I had Cushing's syndrome and had my R adrenal gland removed about 5 years ago. I was told by my doctor that I no longer had the disease. It was hell to go through. I was so heavy I didn't recognize myself in a mirror. Im still 30 lbs overweight but have started exercising and eating right.
It does get better after surgery. I was lucky that I live close to Johns Hopkins and they took me right away after I figured out that I had Cushing's. My doctor once told me that I had an adrenal gland tumor and not to worry about it. I was told I was making up symptoms.
One doctor believed I was self harming because all of the bruises and rash. Especially my forearms. I called him after I got the diagnosis and he got really nervous. At this point I was fuming that no one believed my symptoms. I pushed to get the right treatment. I called Johns Hopkins after I remembered the doc telling me not to worry about the adrenal gland tumor. I went on line under adrenal gland tumor and found Cushing's syndrome. I had all the symptoms.
Needless to say I was in terrible pain and couldn't sit or walk very far. I was using a walker to get around. I had difficulty driving, broke a few bones including a vertebra. I had to have back surgery because of this. I never lost hope. I don't know how I got through. But I did
There is life after Cushing's syndrome