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    Struggling with #abdominalpain

    So tired of living in such pain all the time, i know my mighty friends understand! Spent the day at the ER because my G tube literally fell out in the midst of a bout of violent vomiting... I have a g tube for venting my stomach to decrease the vomiting but stopped working Friday night, low and behold, because it was no longer in proper place! Well, on the bright side at least he got it back in but not before sending my pain through the roof. He had to apply a ton of pressure and even with decreasing size felt like he was trying to put a blunt screw through to my spine via my already chronically painful abdomen. Not to mention how sore i am from all the vomiting that's been going on for days... Lidocaine did little to help and apparently the fascia had already started closing so he was literally stuffing the blunt tube in, tearing through the fascia. Home now but dealing with the aftermath and know I'm not getting any sleep tonight... Would love some distraction please? Or advice on what my fellow spoonies do to deal with extreme painful nights, especially abdominal pain? TIA #Upallnight #ChronicPain #abdominalpain #FeedingTube #Gtube #Gastroparesis #nausea #Vomiting #Dysautonomia #Dysautonomiastruggles #HypermobileTypeEDS #ChronicIllness #NeverGiveUp

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    Sunday night routine

    Every Sunday night I prepare my meds for the week: vitamins, painkillers, levotiroxine (t4), hypertension pills, etc. You name it! Hahaha 😒

    Funny thing, my mom who's 74 years old just takes 3 pills per day, I feel like such an old lady sometimes
    #EhlersDanlosSyndrome #Dysautonomia #Dysautonomiastruggles #HEDS #HashimotosThyroiditis #Hypothyroid

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    story time ; this morning i woke up with a cold & was sneezing so bad that i sent myself into heart palpitations. i said it out loud & started laughing, i think my partner is concerned. 🤣🤧
    #Dysautonomiastruggles #dysautonomiasupportnetwork #AutonomicDysfunction #laughteristhebestmedicine #heartpalpatations

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    you know you have dysautonomia when... 💦

    You know you have dysautonomia when you have more than one bottle of water 😅.
    I always carry one bottle and have one at home and one at work, and a few extras just in case 🤷🏻‍♀️ #Dysautonomia #Dysautonomiastruggles #AutonomicDysfunction #EhlersDanlosSyndrome

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    It’s hotter than Hades outside

    over here on the East coast, and I can’t go outside... but I’m all bundled up like an Eskimo in here in the a/c... #damnedifdo #Damnedifidont #Dysautonomiastruggles #ThejoysofPOTS