I've been icing my hand to cope with the joint pain. I had blood work from rheumatologist that can back "all normal" for RA. Next step is MRI on my hand. He thinks it's possible I have fibromyalgia. What am I supposed to do without a diagnosis?
Hi, I saw my new pain doc yesterday. She prescribed me LDN or Low Dose Naltrexone. Has any one been on it? What was/is your opinions. I took it for the first time last night and about an hour later felt awful. I can’t quite discribe it, just an all over unwell feeling. I even was in tears for a bit. I always have very vivid dreams, so that wasn’t new and I woke up with a horrible migraine. Will these ease up? I have messaged my doc, but wanted real life opinions from people who have or are using LDN.
Thanks! #Depression #Fibromyalgia #ChronicPain
#Arthritis #SeronegativeRA #Migraine #BrainFog #HighlysensitivePerson #Anxiety
Not that I'm trying to contradict my orthopedic doctor, but... Wah? I just got diagnosed with hEDS in February and now my doctor believes I may also have #SeronegativeRA.
Does this explain my even further aches? Weight gain cause just walking down the stairs hurts? Or is it just another label that in reality is just EDS?
Just seems weird to me, but worst case, I just get a rheumatologist on my team.
I'm 16 and have been suffering with swollen locking and stiff knees for about a year and a half. Recently it spread to my ankles and now my fingers. I have been referred to see a rheumatologist this Thursday in the adult area. I've had blood tests and I don't fully understand it but they've come back positive for swelling but negative for RA. I'm also nauseous, losing weight and incredibly fatigued so pretty sure I have seronegative RA. Just wondering what to expect at the hospital and if I might have to stay in overnight (I have a fear of blood, needles and hospitals so really hoping not)
Finally got two possibilities for diagnosis seronegative ra or spondyloarthritis, mixed feelings. getting humira shipped soon, so desperate for a somewhat normal existence I’m willing to stick myself with a needle. These nodules on my joints are painful and everything is an effort some days I just want it to be done and wonder why I bother. Not suicidal just feeling aimless and stuck in hell inside my own body. Most days I’d rather not even get out of bed but I know if I do the stiffness will subside a bit....
I would love to hear from you if you have and any tips you may have for dealing with it! Thanks!!☺️
My rheumatologist is treating me as if I have RA & ankylosing spondylitis (methotrexate and Simponi Aria infusions), but didn’t want to formally diagnose me with either because I’m seronegative.
#ChronicIllness #ChronicPain #Seronegativespondyloarthropathy #spondylitis #spondyloarthropathy #AnkylosingSpondylitis #SeronegativeRA #Pain #Advice #Spoonie #seronegative #Methotrexate #BackPain #simponiaria #Biologics
After 2 years, I finally have added rheumatoid arthritis to my list! So... 9 tubes of blood today. Yuck! Then depending how those inflammation levels and such look, she wants another set of xrays of my hands. And then we’ll decide if I stay on methotrexate, or we make the switch over to Humira shots. #RheumatoidArthritis #SeronegativeRA #Fibromyalgia #Migraine #Anxiety #Depression
Redoing my meds for the week is my ritual on Sunday nights. I just stocked up on all the vitamins and supplements that help keep my inflammation & c reactive protein down + my daily meds i take. This is just what i feel like sending people when i hear “have you tried Tylenol?”, yeah i take Tylenol as needed but that’s just the tip of the iceberg and it sureeeeeee isn’t a cure 🙄🙄
#RheumatoidArthritis #AutoimmuneDisease #InflammatoryArthritis #Arthritis #SeronegativeRA
I have swollen hands and twisted fingers. I have weak thumb joints that constantly sprain at the slightest thing. I’m also a musician - flute and piano
My GP thought I might have #SeronegativeRA my Rheumatologist said no, it’s more likely to be #CRPS . I’m not so sure! I had #ThoracicOutletSyndrome on my left side and I wonder if it could be that on my right side.
My #HypermobilitySyndrome just confuses everything!!
Any thoughts or ideas?
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