coffee ☕️!!!!!

    So pull up a mug/glass/cup and chill with the Shanster!!!! Allow yourself to take some comfort in yourself and enjoy a special warm or cold beverage that meets your fancy!!!! 😃😃😃😃😃

    #Anxiety #Depression #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #COVID19 #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #funactivities #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion #Comfort #warmth #Love #caring

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    Someone Share Something HAPPY with me cuz I am feeling a little Down

    Hi All! I am relatively new here and I need some motivation and happy thoughts sent my way! One of my friends ditched me the other day and told me that, I was annoying and hasn't spoken to me since. I am taking this hard. I want to be positive and am hoping that you guys could tell me about all the happy things going on with you ❤️!!!! Happy and fun hobbies! Anything that just makes you smile 😃! Maybe music 🎶? Anything really? I just need some cheerful words!

    #Anxiety #Depression #Bipolar1Disorder #BipolarDisorder #PsoriaticArthritis #Narcolepsy #Gastroparesis #small intestine bacteria overgrowth sibo #sibo #sbbo #ObsessiveCompulsiveDisorder #Undiagnosed #COVID19 #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #funactivities #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion


    What indicators do you have that you shouldn't push yourself?

    I was exhausted. My bf and I were supposed to go out on a Saturday night but after a long drawn out process of getting up and ready for the day I just couldn't rally my energy. We decided to have a night in, After going back to bed and sleeping for a while I thought getting out might at least keep me awake. I suggested we go to the grocery store for snacks.

    It started out mostly normal. I was counting the blocks until we got there. Rationing energy and trying to make it just a bit longer. But once we got in the store I had vivid fantasies of sitting on the ground. Sometimes just sitting down and crying, sometimes just imaging what people would do if I sat down in the middle of a grocery store. A couple fantasies about what people would do if I passed out, but those happen more when I actually feel faint or ill, and not exhausted. I was leaning on anything I could possibly do without knocking over.

    I made it through and we walked home, but afterwards I realized how intense those fantasies were compared to other times when I push myself. It's normally a fleeting thought here and there. This time it was all I could concentrate on. I think this is a fairly good indicator that I was pushing myself too much that night. What are your thoughts?

    #Depression #Anxiety #sibo #ChronicFatigue