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Hi, my name is PancakeSalad. I've been diagnosed with #EhlersDanlosSyndrome #EDS #Ehlers #EhlersDanlos #HEDS #SmallFiberNeuropathy #SFN #MCAS #MastCellActivationDisorder
Hi, my name is PancakeSalad. I've been diagnosed with #EhlersDanlosSyndrome #EDS #Ehlers #EhlersDanlos #HEDS #SmallFiberNeuropathy #SFN #MCAS #MastCellActivationDisorder
I am a 41 year old single mom of three amazing sons and a chronic illness warrior. I have been diagnosed with Small Fiber Neuropathy (SFN), Rheumatoid Arthritis(RA), Chronic Fatigue Syndrome, Irritable Bowel Syndrome (IBS), Reynard’s Disease, Hashimoto’s, Exocrine pancreatic insufficiency(EPI), chronic pain, migraines, and daily chronic headaches and anxiety. I have an upcoming appointment at the end of August to see a cardiologist as I have had two abnormal EKGs. #MightyTogether #HashimotosThyroiditis #SFN #RheumatoidArthritis #ChronicFatigue #ChronicDailyHeadache #ExocrinePancreaticInsufficiency #IrritableBowelSyndromeIBS #ChronicIllness #ChronicPain #Migraine #Anxiety
I’m not new here, but this is my first time expressing myself. I was first Dx w/ Fibromyalgia in 2013, I didn’t let it define me! I was hit hard in 2018 with #Gastroparesis . A few months later, Hypermobile Ehlers Danlos Syndrome (although I knew I had #hypermobileehlers-DanlosSyndrome(hEDS), I just didn’t know it was a disease… I was a gymnast childhood - early HS). Then came one diagnosis after another. Whammo!!! #POTS , #MCAS , Small Fiber Neuropathy, etc,. So from 2018-Present. I have 15 confirmed diagnosed chronic diseases. I have not driven in a little over 2 yrs b/c of POTS & fainting, & it really sucks!!
All of my local friends have gone. My college roommates (7) & I have a daily group chat going. Nobody (1 roommate does) ever checks in with me to see how I am. Everyday I’m completely #Fatigued . I have #ChronicPain everywhere!!! I’m #nauseous . I have #chronicdiarrhea & #chronicconstipation . I have #ChronicMigraines It hurts to walk. The rapid electric zaps from the #SFN is excruciatingly painful. My #RheumatoidArthritis & my #Osteoarthritis & now #Facetarthritis in my cervical spine has become so debilitating.
I don’t want to be a downer, but I would friends/family just to text & say "Hi, I was just thinking about you, I hope today is better than yesterday… remember I always love you!" This way they don’t have to ask how I am doing, thereby don’t get an answer full of negativity, but at least I know that I’m still in their thoughts!
I’m angry. I’m depressed. I’m sad. I’m lonely. I’m #housebound . I’m bored.
Being #chronicallyill totally sucks! Yeah, I’m having another #pityparty
SIGN THE PETITION! ppls.ac/jenncare PLEASE SHARE!
UnitedHealthcare Bragged about $8.1 B in profit in 3 mos. made from people who pay them for health coverage. Their money model relies on denying people care–like Rights & Democracy NH member Jenn, who needs the care to manage serious illness.
SIGN THE PETITION ppls.ac/jenncare ! PLEASE SHARE!
#careovercost #CRPS #crpsawareness #CRPSWarrior #SFN #SmallFiberNeuropathy #peopleoverprofit