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How did your Sunday Night End For You?

When I ate at Mcdonalds yesterday it gave me a mild food allergy they have on the window that if your allergic to shellfish then there foods sometimes comes in contact with it.. and I guess that was the time.. was kind of hard to breath for the rest of the day... late last night took some children's liquid allergies medicine... that helped a bit.... when I get older I may need a epée pen but not that bad yet.. #BPD #BorderlinePersonalityDisorder #Anxiety #PTSD #Bipolar #MentalHealth

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Hi! I’m new here.

Hi everyone!

I was recently officially diagnosed with MCAS (mast cell activation syndrome) after a rare reaction to a nerve block prior to my styloidectomy. The wildest part? You could literally see the nerve path light up on my neck (photo attached)! My neurosurgeon, Dr. Bolognese, said it was an extremely rare presentation.

Before diagnosis, I had been managing seasonal allergies with daily low-dose Pepcid AC and Xyzal, plus Benadryl as needed when hives flared up. Now that we know what’s going on, my PCP is collaborating with an allergist at the clinic to dial in a more appropriate treatment plan.

My MCAS seems to flare hard with weather changes — which has had me seriously considering a move to the Southwest for more environmental stability. But if I can manage symptoms effectively without uprooting my life, that would be amazing.

I’d love to hear from others — what’s helped you get symptoms under control? Is there a go-to protocol or routine that works for you?

Thanks in advance, and feel free to check my profile if you’re curious about the rest of my journey. I’m so glad to be in this community.

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I'm new here!

Hi, my name is Fidelifia. I'm here because I last week had a severe attack of what the doctor's think may be Menieres. I've lost all hearing on one ear and am very dizzy and fatigued. After reading about the decease I understand that I probably have been struggling with it for several years already, without understanding it. I'm here to learn and hopefully also get some hope.(From before I am already diagnosed with morphea/limited schleroderma, and also struggle with a lot of allergies and asthma. So maybe I also can learn more on these conditions later.)

#MightyTogether #Meniere 'sDisease#Scleroderma

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#newhere #Masscellactivationdisorder #FoodAllergies #alergictoeverything

Hello I'm new. My name is Susan. I have many many allergies. Food, medicine, outdoor you name it. What drew me here was a picture of someone that breaks out when they have surgery. I do this sometimes are worse than others. This is the most recent. Is there anything I can do.?

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Freelance Work

As some of you may know from my previous post, I am on a medical leave from my retail job due to a herniated disk in my lower back. I also suffer from several chronic illnesses (fibromyalgia, CFS, chronic migraines, endometriosis, interstitial cystitis, degenerative disc disease and numerous allergies and sensitivities) and I had a cervical fusion and a non-cancerous mass removed from my spine a few years ago that left me with nerve damage in certain areas. Due to the back injury my other conditions have spiraled out of control and I’m realizing that I may not have the ability to return to my retail job once my medical leave ends. So I have been researching other kinds of money making options and freelance work keeps popping up. I’ve been looking into Fiverr and Upwork and I’m wondering if any of you have any experience with it that you could share? Trying to figure out if it would be an effective way to earn some income. Any input would be appreciated!

#ME /cfs
#Fibromyalgia
#chronicmigraine
#InterstitialCystitis
#DegenerativeDiscDisease
#Nervedamage
#Endometriosis
#Allergies
#cervicalfusion
#ChronicIllness

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Annoyed

This is just part of a convo I had with my rheumatologist when I’ve been dealing with a flare and eye rashing for over a week with my aymptoms getting progressively worse - I go to her to see what we can do, she has me do blood tests, and they come back normal. Ofcoarse. So annoying. She says maybe it’s an allergic reaction and I said hey lady - if you looked thru my medical records you’d see that I’ve been thru this before. I’ve already seen an allergist and don’t all the tests. That’s why it’s so important to get this done again when the rash presented itself again. It’s not allergies. It’s an immuno response, possibly a seronegative one. Shouldn’t we then look at doing other things to try to figure this out? Like a skin or muscle biopsy? Also, can I get prednisone or something to make myself not feel like DEATH so I can survive like a real human being and not go from my bed to my couch all day? I literally told her I don’t think she gets the severity of this. I’m so sick of putting my trust in sssomeobe and they just let me down like this. A total let down. Am I to suffer is my eye trashing and bodily pain and extreme fatigue until I can get another appointment with you for you to just tell me you want to stop there? There there’s nothing else you can do? That it all must be in my head since my blood tests are fine? I’m so. Fucki g. Sick. Of this run around. SO sick of it. That is all. End rant. Good night.

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I'm new here!

Hi, my name is Standingtall77. I'm here because I have been diagnosed with Undifferentiated Connective Tissue Disease, Fibomyalgia and a long list of food allergies … I was already living with Asthma, Hypertension, Migraine, Tinnitus and Nasal allergies and now have few more to live with.. I don’t know anyone around me who has or knows about the auto immune disease or fibromyalgia… everything I have to read online … here it will help me understand and deal with my conditions better knowing that I am not alone ..

#MightyTogether #Migraine #Fibromyalgia

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nasal polyps and what they feel like

##I'm wondering if there is anyone on here who has, or has had, nasal polyps. If you have sneezing with it, what is it like, and how does it differ from sneezing from allergies or a cold? Over a year ago, I suddenly got a tickle in my upper right side of my nose that causes constant hard sneezing. I've tried taking allergy meds, but they don't seem to help much now. It seems to be kind of improved when I have gotten more sleep, and I don't know if the symptoms of nasal polyps are influenced by sleep. But the sneezing is getting worse. I've run out of ENT docs to go to about this (I tried going to them about my issue that could be causing this, too, with no success), and I'm afraid to go to them, just to have them say that I have a cold. (Can you have a cold that lasts over a year?) So any insight you can give would greatly help.

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medical answers- a rant

in 2020 the world shut down. allong with that my body shut down, and im only now finding answers. ive always had flexible joints and a weak immune system, along with other random stuff. in may or june 2020 i was in the hospital with almost anaphylactic allergies, which have since then been labled as idiopathic anaphylaxis. i started getting joint pain, that were labled as growing pains due to my age. i had such bad stomach issues i couldnt eat and was labled as anorexic, i started passing out and they were labeled as anxiety attacks. i also started getting migraines where i couldnt see out of one eye and was in intense pain, in 2023 i went to see a neurologist, got put on meds for my migraines, and got referred to reumotology and endocrinology. i went to rumatology a few months ago, got referred to physical therapy, and only yesterday i went to PT and got a tentative EDS diagnosis and told i need to go see my primary care for a full diagnosis.
im frustrated that im only being taken seriously now. i might need knee surgery due to how damaged one of my knees are, im having to relearn how to stand and walk correctly. my health went downhill intensely in 2020 and got labled as mentally ill as a kid, now that i have a voice im learning how much me not being taken seriously has caused my body.
Im pissed and wish i could just be healthy.

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