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Interviews with Scientists!

Hi Everyone! I'm new here. The patient committee I manage suggested I post this interview series here for interest and educational purposes. I'd love your feedback! Our goal is to reach a wider public/patient audience with this project! Happy watching and I hope you learn something learn! www.youtube.com/playlist #scicomm #ClinicalTrials #Research #StemCells #CardiovascularDisease #AlzheimersDisease #ParkinsonsDisease #Diabetes

Stem Cells from the Sofa

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My Advice

I need to share this information with every woman I know that has PCOS.
My husband and I have been trying to have a child since we got married but it’s been so difficult bc I have PCOS.

These are things I’ve learned along the way while being under the care of a specialist:

Take myoinositol and don’t stop working out please. No physical activity increases risk of heart disease and diabetes but with PCOS it increases your risk. Also get good sleep and take melatonin if you can’t sleep. PCOS messes with your sleep and increases chances of depression (bc hormones).
PCOS really wreaks havoc and I had no idea how hard it would be to conceive.
See a specialist to help regulate your cycle with natural progesterone. Treatment reduces your risk of cancer, heart disease and diabetes.

Thanks for reading. 🤗 I love you!

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I'm new here!

Hi, my name is sharris4. I'm here because my 26 yr old son had open heart surgery at age 5, lives w heart disease and is facing another open heart surgery for aortic valve replacement. we always knew it would be needed but now it’s really here.

#MightyTogether

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I'm new here!

Hi, my name is 19nier. I'm here because
I got diagnosed with peripartum cardiomyopathy, I am a month post partum and also recently lost my mother to cancer 2 weeks before my son was born. #MightyTogether #HeartDisease

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I'm new here!

Hi, my name is 19nier. I'm here because
I got diagnosed with peripartum cardiomyopathy, I am a month post partum and also recently lost my mother to cancer 2 weeks before my son was born. #MightyTogether #HeartDisease

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The art of kindness.

Mental illness is just as real as heart disease and cancer. It should never be taken lightly or swept under a rug.We are talking about saving a human life and helping them find true happiness. This means to be kind, don’t judge, belittle, humiliate, and make someone feel alone. We are here to ease someone’s burden, not add on to it.
-Danny Gautama

#MentalHealth #Depression #Anxiety

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“do or do not, there is no try”

Coming up is a retirement party for someone whom I worked under for 15 years and had a wonderful relationship with. I left the job 2 years ago as a result of my symptoms getting in the way of my ability to perform my job duties.

Part for of me wants to go to the party, because this person was very supportive and meant a lot to me. I should be able to do this.
But as it comes closer- I’m filled with anxiety and dread of the prospect of going. I’ll have to see a lot of people who I was really close with but haven’t had any contact with for the last 2+ years. I feel this deep sense of shame for a multitude of reasons.

1. I’ve been unemployed so if they ask what I’m doing now, i could say “watching Netflix and trying to regulate my emotions while recovering from neuromodulating surgery to fix my broken brain”

2. I’ve gained a lot of weight since I last saw everyone as a side effect of meds, and even though I know that’s not something that should effect my decision, I’m honestly embarrassed and disgusted by myself.

3. I’ve always been socially anxious, so even if I was stable I’d be experiencing anticipatory anxiety. I haven’t really socialized at all in over a year.

I thought I was beginning to stabilize, but since this event came up I can feel myself losing the ability to maintain an emotional equilibrium. Each day I spend more and more time in a state of panic, self deprecation, and general depressed moods.

I know I should, and part of me does, want to go, but every time I think about it feels like someone’s sitting on my chest and I end up crying, a lot. I’m so disappointed in myself, but I honestly don’t think I can handle socializing with these particular people at a large scale event, especially bc I used to be someone they respected and even looked to for guidance.

I’m a shell of my former self and rapidly declining. I was starting to do better, but this has sent me into a downward spiral. And to top it off, my psychiatrist of over a decade abruptly retired around the same time I found out about the event due to an acute onset of heart disease.

It’s in 2 days. I made up a story that I had to go see the neurologist so I might not be able to make it. I’m so disappointed in myself because I’ve spent most of my adult life making up excuses (lying) about why I can’t attend things because the real answer, that trapped in a cycle of negative emotions and can’t function, is just not an answer most people would understand. And I don’t fault them for that because I’m barely navigating through it myself. But I finally have started to accept myself and my limitations and have been telling the truth and this feels like a total emotional relapse.

I don’t really know why I’m posting this. Maybe just for myself to put into words what I’ve been feeling the last few days before it consumes me or my mood rapidly changes again and I have to reexamine/reorient myself to another group of feelings.
So there that is. Thanks for the space to let me work through my stuff and really make myself become consciously aware of my constantly shifting feelings.

Bipolar Disorder sucks.

#Bipolar1 #MentalHealth #SocialAnxiety

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I'm new here!

Hi, my name is Anaconda33. I'm here because I'm tired of the stigma applied to the society that don't understand that we're like any other person and we have a disease that effects our brain. and should just as acceptable as someone who has diabetes or heart disease. To be honest, there have been so many times that wished I wasn't born this way and work so hard sometimes every day, but I was, and I really wish people were more understanding, If you don't take your medication and don't see a therapist- I don't think that's very smart, but I have lived with bi polar for 43 years now and I'm more than willing to help others out. To listen to what they have to say, and offer my advise.

Also, I have volunteered for NAMI, (National Alliance for Mental Illinois--for those who are unfamiliar with this wonderful non-profit organization who has many people, for several years) so I do have a lot of knowledge about mental illness. I have my good days and bad days, like every else. So I would also love to hear from others what their tips for dealing with relationships, and learning how to step back from a situation and think before I speak, catastrophic thinking (that's a big one for me) lol! and other things as they come up.

But after all the therapy I've had, books and other materials I have read, I do have a lot of understanding of mental illness to share. My friends reach out to me because they know how much I want to help and often refer to me as "their therapist". I like to talk a lot too, as you can see! Take care all! And be well.

#MightyTogether #BipolarDisorder

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