Eosinophilic Esophagitis

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Hitting a wall.

How many of you have had to quit school due to chronic health problems?

WARNING ⚠️ the rest of this post is lengthy!!!

I have been working on my bachelors in community health through online courses (one class at a time) for the past seven years. A few months prior to beginning my degree program I was diagnosed with fibromyalgia following a car wreck that required a neck fusion surgery. From there my chronic illness diagnoses have continued to accumulate. I now have chronic migraine, endometriosis, interstitial cystitis, chronic fatigue, degenerative disc disease, tinnitus, IBS, C-PTSD, and a long list of food and environmental allergies. I have 2 sons and 2 daughters. My youngest son (15yr) has serious ADHD. Both of my daughters (21yr & 20yr) have long lists of chronic health conditions. They live with me and probably will for their whole lives due to the impact of the disability that their issues cause. Neither girl can drive either. The oldest has Asperger’s, fibromyalgia, Ehlers Danlos, ADHD, C-PTSD, severe anxiety, depression, Eosinophilic Esophagitis, IBS, mild Ulcerative Colitis, numerous food allergies and possible Borderline Personality Disorder. The youngest has Chronic Fatigue Syndrome, Dysautonomia, C-PTSD, depression, anxiety, disordered eating, restless legs, Eosinophilic Esophagitis, constant skin picking, and numerous food allergies. All three of us girls and my youngest boy has severe sleeping problems. Me and both my girls have applied for and been turned down for disability. Up until 2022 I had been a stay-at-home, homeschooling mom. At the beginning of 2022 me and my 2 girls and youngest son ( oldest son is in college and pretty much living on his own) loaded up and left my narcissistic abusive husband of 16 yrs. and began to start over in a tiny apartment in a small town with me re-entering the work force and starting a full time job in retail and officially divorcing him at the end of that year. My youngest daughter has since tried to commit suicide twice and my oldest has had several mental breaks that were extremely hard to deal with. Throughout the whole time I have continued with my school classes. Determined to finish what I started. However, my health has continued to decline from all my illnesses and the stress of my life and it is taking a toll on my cognitive abilities. I took a 8 month break from my classes but have started back recently and I’m struggling to keep up with the assignments and not learning as I know I should be. I only have 6 classes left, that will take me the next year to complete due to the schedule I’m following, but my body, mind and finances seem to be making it extremely hard for me to keep going. I’m really considering quitting, but feel like I would be a real failure if I didn’t finish it.
If you read all this……Thank you! 🙂 #ChronicFatigue
#Fibromyalgia
# Migraine
#IBS
#InterstitialCystitis
#ChronicPain
#EhlersDanlos
#c -PTSD
#Autism
#Anxiety
#Depression
##BrainFog

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The Microbiome Diet

Hey all! Hope everyone is doing ok today. My name is Chloe and I have been diagnosed with Gastroparesis, Eosinophilic Esophagitis, GERD, IBS-C, Anemia, and Eosinophilic Asthma. I tried the medicine route the first 2 years I was diagnosed, and my health got significantly worse. I quit my care at my GI doctor last fall, and have thus taken my health into my own hands for the most part. I have healed a majority of my illness's thru food and diet. Gastroparesis and EOE give me a lot of food intolerances, and I base a lot of my diet on something called the microbiome diet. The microbiome diet focuses on healing your gut health, which is the root of a lot of GI disorders. Being on this diet has helped my health tremendously, and I would recommend it to anyone struggling with chronic illness, especially GI disorders. There is a book called, 'The Microbiome Diet' by Dr.Kellman that you can read, or I linked an article below that talks about the gut healing diet. Best of luck to everyone! The Microbiome Diet Review

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The Microbiome Diet Review

The Microbiome Diet is a new, trendy diet, touted to restore gut health and aid weight loss. This article reviews the Microbiome Diet and whether it can restore your gut health.
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I'm new here and looking for new friends my AGE (Male 24) please be 18-29

Looking for new friends IBS, Crohns and Ulcerrative Colitis! i have IBS and EOE and have wonderful friends with crohns and UC. Add my snap tyalbob60 if interested

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Hey y'all!

I'm new, my name is Labradored. I am here because of multiple medical and mental health issues. My oldest daughter was born with Rett Syndrome (a pervasive developmental disability with serious health issues) and died from a seizure in my arms at 12 years old in 1993. My youngest daughter died in a car accident at 17 in 2000. They were my only children. I was so very blessed to be their momma.
My medical issues include long term insulin dependent diabetes II, exocrine pancreatic insufficiency, Celiac disease, asthma, osteoarthritis, severe food, drug and environmental allergies, dysphasia, Barrett's esophagus, eosinophilic esophagitis, GERD, chronic stomach issues, and IBS.
My mental health concerns include Major depressive disorder, generalized anxiety, OCD and ADHD, and complicated grief related PTSD.
The memes on this site are helping me get through this current gastro flare, I've been nauseous all day today with vomiting and diarrhea for the last 12 hours . This happens about twice per month. My food menu is quite limited due to allergies to gluten, soy, most non citrus fruit, lactose intolerance and tree nut and peanuts. I feel like I develop a new food allergy every year.
My medical issues began shortly after my youngest girl died. Don't let anyone tell you that grief is just an emotional response, grief has wrecked serious havoc on my body.
I have a wonderful husband, supportive and loving friends, a great career as a behavioral health counselor and three fur babies who provide unconditional love and entertainment.
Most of the time I manage pretty well, but when my health conditions flare, it tanks my mental health as well.
Looking forward to sharing and receiving. 🩵🩷 Blessings upon you all.

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114 reactions 15 comments
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concussion migraines & pressure

Hello all, hope everyone is doing alright. Ontop of my already chronic health issues ( EOE, GERD, IBS, anemia ), I suffered a pretty bad blow to the back of my head around 2 weeks ago in my ncaa lacrosse game. Have had a lingering migraine with loads of pressure in my head that won't go away. Was told I have a concussion. Any suggestions for migraine and pressure relief ? I eat super healthy and was told to not do much excersise because it will make the pressure worse. I fear I may have post-concussion syndrome developing. I am very behind in school (nursing major) because of this, so any tips for studying with migraines would be helpfull to!

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3 reactions 2 comments
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eoe flare up

Tips on calming an eoe flare up? Been a week long flare up and have found no relief

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Hi!

Hi!! Not new to The Mighty but I am new to this group. My list of illnesses/disorders/whatever you want to call them is very long: bipolar, ADHD, PTSD, anxiety, OCD, Chronic Fatigue Syndrome, POTS, Hashimotos, chronic pain, Eosinophilic Esophagitis, hard-of-hearing, low-vision, migraines… I think there’s more. I can’t even remember all of them! Anyway - a day in my body is a ride to say the least. Just wanted to say hi. I feel and lot of support here that I don’t get in other areas of my life. Some people in my life even saying that either 1) one or more of my disorders don’t exist or 2) that I’m “too high functioning” to have them. This picture was taken on a good day - I had just gotten my eyebrow pierced as well as a matching tattoo with my best friend.

24 reactions 6 comments
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Mayo Clinic GI, my experience thus far

I first came to Mayo Clinic GI department in June of 2022. I came in with a diagnosis of eosinophilic esophagitis and reflux. Immediately I was labeled as 'looking healthy' and was put off as 'rumination.' Rumination is excessive dwelling or thinking of a condition, often times making it worse. As the months. went by, my symptoms would get more and more broad. I went from from only severe vommiting to nausea, joint pain, migraines, food sensitivities, UTI symptoms, worsening constipation, extreme tiredness, and hives. All these symptoms were pushed to the side and the only solution they could offer were multiple, heavy medications. The following year with their care I would undergo countless procedures and surgeries, resulting in a diagnosis of chronic idiopathic constipation and severe gerd w/lots of damage to the esophagus. Once again, I was prescribed on more heavy medications. My symptoms would continue to get worse. As time went on, I started to question the very doctors taking care of me. My symptoms were disregarded, my case was pushed to the side since I 'appeared healthy', and their only solution were prescribing 6 strong medications that would slowly wear away at my body. As I started to research, I came to understand how harmful all these medications were on my 18 year old body. When brought up to doctors, I was told there was nothing else they could do. No herbal remedies or any sort of diet were ever mentioned, which is the root solution to Gerd and eosinophilic esophagitis. My most recent appointment was the worst interaction I've had with a doctor. I once again mentioned the worsening of my health and conditions the past year during this appointment, and the only solution I was offered was more medication. Not only more medication, but the medication I was on for 6 months in the previous year that helped with literally nothing. The biggest issue that is worsening is constipation. I don't have any bowel movements anymore. I have tried fiber supplements, magnesium supplements, over the counter medications, and harsh prescribed medications. I have undergone procedures and surgeries and nothing was found. Nothing works anymore and when mentioned to my doctor yet again, they had no solution. I was offered a, "well what do you want us to do." Guess I just won't have any bowel movements lol. This wasn't even the most frustrating part of the appointment. The most frustrating part was over an accommodations letter for school. I am currently a college student with a major in nursing. It is very hard for me to keep up with all my required coursework when I feel so sick all the time, not to mention all the side effects my medications uphold. I asked for an accommodations letter from that doctor 3 months ago and was finally given one just earlier this week. The only thing addressed in the letter was only 1 of my conditions and they only suggested 'bathroom use.' Keep in mind, I had kindly requested excused abscense if having a flare up and extended time of tests & assignments if needed. When mentioned in our appointment, it was once again pushed to the side. I was told that they felt, "the accomodations were just." Overall, my experience with Mayo Clinic GI has been anything but "the best care in the world." I have now weaned off my meds, and continue to feel sick on a day to day basis. Under mayo clinics care I was put on several harmful medications, most often offered no solutions, and my case was ultimately pushed to the side. I am actively researching my conditions and trying to figure out on my own how to get better. Doctors like Mayo Clinic make me doubt majoring in nursing in hopes of being a DNP in the future. While they make me doubt my major and future occupation, they also confirm my decision. They confirm my decision because I am so excited to one day test, treat, and diagnose patients. Not only that, but I have seen the brokenness of the industry and how doctors only prescribe medication onto of medication, as opposed to just finding the root cause.

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Hi! New to the group.

Hello, everyone! Thought I’d post and say hey. I live with a few autoimmune disorders. Eosinophilic esophagitis (EOE), Hashimotos, and Postural Orthostatic Tachycardia Syndrome (POTS). I still have a LOT to learn but hopefully I will be able to share some wisdom as well. Looking forward to chatting with some of you and also supporting each other in all the ways. #EoE #HashimotosThyroiditis #POTS

4 reactions
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Hi! New to the group.

Hello, everyone! Thought I’d post and say hey. I live with a few autoimmune disorders. Eosinophilic esophagitis (EOE), Hashimotos, and Postural Orthostatic Tachycardia Syndrome (POTS). I still have a LOT to learn but hopefully I will be able to share some wisdom as well. Looking forward to chatting with some of you and also supporting each other in all the ways. #EoE #HashimotosThyroiditis #POTS

4 reactions