chemo brain

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    Community Voices

    How did you feel mentally after auto #stemcelltransplant ?

    I'm six months post auto stem cell for Hodgkin's Lymphoma. I fought hard to not do it, and I'm still having a lot of regrets about doing it. Anyone else in this boat? I was just getting out of isolation when #COVID19 hit and went right back in, which I know is having some impact too. But mentally I'm just struggling to keep up. #MentalHealth #Cancer #Hodgkinslymphoma #ChemoBrain #BoneMarrowTransplant

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    Community Voices
    Community Voices


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    Community Voices

    Hello! Intro from Jaybee

    Hello This is Jaybee I just stumbled onto this pageand looks like I have found a hidden treasure of people I can relate to! I'll give you an idea about my health. I am a #breast cancer late stage #survivor with many side effects that did not end after 1 1/2 years on chemo I had a mastectomy and reconstruction and my lymph nodes removed from the area From my hair to my toes I have a list of problems brought on by high doses of chemo or by removal of #lymph nodes Without enough lymph nodes I swell every day from eyelids to uvala to feet toes thighs calves knees and belly, even armpits! (not all of them everyday or all at once) But every week all areas have swelled at least once My legs turned red while on chemo and got neuropathy they have stayed that way I have chronic pain everyday My ankles/tibia just above foot front on both feet feel like they are in a vice grip and the range of motion is limited I have #stenosis from the neck to the hips and at times this is excrutiating pain I had a steroid shot in Nov.. I have lots more going on; it's hard to remember them all. Having a sense of humor helps #ChemoBrain #BrainLesions #SpinalStenosis#ChronicIllness #ChronicPain #Spondylolisthesis #VasculitisSyndromesOfTheCentralAndPeripheralNervousSystems, ,
    Other , #graves , #barretts #HairLoss , #Narcolepsy ##Fibromyalgia #bunion #Vasculitis #panninculitis    #limpodermatosclerosis   #edema

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    Karin Sieger

    Chemo Brain Explained in Simple Terms

    Chemo brain is one of many possible side effects of cancer treatment. Not everyone will get it, but I did, and I did not really understand what to expect and how to cope. Why Chemo Brain? During cancer treatment and often afterwards we cannot function the way we used to — often on all levels: physical, mental and emotional. Why is that? Because we are affected by the cancer itself, the cancer treatments and other medication we may require, overall changes in our wellbeing and the tremendous stress, anxiety and emotional trauma of the situation. Chemo brain is one of those consequences and side effects. And it is not necessarily only related to chemotherapy but to a combination of all of the above. The degree to which chemo brain can impact us varies from person to person. Indeed, it can outlast cancer treatment. Chemo Brain Symptoms With chemo brain we may experience a number of symptoms that reflect a reduced mental ability: loss of concentration, fatigue, confusion, not being able to multi-task, not being able to cope with noise or conversations or media, sleep disruption, finding it difficult to go out and more. If your brain, head or mind, whatever you want to call it, was a processor, then during chemo brain it cannot process as much or at the same speed as before. We may be left feeling frightened and isolated. It is another loss of normality, predictability and our identity. More uncertainty and new circumstances to deal with. Explaining Chemo Brain to Others It can be difficult to explain to others what we are going through. I like to use the example of a computer. If our brain was a computer used to  running six apps and multi-tasking for example on Facebook, Twitter, watching TV and doing WhatsApp at any given time, with chemo brain our brain may be able to use one app only and even then only for a short period of time. It will also take a lot longer to re-charge. Coping with Chemo Brain To cope and look after ourselves, we may need to scale down our activities, commitments and responsibilities, including the small things, which we like and will miss. We may need to reach out for help and delegate. All things, which may be hard and not straightforward. I have recorded a video about it, where I share some of my own experiences with chemo brain and coping strategies. I hope you might like it and find it of use. To receive Karin’s newsletter please sign up here.