Cushing's Syndrome

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Cushing's Syndrome
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    I'm new here!

    Hi, my name is K_Lynn1376. I'm here because I was diagnosed with Cushing's syndrome in September and had an adrenalectomy on 10/31/22. This has left me in Secondary adrenal insufficiency. I want.to learn all I can about both conditions to have the fullest life I can.

    #MightyTogether #cushing 'sSyndrome

    Post

    I’m new here!

    Hi, my name is moonstruckcaligirl. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #Fibromyalgia #Migraine #Anxiety #Depression #cushing'sSyndrome

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    I’m new here!

    Hi, my name is PhillyMa80. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether #Depression #Fibromyalgia #Migraine #cushing'sSyndrome

    Post

    Physical health #CushingsSyndrome #svt #Steroids #MyalgicEncephalomyelitis #atopy

    Home from hospital now, so happy to see my children. The worst part of all this is how suddenly i become unwell and end up in hospital and have to leave them with someone else. Looks like my heart is the issue, i went into SVT and they had to give me IVs to stablise my heart rate. Looks like it could be cushing syndrome too, and steroid induced diabetes with my blood sugars going above 20. They’re looking more into what’s going on with my heart and I’m now going to be under the cardiologist, as well as the thoracic clinic too with my usual respiratory consultant. Will have occupational therapy, respiratory nurse to visit at home as well as speech and language to help with my voice and swallowing problems. We are going to try and reduce the steroids a bit as currently on 50mg and have been for ages. The weight should start to fall off with the reduction too. My new wheelchair comes tomorrow one i can wheel myself rather than being pushed so will give me some freedom. Been a really awful few months, they want me to do counselling because of how much my life has changed and how limited i now am and they said they can arrange it for me though I already have a private therapist so not sure what I’m going to do yet.

    Post

    The fear in waiting.

    I just had an #Endocrinologist appointment that ended with bloodwork. Now I'm in that dreaded stage of waiting. I may have had every single symptom that checked the boxes for an endocrine problem, specifically #CushingsSyndrome , but you know... that's happened before. As someone who has spent their entire teen and current adult life suffering through doctors and their tests, most of them coming back negative, I'm used to this. But this time...I really need to have an answer. An answer with a solution, no more incurable diseases. If its Cushing's, which I hope it is, I'll just get the snip of a benign tumor and return to my typical homeostatic state of #EhlersDanlosSyndrome . I really just need some support during this time, and good vibes I have solid answers instead of "rule outs." #ChronicIllness #ChronicPain #Asthma #HypermobileTypeEDS #IrritableBowelSyndromeIBS #AcidReflux #GastroesophagealRefluxDisease #BellsPalsy #Tachycardia #CheckInWithMe #Undiagnosed

    Post
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    emotional support best friend

    recently i almost lost my love of my life & emotional support animal.. boop.

    she is the most amazing soul & a registered therapy pup, she’s touched SO many lives. i’ve been the luckiest person solely bc of her. she is & has been my only reason to fight & press on through chronic illness.

    suddenly she got SO sick, after thousands++ of dollars in tests & specialty vets she was diagnosed with cushings disease as well as diabetes, she also completely lost her sight within a week :(

    so we’ve been learning together how to do 2x a day insulin shots & cushings meds & how to help her navigate the world without sight.

    so, i have completely abandoned all of my medical or life needs to make sure i continue to do anything & everything possible to get her back to healthy.

    she & i have always done one thing over all else: take care of each other.

    but i have to say, what do you do when your support animal (& best friend in the universe) becomes the one who needs the most support? how do i maintain the level of care & medicine she needs without neglecting my own to such an extent i am in no condition to take care of either of us?

    how to deal with THIS many chronic illnesses? how is this real life??

    most exhausting soul crushing year ever, send good vibes & love

    xo, kat n boop

    #Lupus #EmotionalSupportAnimal #CushingsSyndrome

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    #tiredoffighting #CheckInWithMe

    Today is one of those days where everything just sucks. It starts off with a conversation I'm having about my passion for improving my workplace with my girlfriend ending in a lack of understanding and words my mom says that is often followed in the next hours/days with gaslighting and passive aggressive statements.

    Then it carries on with a poorly tracking knee and hyperextended elbow, headache, and overwhelming fatigue. This fatigue has been growing so much and triggering other symptoms. But, I gotta help clean the house because my mom is leaving for #BreastCancer check up for a few days.

    I do that and then go to my orthopedic appointment, who while unable to help with current muscular pain did finally perscribe me pain medication for 9-10 flare days. (Heck yeah!) But he's concerned with the increasing fatigue, dysautonomia, and need to rest for hours to days on end. So, once again I'm referred to a specialist, an endocrinologist.

    So I may have #CushingsSyndrome , which would explain a lot yet is ANOTHER DANG THING I have. I don't understand why there is not a cap on what us mere mortals can endure. I'm just so tired. All the time. And nothing I do can really help other than attempt rest.

    I need to find my hope again today, cause really I'm not seeing it. #EhlersDanlosSyndrome #Dysautonomia #Asthma #AcidReflux #ChronicMigraines #ChronicPain #ChronicIllness #HypermobileTypeEDS #Fatigue

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    weight gain as a source of anxiety #Undiagnosed

    i genuinely can’t figure out if my excessive weight gain is a symptom of whatever is going on with me or just because i sometimes eat too much bread and sugar, but i haven’t gained much weight in my legs as my stomach area and hips so that’s kinda weird. but it causes so much anxiety because I barely want to eat anymore because I know i might keep gaining weight even if I eat normally (that’s if it’s a illness thing). I don’t want my blood sugar to crash or anything. Hopefully in the next few weeks I can clear it up bc i think I’m seeing an endocrinologist soon, but it’s so scary to think about bc things that cause weight gain like cortisol diseases can be dangerous.
    #Depression #PosturalOrthostaticTachycardiaSyndrome #Lupus #AddisonsDisease #CushingsSyndrome #AdrenalInsufficiency #HypothyroidismUnderactiveThyroidDisease #MentalHealth #EatingIssues #LymeDisease #UndiagnosedIllness #Undiagnosed #autoimmune #BodyImage #Anxiety #Inflammation

    Question
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    Which songs help or inspire you on your rare disease journey? #RareDisease

    Comment now and your response may be used in an article or video on The Mighty.

    #ChronicIllness #ChronicPain #EhlersDanlosSyndrome #MultipleSclerosis #Vasculitis #CushingsSyndrome #Disability