Cardiovascular Disease

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When will this year end? F*ck 2026

I can't even begin to describe how horrible 2026 is. It's like a meteor imbued with a curse targeting specifically my family has hit earth

This is also my third attempt at sharing my story. First attempt, I got halfway through my story before reaching the character limit; second attempt, I simplified it, pressed post, and nothing happened. Here we are, attempt three, even further simplified

My physical health has been on a decline, I've had constant stomach aches every day since February 16th, the entire future of my education has been destroyed by one selfish man, and unaided by many others, leading us to try and pursue a lawsuit, but 2026 has been too hectic for us too, my sister had a pacemaker put in at age 14, not too surprising as my uncle had his put in at 16 for the same reason, and my nan has been diagnosed just yesterday (September 23rd) with a cancerous tumour in her intestine. Her prognosis is good, but the story is fucking insane and unexpected, and there are many situations in which she could've unexpectedly lost her life. Her story starts with her brother dying at age 60 unexpectedly from a heart attack, and now the family is rather strongly investigating our heart health. I swear cardiological investigations are related to the discovery of bowel cancer. There is now a concern I may have the same issue as my sister and uncle due to a rather severe syncope episode I had on Monday, different from any of the few fainting episodes I've had, but the same as many of my sister's; a syncope episode that could've been caused by bradycardia or even my heart briefly stopping. My mother also has a very large gallstone, which she will be having surgery for on the 30th, which may result in her losing her gallbladder, something both her mother (my aforementioned nan) and brother (not the one with the pacemaker) have had to have done themselves. And this does not even cover everything with my stepcousins, also having had physical health issues manifest this year, including asthma and epilepsy, and an ongoing domestic violence case which we have been working towards aiding since 2024, and it only got worse this year, and now the children's, toddlers by the way, mother has a restraining order against her, although she appealed it on the 21st, however, and so now they now have a contract with similar conditions to the VRO, slightly lesser, but should she break it, it will be back to the restraining order #ChronicFatigueSyndrome #Cancer #HeartDisease #Epilepsy #Depression #FamilyAndFriends #fuck2026 #FuckCancer #bowelcancer #Legal #stomachissues #Fainting #Asthma #gallstone #Depression #Anxiety #Education #LivingWithPOTS #endthisyearalreadyplease

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When will this year end? F*ck 2026

I can't even begin to describe how horrible 2026 is. It's like a meteor imbued with a curse targeting specifically my family has hit earth

This is also my third attempt at sharing my story. First attempt, I got halfway through my story before reaching the character limit; second attempt, I simplified it, pressed post, and nothing happened. Here we are, attempt three, even further simplified

My physical health has been on a decline, I've had constant stomach aches every day since February 16th, the entire future of my education has been destroyed by one selfish man, and unaided by many others, leading us to try and pursue a lawsuit, but 2026 has been too hectic for us too, my sister had a pacemaker put in at age 14, not too surprising as my uncle had his put in at 16 for the same reason, and my nan has been diagnosed just yesterday (September 23rd) with a cancerous tumour in her intestine. Her prognosis is good, but the story is fucking insane and unexpected, and there are many situations in which she could've unexpectedly lost her life. Her story starts with her brother dying at age 60 unexpectedly from a heart attack, and now the family is rather strongly investigating our heart health. I swear cardiological investigations are related to the discovery of bowel cancer. There is now a concern I may have the same issue as my sister and uncle due to a rather severe syncope episode I had on Monday, different from any of the few fainting episodes I've had, but the same as many of my sister's; a syncope episode that could've been caused by bradycardia or even my heart briefly stopping. My mother also has a very large gallstone, which she will be having surgery for on the 30th, which may result in her losing her gallbladder, something both her mother (my aforementioned nan) and brother (not the one with the pacemaker) have had to have done themselves. And this does not even cover everything with my stepcousins, also having had physical health issues manifest this year, including asthma and epilepsy, and an ongoing domestic violence case which we have been working towards aiding since 2024, and it only got worse this year, and now the children's, toddlers by the way, mother has a restraining order against her, although she appealed it on the 21st, however, and so now they now have a contract with similar conditions to the VRO, slightly lesser, but should she break it, it will be back to the restraining order #ChronicFatigueSyndrome #Cancer #HeartDisease #Epilepsy #Depression #FamilyAndFriends #fuck2026 #FuckCancer #bowelcancer #Legal #stomachissues #Fainting #Asthma #gallstone #Depression #Anxiety #Education #LivingWithPOTS #endthisyearalreadyplease

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Behçet’s: the misunderstood gateway disease. Rare, complex, and often accompanied by conditions doctors don’t always connect. #BehcetsDisease

#BehcetsDiseaseWhen Stanford diagnosed me with Behçet’s at seven years old, I had absolutely no idea what I was being handed. I barely knew how to pronounce it—especially because everyone seemed to pronounce it differently. I certainly didn’t understand that this would become the most misunderstood disease of my life. Behçet’s isn’t just sores and embarrassment. Try losing your teeth, having pieces of your tongue fall away, losing more than 90% of the vision in one eye, dealing with blood clots, heart disease, neurological complications, brittle bones and days when walking becomes difficult. Then add the other diseases and conditions that seem to travel alongside it, and you’re left wondering how one body can possibly hold all of this. I’ve spent decades being tested, retested, doubted, relocated closer to hospitals that understand rare disease, and becoming an unwilling expert in my own body. Behçet’s doesn’t just mutate—it humiliates, consumes, and invites complications I never asked for. It’s a continual inexplicable battle.

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Chronic Illness Advocate

Late night talk about chronic illness advocacy.

For me (Bri), Chronic illness comes in the form of:
✅ mental illness (bipolar 1)
✅ autoimmune disease (lupus & hashimotos)
✅ heart disease (mitral valve prolapse)
✅ blood disorders (anti phospholipid syndrome)
living with chronic illness is a challenge between doctor’s appointments, financial strain, medication management, exercise, diet, and most importantly, faith.

You know your body best. If you feel something is off, say something. Call your doctor, make that appointment. Advocate for yourself. Ask questions and ask for second opinions. Never let that one doctor push lithium on you just because you have bipolar 1- it will destroy your kidneys (especially if you have lupus).

There is no shame in being chronically ill- you are fearfully and wonderfully made in God’s image. Nothing can separate you from that joy. I use my illnesses as a testament to the goodness of God.

How does living with chronic illness affect your day-to-day life?
#livingwithlupus #chronicillness

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Why You Can’t Get Better by Yourself: The Myth of Beating Addiction Alone BigmommaJ

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“I can do this on my own.”

For many people struggling with addiction, those words feel empowering. They reflect determination, independence, and resilience. But addiction is one of the few battles where trying to fight alone often becomes part of the problem.

Addiction thrives in secrecy, isolation, and shame. Recovery thrives in connection, accountability, and support.

The truth is that most people do not recover because they are strong enough to do it alone. They recover because they become strong enough to ask for help.

Addiction Changes More Than Behaviour

Addiction is not simply a bad habit or a lack of willpower. Research shows that prolonged substance use affects areas of the brain involved in reward, motivation, memory, impulse control, and decision-making (Volkow et al., 2016).

As substances repeatedly activate the brain’s reward system, the brain begins to prioritize obtaining and using the substance over other important aspects of life, including relationships, health, work, and personal values. This helps explain why many individuals continue using despite severe consequences.

According to the ccsa.ca⁠, substance use disorders are complex health conditions influenced by biological, psychological, and social factors.

If addiction were simply a matter of wanting to quit badly enough, relapse would not be so common and treatment would not be necessary.

Addiction Distorts Thinking

One of the most difficult realities of addiction is that it affects the very tool needed to recognize the problem: the mind.

Addiction often creates distorted beliefs such as:

*”I can stop whenever I want.”

*”I’m not as bad as other people.”

*”Nobody can help me.”

*”One more time won’t hurt.”

*”I don’t need support.”

These thoughts are not necessarily character flaws; they are often symptoms of a condition that impacts judgment and insight (American Psychiatric Association, 2022).

Trying to recover alone while addiction continues influencing thoughts and decision-making can be like trying to navigate a maze while blindfolded.

Recovery Happens in Relationships

Humans are social beings. Connection is not a luxury—it is a biological need.
Research consistently demonstrates that social support is one of the strongest predictors of successful recovery outcomes (Kelly et al., 2017).

Individuals who have supportive relationships and participate in recovery communities tend to experience higher rates of sustained sobriety than those attempting recovery alone.

Support can come from:

*Family members

*Friends

*Peer support groups

*Sponsors

*Therapists

*Addiction counselors

*Treatment programs

*Recovery communities

The opposite of addiction is not simply sobriety.

Many experts argue that the opposite of addiction is connection.

Trauma Cannot Heal in Isolation

For many individuals, addiction is not the primary problem—it is an attempt to manage deeper pain.

Research has repeatedly linked childhood adversity, abuse, neglect, violence, and other traumatic experiences with increased risk of substance use disorders (Felitti et al., 1998).

Substances often become a way to numb emotional pain, regulate overwhelming feelings, or escape traumatic memories.

While addiction may develop in isolation, trauma recovery frequently occurs within safe and supportive relationships. Trust, emotional regulation, vulnerability, and healthy coping skills are often learned through connection with others.

Healing requires more than removing the substance; it requires addressing the pain underneath it.

The Shame Cycle

Perhaps the greatest barrier to seeking help is shame.

Shame tells people:

“If people knew the truth about me, they would reject me.”

As a result, many individuals withdraw from others and attempt to manage addiction privately.

Unfortunately, isolation tends to strengthen both addiction and shame.
Research from camh.ca⁠, highlights that stigma remains one of the most significant barriers preventing individuals from accessing treatment and support.

The more people hide, the more alone they feel.

The more alone they feel, the more they may turn to substances.

The cycle continues.

Connection interrupts that cycle.

Independence Is Not Recovery

Society often praises self-reliance.

We admire people who overcome challenges on their own. We celebrate independence and toughness.

But addiction is not a challenge that rewards isolation.

No one expects a person with a broken bone to heal through determination alone. No one expects someone experiencing heart disease to simply “try harder.”

Addiction deserves the same understanding.

Seeking treatment, attending meetings, participating in counseling, or asking for support is not weakness.

It is evidence of strength.

Rising Above the Norm

The norm says:

Hide your struggles.

Keep your pain private.

Figure it out yourself.

Don’t let anyone see you struggling.

At Rise Above Your Norm, we challenge that thinking.

Real strength is not carrying every burden alone.

Real strength is recognizing when support is needed and having the courage to reach for it.

Recovery begins when isolation ends.
Reflection

Many people spend years waiting until they are “better” before asking for help.
They believe they must first prove they can stop using, get their life together, or become worthy of support.

Addiction does not work that way.
Support is not the reward for recovery.
Support is often the pathway to recovery.

Every day, individuals struggling with addiction convince themselves they can handle it alone. Some eventually discover that they cannot—and that realization often becomes the turning point that saves their lives.
The goal is not to prove strength through isolation.
The goal is to build strength through connection.

Call to Action

If addiction has convinced you that asking for help is a sign of weakness, challenge that belief today.

*Reach out to one trusted person

*Attend one recovery meeting

*Call one counselor

*Send one text

*Take one step

You do not have to know how the entire journey, it will unfold.

You only need enough courage to take the next step—and enough humility to recognize that you do not have to do it alone.

BigmommaJ
#AddictionRecovery #MentalHealth

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What bag, purse, or backpack brands work well for your chronic pain?

Chronic pain can affect many areas of the body—including the back, shoulders, and arms—so even carrying everyday essentials like your keys, phone, and wallet can add extra strain.

What bag, purse, or backpack brand has worked well for you? What do you appreciate most about it, and why does it feel comfortable to carry?

⭐ Your answer may be used to update a Mighty article! ⭐

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

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I joke about this but really… #ChronicIllness #MentalHealth

I want to post something that’s light compared to the last one, and just to perhaps have some fun on this kinda internal joke I have. I say “I won the gene lottery” for the worst genes!
It’s not very sad to live with it for me, perhaps because I grew up in an environment so bad I had to learn to adapt fast, which makes me going blind not suffer so much though after 5 years actively dealing with constant spurts of vision loss, I finally feel some grief.
But really if I would list… disabilities? Well, ASD and blindness are together. Very likely to have won the ADHD gene too but I didn’t get to test yet because of money and because the overall test checks for ASD, ADHD and “being Gifted” and I’m already proven to have ASD and a “Gifted Brain” so I don’t want to pay a lot of money right now just to check if ADHD is here too. Now eyes? Congenital cataracts with retinal dystrophy followed by partial ophthalmoplegia, partial lagophthalmos, nocturnal lagophthalmos, light strabism and an amblyopic eye that never worked until some weeks ago and activated because my dominant eye got to the useless bar. Also was lucky to win the myopia and astigmatism genes but those are common in society. Then there’s the very specific genes from each of my parents… heart disease and hypertension weren’t on my bingo card until I actually got to a point where I apparently earned it from my dad. Then a very aggressive gastritis from my mum, and also coming from her… loose ligaments and double joint.
Aside from my effed mental health that is more mine than anyone else’s, I basically won the gene pool. I try laughing about it because if I’d cry for all of it I’d be even more miserable, but what most of that brings me isn’t the grief really, it’s a free ticket for being constantly annoyed and tired, always in fatigue and although my patience is almost endless, I do get frustrated and annoyed by having to go doctor after doctor trying to solve my issues, adjust medications, and overall, trying to find an ophthalmologist who actually will effing listen to me on testing for Retinitis Pigmentosa Sine Pigmento because I have all the symptoms, but nothing is visible on my retina, and that’s why this kind of RP I mentioned, is called “Sine Pigmento” (If you didn’t understand the term, it’s Latin for “without pigment”)

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Share a song you relate to as someone living with chronic illness.

It’s no surprise that music can be a powerful source of comfort and emotional healing. For many people living with chronic illness, it can also be a helpful way to cope with symptoms and manage stress.

What’s a song you connect with, and what part of it resonates with you the most?

⭐ Your answer may be used to update a Mighty article! ⭐

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

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I'm new here!

Hi, my name is Beautifulcrazy93. I'm here because
I have about 30 plus diagnosed medical condition Most are not here some are very rare so they say i just need to find people to fell less alone and maybe give some hope maybe find a doctor who’s up for a challenge #MightyTogether #Fibromyalgia #Migraine #PTSD #Anxiety #OCD #EhlersDanlosSyndrome #NeuropathyHereditary #Dysautonomia #Dysphasia #Dysthymia #Depression #Epilepsy #Agoraphobia #PosturalOrthostaticTachycardiaSyndrome #HeartDisease #IrritableBowelSyndromeIBS #IronDeficiencyAnemia

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I'm new here!

Hi, my name is Beautifulcrazy93. I'm here because
I have about 30 plus diagnosed medical condition Most are not here some are very rare so they say i just need to find people to fell less alone and maybe give some hope maybe find a doctor who’s up for a challenge #MightyTogether #Fibromyalgia #Migraine #PTSD #Anxiety #OCD #EhlersDanlosSyndrome #NeuropathyHereditary #Dysautonomia #Dysphasia #Dysthymia #Depression #Epilepsy #Agoraphobia #PosturalOrthostaticTachycardiaSyndrome #HeartDisease #IrritableBowelSyndromeIBS #IronDeficiencyAnemia

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