Spinal Muscular Atrophy

Living with a rare condition doesn’t mean life stops — it just means life looks different. At 29, this software engineer is building a career, traveling the world, getting married, and giving back — all while living with spinal muscular atrophy. In this powerful personal story, he shares how planning, consistency, and advocating for himself have helped him shape a life on his own terms.

👉 Read his story: What Adulthood with SMA Has Really Looked Like: One Patient’s Story and learn about the importance of advocating for personal health.

Sponsored by Genentech.

#SpinalMuscularAtrophy #RareDisease #ChronicIllness

Hi, my name is Supercrip. I'm here because I have come to a dead end trying to access help with my malformation of the spinal cord C6-T3. I have spastic diplegia and muscle wastage in legs and arms, particularly hands. I have Horner’s syndrome and autonomic dysreflexia. Spinal cord units in NSW, Australia will only accept people with spinal injuries caused from trauma not congenital.

#MightyTogether #SpinalMuscularAtrophy

Burnt-out from the ignorance that comes from the mouths of so called trained medical professionals whom attended society's schools to acquire a stamp of approval that they specialize in whatever 🙄 and obtained A DEGREE.

#Allergies #SpinalMuscularAtrophy #Anxiety #GastroesophagealRefluxDisease #SpinalStenosis #ChronicFatigueSyndrome #BrainInjury #MentalHealth #CardiovascularDisease #RheumatoidArthritis #Osteoporosis #Peripheral #InflammatoryBowelDiseaseIBD #InflammatoryArthritis #CrohnsDisease