Thyroid Cancer

Hi, my name is Pabby1. I'm here because
I wanted to share a poem about my thyroid cancer that says it all#MightyTogether

Hi, my name is Unicornkween. I'm here because I’m feeling alone. Recent breakup of long term relationship. just beat thyroid cancer in Febuary. Having weight loss surgery the end of the month. No real support so nerves just getting to me…

#MightyTogether #Anxiety #Migraine #AutismSpectrumDisorder #alpha-1AntitrypsinDeficiency #Obesity #Epilepsy

Hi, my name is Queeniebelle1969. I'm here because I have struggled with depression high functioning for most of the past 35years, and RA for 21 years. That with thyroid cancer when my 2nd son was 9 months old. It’s all been very overwhelming. I also have a partner who doesn’t understand how to support me, although he is very well read he doesn’t seem to have much compassion for me. He has literally closed the door on my invisible illness and I feel very alone.

I’ve lost my career at the same place for 27 years with Covid, along with it I lost friends o thought I’d have until I died.

I find myself very lonely, living 2 hours from my home in Manhattan and although it’s beautiful where I live I am in the boonies and have very few adult contacts. I just dont know how i managed to survive and function for so many years. Im in a hole i cant seem to get out of. Anysuggestions are welcome.

Queenie needs her groove back !!

#MightyTogether #Anxiety #Depression #RheumatoidArthritis

Hi, my name is nmzhyperthyroidism74. I'm here because I am going through treatment for my hypothyroidism. I currently have had my left thyroid removed along with some abnormal growths on my parathyroid. One did have thyroid cancer. I am going through surgery this fall to remove my right side thyroid. My first surgery to remove the diseased side was life-changing. My energy has increased while my pain has decreased. The second surgery is for precautionary reasons. I am currently taking thyroid medication and calcium. My body is regulating to normal as it should. Life is improving and wonderful. I'm curious if anyone has gone through this on this forum.

#MightyTogether

#ThyroidCancer I was diagnosed with papillary thyroid cancer in 2016 and had a total thyroidectomy. The endocrinologist said RAI was not necessary. Eight years later in 2024, my neck ultrasound is clear but annual bloodwork shows my thyroglobulin number is up from 0.0.0.1 (zero point one) to 0.8, so my endocrinologist recommends radioactive iodine treatment. Has anyone been in this position with RAI treatmemt years after TT? I’m nervous the thyroid cancer is back and wondering what this means for my prognosis and survivability.

I have lived a number of years with multiple chronic/incurable conditions. This week I finished my assessment with my new therapist and in-addition to validating all the existing mental health diagnoses I knew already, she gave me a tentative new one of Borderline Personality Disorder.

Now, other than having seen "Girl Interrupted" I didn't know much about what BPD actually is. The more I've learned though, the more moments from my past have started to make sense. A lot of "ah-ha" moments for me this week.

#BorderlinePersonalityDisorder  #Anxiety #Depression  #PTSD  #MentalHealth  #Fibromyalgia  #ChronicFatigueSyndrome  #MyalgicEncephalomyelitis  #ChronicFatigue  #ChronicPain #BreastCancer  #ThyroidCancer #PanicAttacks  #PanicAttack #ChronicIllness

Well, I finally got a diagnosis. I thought I had multiple sclerosis, with all my symptoms. Turns out I have thyroid cancer with secondary hyperparathyroidism. Not what I was expecting at all. It’s a relief to finally know and I do love that there’s a plan moving forward. I’ll likely be okay, after they remove my thyroid. It’s just weird when your diagnosis is not what you were expecting AT ALL. #Cancer #thyroid #Hyperparathyroidism #MultipleSclerosis

I begin another week-long tour at the Mayo Clinic today - my third trip so far. I'm having surgery for a rare thyroid cancer and I'm also having more tests and seeing the neurologist for my rare neurological disorder. My neuro treatment isn't going well, and I may need an uptick in intensity. Dealing with two disorders, both in the acute phase, at the same time is really draining me. I also tend to shut down my feelings when I have so many action steps to take, so they all flood me when I leave Mayo and things slow down. The next 2-3 weeks are going to be quite difficult.

Hi! I have 5 children and I’m 42. In 2006 my daughter had her stem cell (unrelated ) bone marrow transplant. She did very well long story short she is now 22 and has had skin cancer and was treated with removing the cancer. Now she was just diagnosed with thyroid cancer. Also something is going on with her liver, continuos elevated liver enzymes. We’re waiting on results from a ct at this time. February 12 she sees the doctor for a surgical consult and then will receive radiation
I’m worried since there still isn’t much research on how they are doing as adults
Also my youngest son has another inherent disease called hyperlipidemia. He sees a cardiologist annually to see when he will need medication for this. My daughter was diagnosed by geneticists. I requested a referral today to see a geneticist to see what I’m predisposed to. (I took my data from ancestry and uploaded it to genapp. And it’s loaded with all the genetics stuff. I have 9 dominant disease that I carry (not sure which will be the one that affects me)
I plan to show the geneticists. My whole family has all sorts of disorders mental and physical and quite a bit are hard to diagnosi. Especially with the auto immune area

Has anyone done this? Does anyone have an adult child after their transplant ? I would love to know how they are doing…any advice or tips?
Thank you

Chronic Regional Pain Syndrome aka CRPS is yet another poorly understood, pernicious illness that disproportionately impacts women and girls. In this case, it led to an utter fucking nightmare for both the patient, Maya, and her family. The film expertly depicts the hell that results when physicians don't believe the patient and wrongfully dismiss debilitating physical symptoms.

It might hit too close to home, so proceed accordingly.

I've been too ill to write here for the past two weeks--the symptoms from the M.E., cancer, and heart attack are currently wreaking utter havoc w/in my body. So maybe it was an odd choice to watch Take Care of Maya tonight. On the other hand, I believe information is power and that it's valuable to keep learning how and why a medical system that's ethically and legally obligated to help instead too often harms so many of us:

www.youtube.com/watch

Day 45 of 365

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #cfsisamisnomer #ThyroidCancer #Cancer #CRPS #chronicregionalpainsyndrome #ChronicIllness #HeartAttack