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    What tips do you have for enjoying the outdoors with chronic illness?

    Living with a chronic illness or disability doesn’t mean you can’t go outside to explore or have adventures, but planning and preparing is key (and something not a lot of non-disabled people even realize).

    What are some tips and tricks that help you prepare for outside activities?

    🗺️ Need a few others? Check out Amy Denton-Luke’s new Mighty story here: 5 Tips for Exploring the Outdoors With Chronic Illness

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

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    I’m new here!

    Hi, my name is jenroush77. I'm curious about recovery for open heart surgery.

    #MightyTogether #Anxiety #Fibromyalgia #PTSD #CoronaryHeartDisease #HeartDisease #Lupus #PulmonaryArterialHypertension

    4 comments
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    I’m new here!

    Hi, my name is maddieh04. I'm here because I am trying to make new friends and know I’m not alone!

    #MightyTogether #Anxiety #Depression #AutismSpectrumDisorder #PTSD #ehlers-DanlosSyndrome #NeurocardiogenicSyncope #HeartDisease #congenitalheartdefect/Disease #ChronicDailyHeadache #MentalHealth

    5 comments
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    I’m new here!

    Hi, my name is maddieh04. I'm here because I am trying to make new friends and know I’m not alone!

    #MightyTogether #Anxiety #Depression #AutismSpectrumDisorder #PTSD #ehlers-DanlosSyndrome #NeurocardiogenicSyncope #HeartDisease #congenitalheartdefect/Disease #ChronicDailyHeadache #MentalHealth

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    Team Gryffindor!

    A selfie from my trip to the doctor yesterday wearing a vintage jumper that reminds me of the Gryffindor house crest, which is convenient seeing as that’s my house!

    I’m slowly growing accustomed to doing more waiting, and less pushing myself to do things that result in PEM. And since my body sort of screamed at me to do less, I find myself noticing the small things around me I used to take for granted with renewed appreciation.

    I also find myself caring a lot less….so whoever was sat next to me smoking in the car with black tinted windows so I couldn’t see them, got treated to me singing along to The Fray (Happiness), Amy Winehouse (You Sent Me Flying / Cherry), Sia (Breathe Me), Sarah M (Adia), Coldplay (We Never Change), and Lou Reed (Perfect Day).

    I stopped short of Wild is the Wind by Nina Simone, because I feel like it’s a late night song that requires me to be pretend drinking red wine, in a Margo Tenenbaum state of mind.

    Now that I’ve made things potentially awkward, let me know what your Hogwarts house is and what some of your favourite Sing-It-Out-Loud-DGAF soul songs are 💛

    #HarryPotter #Fashion #SpoonieFashion #Postexercisemalaise #ChronicFatigue #ChronicIllness #CardiovascularDisease #Music #MightyMusic

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    Navigating College When You Have OCD

    When I started college in 2019 as a first-generation student, my OCD was undiagnosed and as untamed as a wildfire; my obsessions and compulsions were ruling my life and turning daily tasks into an invisible marathon.

    A combination of shame around the content of my obsessions and a lack of health insurance kept me personally from treatment, but once I was able to access resources and get the help that I needed, I was able to enjoy life in a way that I never had before. Navigating college when you also have OCD isn’t easy, but it can be done and it is so very worth it.
    If you’re struggling, here’s what I wish I’d known back then:

    1. You are your own best advocate, hands down and full stop. Regardless of where you are in your journey, nothing can get better if you are not fiercely advocating for yourself at every turn. Speaking up isn’t easy, but you are worth every awkward moment and fumble, and it will get easier the more you do it. Keeping your voice matters, especially when others are added to the mix. No one knows your struggles better than you, and your perspective is valid and crucial to your wellbeing.

    2. There is no shame in having OCD, regardless of the content of your thoughts and what others might say. I carried immense shame around the thoughts I was having while simultaneously knowing that I was not my thoughts. I even shied away from care for a while after I had health insurance because I was so embarrassed. OCD isn’t a reflection on who you are as a person, or even of what you’re capable of. It’s time OCD was treated like heart disease and asthma – a medical condition and not a “fault.”

    3. Take advantage of school resources! Colleges have disability support offices that are there to help students thrive in school while simultaneously managing their disabilities — including psychiatric ones. Each school is different, but be prepared to provide documentation from a mental health provider and meet with a counselor to discuss the accommodations that can help you do your best. Accommodations do not mean you are less than or are getting “special treatment.” Accommodations help all students to be on equal footing with an equal opportunity to be successful, and are protected under ADA law.

    4. Celebrate everything! In my opinion, college is full of victories (large and small) worthy of celebration and pride. I think this is particularly true for those of us with psychiatric disabilities, because to the outside world, we don’t look like we’re fighting a battle. We don’t look like we’re carrying an extra burden or having to work any harder. No one would guess at the invisible war we’re constantly fighting, the one that follows us from classroom to home and everywhere in between. Got an A on a paper? Celebrate! Got an A on a paper while struggling with an obsession? Celebrate even more! You deserve it.

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    What’s been your experience with acupuncture?

    Mighty staffer Kat tried acupuncture for a couple of months to help with her chronic migraine pain and found her symptoms either stayed the same or even worsened after a couple sessions.
    This hasn’t been everyone’s experience however, and she’s definitely heard many success stories, too!

    What’s been your experience? Has acupuncture helped you? Have you found your symptoms to change or stay the same?

    #ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Hospital #Cancer #Anxiety #PTSD #CheckInWithMe

    13 comments
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    How do you approach hard health conversations?

    When you live with a chronic or rare condition, doctor visits and health conversations become a part of your regular routine — but preparing for those harder discussions can definitely still be super challenging.

    How do you approach those tougher health conversations? What approaches have you found to be the most helpful? What tips would you give someone that shares your same diagnosis?

    ✏️ P.S. Need some inspiration and a great read? Check out Kathleen M’s recent Mighty story: A Better Way to Break 'Bad' Health News

    #ChronicPain #ChronicIllness #MentalHealth

    #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction

    #POTS #Spoonie #Lupus #Endometriosis #Hospital

    #Cancer #Anxiety #PTSD

    #CheckInWithMe

    4 comments