Thyroid Cancer

#ThyroidCancer I was diagnosed with papillary thyroid cancer in 2016 and had a total thyroidectomy. The endocrinologist said RAI was not necessary. Eight years later in 2024, my neck ultrasound is clear but annual bloodwork shows my thyroglobulin number is up from 0.0.0.1 (zero point one) to 0.8, so my endocrinologist recommends radioactive iodine treatment. Has anyone been in this position with RAI treatmemt years after TT? I’m nervous the thyroid cancer is back and wondering what this means for my prognosis and survivability.

I have lived a number of years with multiple chronic/incurable conditions. This week I finished my assessment with my new therapist and in-addition to validating all the existing mental health diagnoses I knew already, she gave me a tentative new one of Borderline Personality Disorder.

Now, other than having seen "Girl Interrupted" I didn't know much about what BPD actually is. The more I've learned though, the more moments from my past have started to make sense. A lot of "ah-ha" moments for me this week.

#BorderlinePersonalityDisorder  #Anxiety #Depression  #PTSD  #MentalHealth  #Fibromyalgia  #ChronicFatigueSyndrome  #MyalgicEncephalomyelitis  #ChronicFatigue  #ChronicPain #BreastCancer  #ThyroidCancer #PanicAttacks  #PanicAttack #ChronicIllness

Well, I finally got a diagnosis. I thought I had multiple sclerosis, with all my symptoms. Turns out I have thyroid cancer with secondary hyperparathyroidism. Not what I was expecting at all. It’s a relief to finally know and I do love that there’s a plan moving forward. I’ll likely be okay, after they remove my thyroid. It’s just weird when your diagnosis is not what you were expecting AT ALL. #Cancer #thyroid #Hyperparathyroidism #MultipleSclerosis

I begin another week-long tour at the Mayo Clinic today - my third trip so far. I'm having surgery for a rare thyroid cancer and I'm also having more tests and seeing the neurologist for my rare neurological disorder. My neuro treatment isn't going well, and I may need an uptick in intensity. Dealing with two disorders, both in the acute phase, at the same time is really draining me. I also tend to shut down my feelings when I have so many action steps to take, so they all flood me when I leave Mayo and things slow down. The next 2-3 weeks are going to be quite difficult.

Hi! I have 5 children and I’m 42. In 2006 my daughter had her stem cell (unrelated ) bone marrow transplant. She did very well long story short she is now 22 and has had skin cancer and was treated with removing the cancer. Now she was just diagnosed with thyroid cancer. Also something is going on with her liver, continuos elevated liver enzymes. We’re waiting on results from a ct at this time. February 12 she sees the doctor for a surgical consult and then will receive radiation
I’m worried since there still isn’t much research on how they are doing as adults
Also my youngest son has another inherent disease called hyperlipidemia. He sees a cardiologist annually to see when he will need medication for this. My daughter was diagnosed by geneticists. I requested a referral today to see a geneticist to see what I’m predisposed to. (I took my data from ancestry and uploaded it to genapp. And it’s loaded with all the genetics stuff. I have 9 dominant disease that I carry (not sure which will be the one that affects me)
I plan to show the geneticists. My whole family has all sorts of disorders mental and physical and quite a bit are hard to diagnosi. Especially with the auto immune area

Has anyone done this? Does anyone have an adult child after their transplant ? I would love to know how they are doing…any advice or tips?
Thank you

Chronic Regional Pain Syndrome aka CRPS is yet another poorly understood, pernicious illness that disproportionately impacts women and girls. In this case, it led to an utter fucking nightmare for both the patient, Maya, and her family. The film expertly depicts the hell that results when physicians don't believe the patient and wrongfully dismiss debilitating physical symptoms.

It might hit too close to home, so proceed accordingly.

I've been too ill to write here for the past two weeks--the symptoms from the M.E., cancer, and heart attack are currently wreaking utter havoc w/in my body. So maybe it was an odd choice to watch Take Care of Maya tonight. On the other hand, I believe information is power and that it's valuable to keep learning how and why a medical system that's ethically and legally obligated to help instead too often harms so many of us:

www.youtube.com/watch

Day 45 of 365

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #cfsisamisnomer #ThyroidCancer #Cancer #CRPS #chronicregionalpainsyndrome #ChronicIllness #HeartAttack

Hi, my name is cornwoman1. I've been diagnosed with

#MightyTogether #BipolarDisorder #PTSD #Anxiety , catatonia, diabetes, hypertension, TMJ, c-spine injury, Acquired Brain Injury, thyroid cancer, multiple myeloma, asthma, chronic bronchitis, GERD, duodenal ulcer, chronic pain

One of my closest friends just checked in because she knew there were still more tripwires with UW Medicine today--phone calls and MyChart messages that seemed specifically designed to go in circles--and because she has lived her own version of this story, she knows firsthand it's grueling.

So, she said to text her my grocery list tomorrow and that she'll pick up everything when she's running errands.

This is basically Nobel-level friendship--seriously, why no prizes for stuff like this?--and I love her so freaking much.

My physicians seems to have no clue whatsoever that living with Myalgic Encephalomyelitis, thyroid cancer, ongoing radiation complications, severe Orthostatic Intolerance, and the aftermath of a small heart attack can be dicey most days. They're obtuse in a way that'd be awe-inspiring if it weren't so dangerous.

But I still have many loved ones who do, in fact, get it--my mom checked in today, too--and I'm deeply, unendingly grateful.

Day 20 of 365

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #pwme #cfsisamisnomer #ChronicIllness #ThyroidCancer #Cancer #Disability #Love

Mark Twain once wrote, "Give a man a reputation as an early riser and he can sleep 'til noon."

For a long time, UW Medicine was known as a top-tier medical facility.

But in recent years--and this started before the pandemic--they've been on a downward slide. One of their residents even confided in me last year that UW's lack of communication among clinicians was alarming to her.

Today was a loooooooooonggggg day, so I'll leave you with this:

UW Medicine is, at this point, definitely a late sleeper.

I'm curious to learn how much longer they can coast on their reputation as an early riser.

Day 19 of 365

#MyalgicEncephalomyelitis #ThyroidCancer #Cancer #ChronicFatigueSyndrome #cfsisamisnomer #pwme #Disability #ChronicIllness