prolactinoma

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    I Need Some Positive Words ... Feeling a little down ...

    What is something positive that you could share with a chick that needs to feel a little more upbeat? I want to get out of this funk so much. Anything POSITIVE or encouraging or motivating is welcome. Or if you need to vent, that's okay, too!

    #Anxiety #Depression #BipolarDisorder #Bipolar1Disorder #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #Narcolepsy #prolactinoma #sibo #smallintestine bacteriaovergrowthsibo #RaynaudsPhenomenon #LeukocytoclasticVasculitis
    #SpinalStenosis #Lumbarfusion #SpinalFusion

    30 people are talking about this
    Community Voices

    Anyone with #PosturalOrthostaticTachycardiaSyndrome ran a fever 🤒 when water in a shower has been run over your head?

    Do any of you #Potsie s run a fever when you take a shower? Spike in heartrate? Drop in blood pressure? You think that you may pass out? But, if you take a bath it isn't as bad, but you find your hygiene suffering? I find that even taking a bath, I have to cover my head with water. What do you do to get through this? I'm on medication, but I can't go on a higher dose cuz of side effects. You know how people feel so "refreshed" and "revitalized" after a shower; that's not me. I feel such a itchy and sticky feeling - like I had just gotten back from the gym (and I don't use hot water - so it's not dry skin) - does anyone else have this? or my heartrate goes even higher afterwards and during. It's not when I get my body wet, just my head. Or I will run a temperature about 100°F for no other reason. And no hot water. Does this happen to you, too? I absolutely hate the way that a shower makes me feel in regards to physical symptoms. I hate that I can't take a shower before a doctor's appointment, because then I'd run a fever when I got there and they'd make me get a covid test (which would normally make sense - so I just don't take a chance).

    So, who else with #PosturalOrthostaticTachycardiaSyndrome or any other #ChronicIllness has a terrible reaction to water being ran over top your head? Horrible, huh?!

    #Anxiety #Depression #PsoriaticArthritis #Narcolepsy #Gastroparesis #sibo #sbbo #ObsessiveCompulsiveDisorder #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #prolactinoma #PolycysticOvarySyndrome #Migraine #SpinalStenosis #SpinalFusion #Lumbarfusion #Potsie #BipolarDisorder #Bipolar1Disorder

    6 people are talking about this
    Community Voices

    Is anyone else scared to sleep with the lights out?

    <p>Is anyone else scared to sleep with the lights out?</p>
    49 people are talking about this
    Community Voices

    What's your FAVORITE comfort beverage? Mine is Chicory Coffee ☕️!!!!!

    <p>What's your FAVORITE comfort beverage? Mine is Chicory Coffee ☕️!!!!!</p>
    34 people are talking about this
    Community Voices

    Someone Share Something HAPPY with me cuz I am feeling a little Down

    <p>Someone Share Something HAPPY with me cuz I am feeling a little Down</p>
    51 people are talking about this
    Community Voices
    Community Voices

    Does anyone know any alternatives to coffee ☕ (that tastes similar to coffee)?

    <p>Does anyone know any alternatives to coffee ☕ (that tastes similar to coffee)?</p>
    56 people are talking about this
    Community Voices

    6+ Months Opioid Free!!!! HOORAY!!!

    It's been a long journey to this point, but I have survived being off prescribed opioid medications for over 6 months! It seems like time has flown by. I have dealt with some serious pain after coming off the opioids. But, thank the good Lord for Gabapentin!!!! I don't know if I would have made it without it. But, then again, I know that I am STRONG AND MIGHTY!!!! And so are you!!!!! If you are struggling with tapering off pain medication, then you may be tapering too fast. I did it very slowly, under a physician's guidance. YOU CAN DO THIS!!!! BELIEVE IN YOURSELF!!!! I KNOW THAT THE PAIN IS REAL! To anyone suffering, you have my love and prayers!!!!
    #Anxiety #Depression #ChronicIllness #AnkylosingSpondylitis #Narcolepsy #LivingWithPOTS #PosturalOrthostaticTachycardiaSyndrome #Bipolar1Disorder #PsoriaticArthritis #ChronicPain #Migraine #Endometriosis #Lumbarfusion #SpinalStenosis #SpinalFusion #prolactinoma #Love #Medication #Recovery #PolycysticOvarySyndrome #PudendalNeuralgia #Undiagnosed #GastroesophagealRefluxDisease #IrritableBowelSyndromeIBS - C

    23 people are talking about this
    Community Voices

    Prayers for Tigger Needed!!!!

    <p>Prayers for Tigger Needed!!!!</p>
    46 people are talking about this
    Community Voices

    Who Else Totally Binged Yesterday & Now Feels So Shameful About It? #EatingDisorders

    Thanksgiving is supposed to be a joyous time for family and friends. However, if you have an eating disorder, it can prove to be very challenging!!!! Normally I am extremely restrictive about my food intake. Yesterday, I was surrounded by comforting people and comfort food and I really binged big time. I couldn't stop eating. No matter how much I tried, I would go back to the fridge and heat up leftovers. I even ate dessert for breakfast this morning, cuz I spent the night at my cousin's house. I was completely out of control. So, when I got home around Noon today, I started restricting. But, in a very negative way. I let myself have an apple and some crackers all day. I drank a ton of water. I kept thinking that the water would magically cleanse my body of all the calories that I had ingested. I am not doing well. I want to cry. I don't want to spiral out of control. I think making this post has helped some already. Any advice for me?
    #Anxiety #Depression #ChronicIllness #AnkylosingSpondylitis #Narcolepsy #LivingWithPOTS #PosturalOrthostaticTachycardiaSyndrome #Bipolar1Disorder #PsoriaticArthritis #ChronicPain #Migraine #Endometriosis #Lumbarfusion #SpinalStenosis #SpinalFusion #prolactinoma #Love #Medication #Recovery #PolycysticOvarySyndrome #PudendalNeuralgia #Undiagnosed #IrritableBowelSyndromeIBS #GastroesophagealRefluxDisease #AnorexiaNervosa #BingeEatingDisorder #BingeEating
    #EatingDisorders

    17 people are talking about this