visual snow syndrome

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Long COVID Fear Advice?

Evening everyone! I was wondering if anyone had any advice on dealing with anxiety regarding long COVID. I am so scared of my family developing long COVID. As someone who lives with chronic fatigue and numerous other symptoms, one of my greatest fears is my family experiences what I experience. My brother and I have both had COVID this past week or so (I’m actually finishing isolation tomorrow morning) and my brother (who finished iso about 3 days ago) has just told me that he is still experiencing shortness of breath and was feeling quite tired today.
I completely understand that it is early days and this is likely very common, but my logical brain isn’t winning over my anxiety at the moment and my anxiety has suddenly spiked to the point I can’t fall asleep! I often experience anxiety such as this - I’ve been told I am ‘highly sensitive’/‘an empath’ who often takes on other peoples emotions/feels strong emotions about things other people are experiencing. I hope that makes sense 😖 ❤️ Does anyone have any advice on how to deal with this fear?? Thank you so much for reading this! I hope you are all staying safe!! ❤️Sending hugs to all of you!
#ChronicIllness #ChronicFatigue #JointHypermobilitySyndrome #EhlersDanlosSyndrome #ADHD #VisualSnowSyndrome #ObsessiveCompulsiveDisorder #COVID19 #longcovid #Anxiety #MentalHealth #Disability

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What are your favourite quotes to help with life overwhelm ?

Hello lovely people! How are you all?
It’s my last day of my holidays and despite my best efforts to cheer myself up and get inspired and motivated for this semester, I’m still feeling a little…overwhelmed. Overwhelmed about returning to University, all the things I have to do, all the academic stuff, and how my body is going to cope with all that (particularly after just having had COVID) and just life in general.

Anyway, whenever I feel like this I always find quotes really helpful - little sayings I can remind myself of when I have tough moments. So, I was wondering…what are your favourite quotes about life with chronic illness overwhelm or just life in general??

Image Description: the image is of a quote in simple black font on a white background. The quote reads “To greet a lovely morning, we must leave the night behind.” The quote is credited to Tarang Sinha. Image Credit is to Pinterest and the website

#ChronicIllness #ChronicFatigue #JointHypermobilitySyndrome #EhlersDanlosSyndrome #hypermobileehlers-DanlosSyndrome(hEDS) #ADHD #VisualSnowSyndrome #InspirationalQuotes


I'm new here!

Hi, I’m RareMN. I’m new to The Mighty and look forward to learning more and making connections, especially those who share my diagnosis of visual snow syndrome (VSS) or who are processing trauma related to the medical system.





#Fibromyalgia #Vss #VisualSnowSyndrome


New to the community.

I was diagnosed with CRPS, VSS and FMD between 2 and 3 years ago, in the last year I've been diagnosed with high blood pressure, high cholesterol, NAFLD. I'm trying my best to hold it together put on a brave face sadly the cracks are showing, I applied for PIP but they don't seem to think I'm disabled enough to warrent PIP support even though I've got more Zebras than I care for.

Thanks for reading.

#ComplexRegionalPainSyndrome #VisualSnowSyndrome #functionalmemorydisorder


Polyphagia and Chronic Fatigue?

Does anyone else experience polyphagia (extreme, or in my case, constant ‘hunger’ that is not eased by eating) due to their chronic fatigue? I’ve put hunger in quotation marks because, for me, I don’t think it’s ‘hunger’ as such. I think it’s my brain’s response to my fatigue. “Ooh I’m tired. What do humans do when they need energy? Eat and sleep. Sleep doesn’t help so let’s try eating!” Rough example of what I imagine my brain’s internal monologue is like. 🤪😂 I’ve been told that people with chronic fatigue experience this, but I haven’t found too many other people with similar experiences so I thought I’d ask on here! ☺️Sending hugs to everyone - hope you’re all doing okay ❤️❤️

#ChronicFatigue #MyalgicEncephalomyelitis #ChronicIllness #ObsessiveCompulsiveDisorder #Depression #Anxiety #ADHD #VisualSnowSyndrome #Migraine
#EhlersDanlosSyndrome #JointHypermobilitySyndrome


#Depression #Anxiety #MentalHealth #BodyDysmorphicDisorder #Fibromyalgia #MyalgicEncephalomyelitis #VisualSnowSyndrome #ChronicPain

I honestly feel so broken down, mentally & physically. Nothing is getting any better. Suffered for years and it only gets worse. I feel there is no hope. Stuck in bed every day, miserable & in pain. It’s the same thing day after day, no relief. It’s a horrible existence.