Harry Potter

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Greetings from platform 9 & 1/4!

Another photo from our recent snow outing. It’s still around and tonight there’s a wee chance we might get more 🤞

My guess is that these signs are old markers for the old canal, considering there is a Lock Keeper’s Cottage… but it also reminded me of Harry Potter. Walbridge and Inglesham House both have nice rings to them, so I’d consider signing up!

#HarryPotter #Movies #snowday #Photography #justforfun #DistractMe #MyCondition #Christmas #MyalgicEncephalomyelitis #Spoonie

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Team Gryffindor!

A selfie from my trip to the doctor yesterday wearing a vintage jumper that reminds me of the Gryffindor house crest, which is convenient seeing as that’s my house!

I’m slowly growing accustomed to doing more waiting, and less pushing myself to do things that result in PEM. And since my body sort of screamed at me to do less, I find myself noticing the small things around me I used to take for granted with renewed appreciation.

I also find myself caring a lot less….so whoever was sat next to me smoking in the car with black tinted windows so I couldn’t see them, got treated to me singing along to The Fray (Happiness), Amy Winehouse (You Sent Me Flying / Cherry), Sia (Breathe Me), Sarah M (Adia), Coldplay (We Never Change), and Lou Reed (Perfect Day).

I stopped short of Wild is the Wind by Nina Simone, because I feel like it’s a late night song that requires me to be pretend drinking red wine, in a Margo Tenenbaum state of mind.

Now that I’ve made things potentially awkward, let me know what your Hogwarts house is and what some of your favourite Sing-It-Out-Loud-DGAF soul songs are 💛

#HarryPotter #Fashion #SpoonieFashion #Postexercisemalaise #ChronicFatigue #ChronicIllness #CardiovascularDisease #Music #MightyMusic

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The picture says it all #CheckInWithMe

I wish there was more I could say other than I am frustratingly the same. I do everything I can and nothing has changed. IIH is unrelenting and as I’ve said before, it’s basically a waiting game for now. Only the waiting game is not a very fun game. It’s actually quite painful. And exhausting. And lonely.

The only positive thing I can add is I did purchase this crewneck for myself and I can’t wait to get it. Any Harry Potter fans out there?

Anyway, I wish I had more to add to this, but I want to say I’m still hopeful for the future. There is hope for remission for me. I’m not going to be stuck at home for the rest of my life, and I truly believe that. It might not be exactly be the timeline I expected, but I believe in the life I’ve been dreaming of.

#IIH #IdiopathicIntracranialHypertension #IntracranialHypertension #IH #ChronicDailyHeadache #ChronicIllness #ChronicFatigue #chronicallyill #chronicallyillteen #chronicallymighty #RareDisease #ChronicallyHopeful #CheckInWithMe #HarryPotter

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Patronus #HarryPotter #MentalHealth

What does your patronus look like? If you feel like sharing, what memory is fueling the patronus that's sheilding your daily dementors?

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Harry Potter makes me happy

I am super excited that I got a good deal on Amazon on the illustrated versions of the first 4 Harry Potter books. I don’t know why but Harry Potter is something that has always brought me joy. I remember when I was 12 and I was going through a terrible bout of depression and seriously contemplating suicide at that time. The only thing stopping me from going through with it at the time was that the 5th book was coming out in a few days. I wanted to be alive to read it. So I battled through those terrible days so I could start reading it the day it came out. I guess you could say that Harry Potter saved my life. Thank you J.K. Rowling for writing these wonderful books because if you hadn’t who knows if I’d be alive today. #Depression #SuicidalThoughts #HarryPotterWorld #HarryPotter #happy

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“Happiness can be found even in the darkest of times, if one only remembers to turn on the light.”
- Albus Dumbledore/J.K. Rowling
#ChronicIllness #CheckInWithMe #MentalHealth #Undiagnosed #HarryPotter

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Productive day

#Fibromyalgia Had a really productive day today, despite fibromyalgia!! Dancing, Running and Drawing a picture for my niece of Harry Potter. Going to oil pastel it when it’s finished 😊 Proud of my day today! #Anxiety #HarryPotter #HarryPotterWorld